The National Brain Appeal

Thank you ⁦@BrainAppeal⁩ for funding Nurse Cristina who will support the patients on our ground breaking Glioblastoma Brain Tumour Drug trial ⁦@uclh⁩. If you know a loved one recently diagnosed pre treatment please contact me mcdonaghs@parliament.uk

Ten years ago, five rare dementia groups united to create Rare Dementia Support, building on roots that began in 1994 with a nurse-led FTD group at @UCLIoN Today we support 9,000+ members. This #RareDiseaseDay, thank you to everyone who’s been part of our journey.💜 @BrainAppeal

On Saturday 27 June, B Music Festival comes to Trent Park, Cockfosters, for a full day of live music, DJs and summer atmosphere – all in support of Rare Dementia Support, funded by @BrainAppeal Buy you tickets: eventbrite.com/e/b-music-fest…

Members of our lab attended The National Brain Appeal Christmas Concert at Holy Sepulchre Church this year, supporting the charity’s vital work in advancing research into neurological conditions. A wonderful way to start the festive season! 🎻🎄🕯️✨@UCLIoN @BrainAppeal @uclh

@IonSynapse @UCLIoN @uclh Thank you for coming along, we’re so glad you enjoyed the concert! 💙🎄

🎥 In this moving and inspirational video, I catch up with my good friend George Wade from @Bidpath .. to talk about the incredible Gavel Art Trail … a nationwide project raising funds for three vital charities through art, creativity and community. George shares more about his journey and the inspiration behind the Bidpath Foundation’s campaign, following his own brave battle with a double brain tumour. His positivity and determination are truly inspiring, and I’m so proud to support him. I’ve even picked up a paintbrush myself to create “Hansons Golden Gavel” ... my artistic contribution to the trail. The gavels go under the hammer tonight (6th Nov) at 7.30pm in London, with proceeds supporting: 💙 The Brain Tumour Charity (@BrainTumourOrg) 💛 The National Brain Appeal (@BrainAppeal) 💜 ICPCN - (@ICPCN) You can tune in live, bid, or donate below 👇 🌐 bidpath.com/the-gavel-art-… 🎬 Watch Live & Bid: bit.ly/3K3oZ57 💰 Donate: justgiving.com/team/bidpath-f… #GavelArtTrail #Bidpath #WildInArt #TheBrainTumourCharity #TheNationalBrainAppeal #ICPCN #HansonsAuctioneers #fblifestyle #CharlesHanson #AuctionForGood #GoingGoingGogh

Congrats to Peter Finnigan, Highly Specialist Neuromuscular Physio from NHNN’s Highly Specialist McArdle & Related Disorders Service, on his Small Acorns grant @BrainAppeal of £5,691.60 to establish normative strength profiles and quantify sarcopenia risk in McArdle disease

@UCL_QS_CNMD Congratulations, Peter! Wonderful to see our Small Acorns Fund supporting such valuable work in McArdle disease.

🎶 Can music help heal the brain after injury? This #WorldStrokeDay we speak to Dr @sara_ajina about her pioneering trial at @uclh with @nordoffrobbins and @BrainAppeal to find out the impact of music therapy. ucl.ac.uk/brain-sciences…

Earlier this year, Rare Dementia Support began working with partners in Japan to help build awareness, connection and support for people affected by rare dementias. 💜 Watch the video to see more about our team’s recent visit. Full story: raredementiasupport.org/news/rare-deme…

As #WorldAlzheimersMonth comes to an end, @ucl and @BrainAppeal are delighted to announce that a world-first centre for people impacted by rare dementias is to be named in honour of visionary philanthropists Hilary and Galen Weston. raredementiasupport.org/news/world-fir…

As #WorldAlzheimersMonth comes to an end, UCL and @BrainAppeal are delighted to announce that a world-first centre for people impacted by rare dementias is to be named in honour of visionary philanthropists Hilary and Galen Weston. bit.ly/3WeZZuB

Huge congratulations to Hani Marcus on his well-deserved promotion to Professor of Neurosurgery! A trustee of The National Brain Appeal, Hani’s pioneering work in robotic brain surgery continues to inspire and we’re proud to have supported it through our Innovation Fund.

@hani_marcus @TEQ_Neurosurg Congratulations Hani! Well deserved 👏

It’s a real honour to be promoted to full Professor, and I’m deeply grateful to the many mentors, colleagues, and students who’ve made this possible. I feel especially fortunate, within the @TEQ_Neurosurg group, to work at the interface of surgery, neurology, and engineering – and to collaborate with brilliant teams across the @QSNeurosurgery, the UCL Queen Square Institute of Neurology, the UCL Hawkes institute, and now our robotics spin-out, Panda Surgical. Translating technologies from lab to operating theatre has been a real team effort, and the achievement is as much theirs as it is mine.

We’ve been in Spain with @actiu & @castfurnitureuk shaping the future Rare Dementia Support Centre — selecting sustainable, dementia-friendly furniture with lived experience at the heart. Opening 2026. 🌿🪑

@jessrhobson Thank you so much, Jess – we’re thrilled to have you on #TeamBrainAppeal 🧠💙 Your support helps us drive forward breakthroughs in neurological treatment, care and research. We’ll be cheering you on every step of the way! 🏃‍♀️👏

Pleased to be running the next London Marathon for @BrainAppeal 🔬🏃‍♂️ The charity helps fund life-changing treatment and research for people affected by neurological conditions. If you’re able to support, here’s my just giving page 🧠💚 justgiving.com/page/jesshobson

In memory of my sister Margaret, we launched a Glioblastoma drug trial. Now, Margaret’s Trial is open on the NHS - and offering real hope. Ben, diagnosed with a Glioblastoma in 2022, saw his tumour vanish. His story helped make this happen. Watch here:

We’ve been shortlisted for a @ThirdSector Award! Our partnership with @BrainAppeal has been recognised in the Charity Partnership of the Year category for our work in creating the world’s first Rare Dementia Support Centre. Thank you to all our funders, partners and supporters!

Well done to our amazing centre for Neuromuscular Diseases team- all made it despite the heat! Thank you everyone for being a really a great research and clinical team! Not too late to sponsor!! justgiving.com/page/the-natio… @uclh @UCLBrainScience @UCLIoN @BrainAppeal

This week, our team & RDS members were invited to Castalla, Spain, to collaborate with @actiu and @castfurnitureuk on designing the future Rare Dementia Support Centre. Together, we’re exploring how thoughtfully designed environments can support people living with rare dementia.