CanPKU+

🎄 Offrez le cadeau du soutien ! Renouvelez votre adhésion CanPKU+ pour 25 $ et aidez familles, événements et plaidoyer. PayPal : canpku.org/index.cfm?fuse… Zeffy : zeffy.com/en-CA/ticketin… 💙 #CanPCU #CadeauDesFêtes

🎄 Give the gift of support! Renew your CanPKU+ membership for $25 & help families, events & advocacy. PayPal: canpku.org/index.cfm?fuse… Zeffy: zeffy.com/en-CA/ticketin… 💙 #CanPKU #HolidayGiving

📖 Join us virtually for "Storytime" at Building Bridges: Survival Gene Stories – A Positive Spin on 'Rare' 🗓️ Sat, Aug 23, 2025 🕰️ 11:59 NDT | 11:30 ADT | 10:30 EDT | 9:30 CDT | 8:30 MDT | 7:30 PDT 🔗 Register: us06web.zoom.us/meeting/regist… #Rare #PKU #SurvivalGenes

From head to toe, we want to know! 🧠💬🦶 Whether you're registering for the first time or are already registered, it is critical that you complete your Head to Toe Survey! Join us in expanding this critical research ➡️ homocystinuria.rare-x.org @RARE_X_

🩸Today is World Blood Donor Day 🩸 Thank you to every person who rolls up their sleeve to donate 💪 One donation can make a life-changing difference. 🫶 Today, we honour you. #ThankYouDonors #WorldBloodDonorDay #GiveBlood #IMDsupport #PKU #MSUD #HCU #UCD #DonorsSaveLives

🩸 World Blood Donor Day is coming up on June 14! Book your blood donation appointment today and help save lives. Every drop counts. 💉 📍Find your nearest clinic and plan ahead! blood.ca #WorldBloodDonorDay #GiveBloodSaveLives #BeAHero #PKU #MSUD #HCU #UCD

#BuildingBridges2025 - Calgary Aug 21-24 Buy before early bird closes Join us for connection learning, and community—experts, families, and advocates from across the rare metabolic disorder world. Register now and save: canpku.org/buildingbridge… #RareDisease #PKU #MSUD #HCU #UCD

#BuildingBridges2025 - Calgary Aug 21-24 Early Bird ends June 1st! Join us for connection, learning, and community—experts, families, and advocates from across the rare metabolic disorder world. Register now and save: canpku.org/buildingbridge… #RareDisease #PKU #MSUD #HCU #UCD

🌱🧠 Grow the knowledge- Develop the future🧠 🌱 Data has shown that almost half of the #homocystinurias community experiences developmental symptoms, much like our #April #HCUHero Andreana 🧠🩵 Join us in expanding this critical #research ➡️ loom.ly/R_sEbwg @RARE_X_

🎙️ HC&U: A Homocystinuria Podcast episode dropping 04/24! Ben welcomes our #AprilHCUHero Andreana to the table! ➡️Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to loom.ly/Yu0NyQs RARE - X #podcast #homocystinuria #CobalaminG

🧡April is Urea Cycle Disorder Awareness Month🧡 Join us as we spread awareness and share important information with families all month! Stay tuned for more to come. Would you like to help? share the image below to help us raise awareness about urea cycle disorders.

🌱🧠Help us Grow and Develop Our Knowledge! 🌱🧠 Your participation can make a difference in shaping future research and treatments for the #Homocystinurias. Join us in expanding this critical research ➡️ loom.ly/R_sEbwg @RARE_X_ #RareDisease #DataForChange

🎙️New HC&U: A Homocystinuria Podcast episode OUT NOW! Ben welcomes Trace and Jessie, mother of our March #HCUhero, to the table! ➡️Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to hcunetworkamerica.org/hcu-podcast/ @RARE_X_

🧠 Your Brain Tells a Story—And Now, We Have More Pieces of the Puzzle. 📖 We’re gaining a deeper understanding of how #homocystinuria affects the brain and nervous system. Join us in expanding this critical research ➡️ homocystinuria.rare-x.org RARE - X

🎙️New HC&U: A Homocystinuria Podcast episode dropping 03/27! Ben welcomes Trace and Jessie, mother of our March #HCUhero, to the table! ➡️Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to hcunetworkamerica.org/hcu-podcast/ @RARE_X_

Your Brain Tells a Story Like our #HCUHero Trace, many individuals with any of the #homocystinurias can experience neurological and nervous system symptoms. If you or a loved one has experienced these head to ➡️ homocystinuria.rare-x.org to take the Brain and Nervous System Survey

Be sure to register for the next cafe. A full list is available on our home page canpku.org Nous recherchons un barista francophone pour animer des événements. Postulez à info@canpku.org. #maladiesrare #phénylcétonurie #passirare #CombatPourLesRares #RareAuCanada

Do you have PKU? Live in the United States or Canada Are 18 years of age or older and diagnosed with PKU? Use protein supplements/medical foods and/or pharmaceuticals to manage PKU? Join this research project! Scan the QR for more information.

Are you a parent or guardian of someone 12-17 with PKU? Live in the USA or Canada? Use protein supplements/medical foods and/or pharmaceuticals to manage PKU? Join this research project! Scan the QR for more information.

May 8, 2025 -TruePKU is an “externally-led patient-focused drug development meeting,” collaboration between CanPKU+ and the NPKUA, organizations world-wide. Learn more about TruePKU stay informed @ npkua.org/truepku. #truePKU, #PFDD, #patientfocused, #PKU, #phenylketonuria