ICPCN
7.8K posts

ICPCN
@ICPCN
The ICPCN is the only global membership network working for the right of children with life-limiting and life-threatening conditions to receive palliative care.
Worldwide Katılım Temmuz 2010
400 Takip Edilen3.9K Takipçiler

📍 Our Chief Executive @julia_downing is in Prague this week attending the meeting of the EAPC Children’s & Young People’s Reference Group Steering Committee, ahead of the EAPC Congress 2026 that starts tomorrow. 💚🌍
#EAPC2026 #EAPC #CPC #Prague #Collaboration #Advocacy

English

On #InternationalNursesDay2026, we honour the incredible nurses who make a difference every day in CPC. 💚🌍
Our Education Manager — and nurse — Alex Daniels reflects on the vital role nurses play as the unsung heroes of CPC.
Your impact is immeasurable.
#ICPCN
English

📢 Happening next week! Join us for our May Webinar: ‘Extending our Impact: The Power of Research in Children’s Palliative Care’.
🗓 Thursday 21 May 2026
⏰ 4:00pm UTC
Register here: bit.ly/ICPCNMayWebinar
#Webinar #ICPCN #Research #ChildrensPalliativeCare #CPCResearch
ICPCN@ICPCN
📢 Join us for our May Webinar! 'Extending our Impact: The Power of Research in Children’s Palliative Care'. 🗓 Thursday 21 May 2026 ⏰ 4:00pm UTC Register here: bit.ly/ICPCNMayWebinar #Webinar #MayWebinar #ICPCN #Research #ChildrensPalliativeCare #CPCResearch
English

Today our Chief Executive @julia_downing has been presenting on 'Leadership and Health Policy in Oncology Nursing' for the 2nd International Turkish Oncology Nursing Conference.
More about the conference can be found here: ohdkongre.org/en
#ICPCN #CHildrensPalliativeCare

English

Proud to share a newly published paper highlighting the need to strengthen CPC in Ghana💚
@ICPCN & @WChildCancer lead the #ChilPalCareGhana programme supporting the development of CPC across the country.
Read more here: bit.ly/4d5eeM1
#ICPCN #ChildrensPalliativeCare

English

Today @julia_downing caught up with our Ambassador @WIA_Charlie! Always a pleasure to connect!
Thank you, Charlie, for your continued support and commitment to advancing CPC around the world.💚
#ICPCN #ChildrensPalliativeCare #GlobalHealth #MakingADifference

English

We’re on Bluesky! 🎉
We’re excited to be growing our social media presence and joining a new space to connect with our community.
We're still active here on X too —but if you’re on Bluesky, then come say hello!
Find us here 👇
bsky.app/profile/icpcn.…
#ICPCN #CPC

English

💚A mother’s love, strength, and courage in the face of profound grief.
Candelaria’s story shares a powerful perspective on paediatric palliative care and why compassionate support for children and families matters.
Read more:
👉 icpcn.org/news/candelari…
#CPC #ICPCN

English

One of our trustees, @EmilyHarrop9, is recovering from a benign brain tumour and has already completed 500+ miles for #MilesForMillions.
It’s not about the distance — it’s about taking part. Every mile counts.
Join the movement 👇
miles.icpcn.org #CPC #ICPCN

English

📢 Join us for our May Webinar! 'Extending our Impact: The Power of Research in Children’s Palliative Care'.
🗓 Thursday 21 May 2026
⏰ 4:00pm UTC
Register here: bit.ly/ICPCNMayWebinar
#Webinar #MayWebinar #ICPCN #Research #ChildrensPalliativeCare #CPCResearch

English

Sharing reflections of the blended course in PPC for the Eastern Mediterranean Region.
The reflections highlight the delivery of the programme & its impact in strengthening paediatric palliative care training across the region. @StJude @APCAssociation
🌍 bit.ly/4sFlMJV
English

🌍 Miles for Millions in action - going the distance 💚
Ambassador Charlie Langhorne @WIA_Charlie is marking his 60th birthday by taking on Ironman Wales, raising funds for ICPCN & Martlets Hospice.
👉 icpcn.org/get-involved/m…
👉 givewheel.com/fundraising/12…
#MilesForMillions #ICPCN

English

🌍 Introducing Miles for Millions from ICPCN!
🚶♀️ Walk, run or cycle—every mile helps raise funds & awareness.
📱 Join the global movement and download the app: icpcn.org/get-involved/m…
#MilesForMillions #ChildrensPalliativeCare #ICPCN #GoTheDistance
English

📣 Our webinar is this Thursday! 'From Principles to Practice: Ethical Decision-Making in Children’s Palliative Care'
🗓 Thursday 16th April
🕐 1:00 PM (UK time)
📌 Register here: bit.ly/41bjxma
See you there!
#ChildrensPalliativeCare #ICPCN
English

🌟A reminder about the upcoming Advanced Paediatric Pain & Palliative Care Workshop (EPEC Paediatrics Europe), taking place 17–20 May 2026 in Prague.
This intensive programme offers healthcare professionals the chance to build practical skills in paediatric palliative care, with teaching from leading international experts—including our Chief Executive, Prof @julia_downing.
Open to a wide multidisciplinary audience, this course is also a key step for those interested in progressing to advanced EPEC training.
⏳ Registration closes 16 May 2026 (or earlier if full)
Find out more and register:
nrv.org/en/epec-pediat…

English

On #WorldHealthDay, established by @who, ICPCN highlights three studies in The Lancet that strengthen the case for children’s palliative care equity.
How many children are suffering? A study co-led by ICPCN Chief Executive Prof Julia Downing estimates over 10 million children each year experience serious health-related suffering, 96% in low- and middle-income countries. 👉 sciencedirect.com/science/articl…
Can they access the medicines they need? A Review and a Health Policy paper show essential controlled medicines remain out of reach for most children in LMICs, due to regulatory, service, and sociocultural barriers.
👉 Review: sciencedirect.com/science/articl…
👉 Health Policy: sciencedirect.com/science/articl…
This evidence shows the suffering of millions of children is not inevitable — inequitable systems can and must change. Today, on a day dedicated to standing with science, ICPCN calls on the global community to act so every child can access the care they need.
#StandWithScience #WorldHealthDay #ChildrensPalliativeCare #HealthEquity #PalliativeCare #LancetChild

English

📣 Call for Abstracts: 1st International Online Conference on Children’s Health (IOCCH 2026) 🗣️
The fully virtual IOCCH 2026 will take place 17–19 November 2025, CET, organized by the MDPI journal Children.
This is your chance to share your latest research, connect with global experts, and explore the future of paediatric care. Sessions cover:
🔹 Mental Health
🔹 Neonatology
🔹 Neurology, Neurodevelopmental & Metabolic Disorders
🔹 Orthopaedics & Sports Medicine
🔹 Dentistry & Oral Medicine
📌 Abstract submission deadline: 17 July 2026
🏆 Awards: Best Presentation & Best Poster (5 winners, CHF 200 each + certificate)
🔗 Submit your abstract: bit.ly/4cixzsp
🔗 Register for the conference: bit.ly/4mdF33l
#Pediatrics #ChildrensHealth #IOCCH2026

English

ICPCN recently attended ALCP 2026, bringing together a global community dedicated to children’s palliative care. 🌍
In “Connecting, Learning, and Becoming the Change”, Gabriela García-Durán, Hazel Gutiérrez, and Alex Daniels reflect on the event, highlighting how shared knowledge, collaboration, and lived experience are driving positive change for children and families worldwide.
📖 Read the full roundup:
English: bit.ly/4ciDPjR
Spanish: bit.ly/4sbyrEb
#ALCP2026 #ChildrensPalliativeCare #GlobalCommunity #Learning #ICPCN

English
