coldethyl

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coldethyl

coldethyl

@coldethyl2

glued to a seat in Caffe Nero Katılım Mayıs 2012
325 Takip Edilen591 Takipçiler
coldethyl
coldethyl@coldethyl2·
@MaureenKenny1 Everything crossed for the scan and enjoy your Spanish break x
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Maureen Kenny
Maureen Kenny@MaureenKenny1·
“The only thing worse than being on chemo is not being on it when you should be.” The past weeks have included some life-affirming events but they have also been a huge challenge. #COVID19 #resilience #MBC My latest blog post: bit.ly/38ebkoW
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Suzie Edge
Suzie Edge@suzieedge·
I have worked so hard in Jan, writing, podcasting, content creation. Now I have been struck down with pneumonia and if feels like I’ve hit a giant brick wall. *climbs under heated blanket and sobs
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coldethyl
coldethyl@coldethyl2·
@abcdiagnosis It’s like one of Dante’s circles of hell - thankfully pharmacists at my surgery are great - it’s the GP side that’s pants
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Jo Taylor BEM
Jo Taylor BEM@abcdiagnosis·
I don’t get this 👇 GP surgery when you ring up you are triaged on the phone with “email the issue” I email & ask for the pharmacist to give me a call to be told... “Ring the surgery to make an appointment” 🤷🏼‍♀️🤦🏼‍♀️
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coldethyl
coldethyl@coldethyl2·
@MaureenKenny1 Fingers crossed for a long and successful treatment with erubilin.
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Maureen Kenny
Maureen Kenny@MaureenKenny1·
There’s been progression of my secondary breast cancer. Paclitaxel didn’t work for long. And so we move on, to eribulin. Let’s hope it does a better job. In my mind I am swearing very, very loudly. More in my latest blog post: bit.ly/3E0MUdJ
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coldethyl
coldethyl@coldethyl2·
@FeedleFi Sending a hug - I only lasted a few days on them as the side effects worse than the anxiety - my mum took a long time to come off them to minimise the withdrawal effects - hope it eases soon x
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Fiona Holland
Fiona Holland@FeedleFi·
Sometimes it’s easy to shout these things into cyberspace. I’m struggling. Coming off these antidepressants is horrific. I’m lightheaded, still irritable (cuffed Pukey round the head earlier & am racked by shame & guilt), vivid vivid dreams, a sense of detatchment & other (cont)
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coldethyl
coldethyl@coldethyl2·
@MaureenKenny1 I restarted iv chemo end of August too with taxol in the mix - it’s tougher than I remember - hope things aren’t too bad with you as taxol isn’t my favourite drug.
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coldethyl
coldethyl@coldethyl2·
@lori_burwell Vile things - currently on short dose each chemo and the insomnia , heady feelings and raised blood sugar awful - thinking of you x
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coldethyl
coldethyl@coldethyl2·
@FeedleFi Inevitable consequence of underfunded and unjoined up health service - obvious some would get post viral issues ( me for one ) and equally obv those with cancer have ongoing complex needs - both unmet and everything becomes patient’s responsibility in absence of care
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Fiona Holland
Fiona Holland@FeedleFi·
cut & diverted elsewhere. Look Covid has been a clusterfuck, no 2 ways about it, but living with cancer is pretty bloody awful. I just don’t understand how we’ve essentially lived with a cancer pandemic for generations & it’s just accepted for what it is. We need better treatment
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Fiona Holland
Fiona Holland@FeedleFi·
I know this is from the Daily Fail but overlooking that, can I just draw your attention to the fact that this is the way most cancer patients live & we don’t get these sorts of headlines. We don’t get a daily death count. We have had treatments & diagnosis delayed, funding (cont)
Fiona Holland tweet media
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coldethyl
coldethyl@coldethyl2·
@lori_burwell Thinking of you - hope you can be allowed time to process and that there’s a possible plan in offing xx
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Mindy
Mindy@MinThomp·
PET results are already in... STABLE. No significant changes!!
GIF
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coldethyl
coldethyl@coldethyl2·
@bccww That’s absolutely fine. Glad they resonated ( well not glad but you know what I mean ) x
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coldethyl
coldethyl@coldethyl2·
@MaureenKenny1 There was a recent discussion on the ovarian c forum I use. The majority felt very much like yourself. Several contacted Macmillan and got brushed off. It’s a case of good intention not being enough sometimes when the intended beneficiaries find it trivialises their experience.
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Maureen Kenny
Maureen Kenny@MaureenKenny1·
I try not to get upset by it but I detest #bravetheshave. It's a good #cancer #charity fundraiser and the people who do it have the best of intentions. But it's so false and what I really want to say to them is "now you need to lose your eyebrows, nose hair, pubic hair... 1/2
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coldethyl
coldethyl@coldethyl2·
@JJ_locked Fingers crossed the biopsies possible and a plan gets put in place x
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coldethyl
coldethyl@coldethyl2·
@lori_burwell Six years is a huge milestone - so glad that you have been given that extra time and the joys it has brought even in the midst of the sadness around cancer x
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Angela oliver
Angela oliver@Beatthemedian·
Angela is gone. At home comfortable. How lucky I am to have been loved by her. She was gorgeous compassionate tenacious and formidable. But not fearless: she was 47 and not ready to go. My god; what a fight! Death is missing an arm and a leg. Rest easy sweetheart. And thank you X
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Angela oliver
Angela oliver@Beatthemedian·
So sorry to bring the terrible news that Angela is now on end of life care. Thank you all for sharing with this incredible woman. She beat the median. Her husband David.
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coldethyl
coldethyl@coldethyl2·
@thesaltiestcow Big hug- hope you can find your equilibrium again soon - bastard cancer x
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The Salty Cow
The Salty Cow@thesaltiestcow·
1/Since I had the lung cancer last year my cancer ptsd has ramped up to struggling levels, today's scan has really fucked me up mentally in a way they never did before. Guess now I know it can happen the fear is heightened, well the fear wasn't there before
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coldethyl
coldethyl@coldethyl2·
@thesaltiestcow Soul affirming but heartbreaking that we are destroying so many of the companions that share our worldx
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