Cavernous Malformation Canada

Join us for an educational event featuring expert speakers, and meaningful moments of connection with others impacted by #cavernousmalformation. Register at 2026 Conference | Cavernous Malformation Canada cavernousmalformation.ca

Taylor bravely voices her unique experience of being diagnosed with a sporadic #cavernousmalformation as she awaited the birth of her first child. To read her inspiring story of hope, faith and remembering to see the good tr.ee/199cFy9jqh #patientvoice #cavernoma

Today's #wednesdaywisdom Je fais toujours des choses que je ne sais pas faire. C'est comme ça que j'arrive à les faire. ~Pablo Picasso #cavernousmalformation #cavernoma #resilience #nevergiveup #picasso #raredisease

Simona's story is courageously told by her husband "It is my hope that by sharing Simona's story I can spread awareness about cavernous malformation and rare disease" To learn more Simona's Story | Cavernous Malformation Canada #RareDiseaseDay #cavernousmalformation

Kailley courageously shares her story of #spinalCM. As we lead up to #rarediseaseday, we think of patients that have a rare disease experience, like Kailley does. You are not alone. Kailley's Story | Cavernous Malformation Canada #cavernousmalformation #cavernoma

De la souffrance naissent les âmes les plus fortes ; les caractères les plus massifs sont marqués de cicatrices. ~Khalil Gibran #wednesdaywisdom #cavernousmalformation #cavernoma #strength

#rarediseaseday is a globally coordinated movement dedicated to rare diseases. #Cavernousmalformation is described as a rare disease by the National Organization for Rare Disorders. Access rare disease day materials rarediseaseday.org #cavernousmalformation #cavernoma

Today's #wednesdaywisdom Ce matin, au réveil, j'ai souri : 24 heures toutes neuves s'offrent à moi. Je fais le vœu de vivre cette journée en pleine conscience, avec un regard empli d'amour, de gratitude et de compassion. ~Thich Nhat Hanh #cavernousmalformation #cavernoma

Patients, with their real life experiences are vital contributors to scientific discovery. Take our Registry Enhancement Project survey today, at the link below forms.office.com/Pages/Response… #cavernousmalformation #cavernoma

Open to patients and family members of patients 18 years of age or older. Your peer support facilitator takes the discussion into relevant topics as you share, listen or feel a bit less alone in your journey. Register at events.teams.microsoft.com/.../a2c4ccc7-7…... #cavernousmalformation

Today's #wednesdaywisdom on The International Day of Persons with Disabilities. Aujourd'hui, Journée internationale des personnes handicapées. "Peu importe ce que vous voyez, je suis entier, j'ai de la valeur, je suis aimé." #cavernousmalformation #cavernoma #iamwhole

A #cavernousmalformation may be found in the spinal cord. This is referred to as Spinal CM. For more information about spinal CM, access the information on our website at cavernousmalformation.ca/spinal-cms #cavernousmalformation #spinalcavernoma #spinalcavernousmalformation

8 days till Giving Tuesday! Gratitude isn't only a word, it's a feeling we bring to our work towards a cure and treatment options for #cavernousmalformation, every single day. To support our Mission, go to fnd.us/cavernousmalfo… #givingtuesday #cavernoma #generosity

"Les nuages ​​flottent dans ma vie, non plus pour apporter la pluie ou annoncer l'orage, mais pour colorer mon ciel au coucher du soleil" #wednesdaywisdom #cavernoma #supportnetwork

Register for our Group Support Session on November 26, with a focus on Spinal CM! Open to patients and families over 18. cavernousmalformation.ca/events/spinal-… #cavernoma #cavernousmalformation

It's #WorldStrokeDay Every stroke is different in how it impacts the brain. The effects and their impact to the life of a patient can only be evaluated in a medical setting with the use of imaging. When in doubt, get checked out! Call 911 or get to an emergency department! #

Your support means we can impact the lives of cavernous malformation patients in many incredible ways. See how at the link to our fundraising platform. Thank you! #cavernoma #cavernousmalformation fnd.us/cavernousmalfo…

Je ne pense pas à toute la misère, mais à la beauté qui demeure ~Anne Frank #wednesdaywisdom #cavernousmalformation

The SickKids Paediatric Neurovascular Program and the Garry Hurvitz Centre for Brain & Mental Health @SickKidsGHCBMH invite patients, families, and caregivers to join us for Neurovascular Family Education Day 2025. We look forward to seeing you there!

We proudly support #cavernousmalformation research at The Derry Lab, led by Dr. Brent Derry. Check out some of their published studies on our website CM Research | Cavernous Malformation Canada. Special thanks to the entire Derry Lab team for their dedication and perseverance!