Connie van Zanten

At @PublicDigitalHQ we're working with the @NHS_RHO to improve the care that people with #sicklecelldisease receive when they are experiencing an acute painful episode. This post explains what we're doing and why: public.digital/projects/bette… (1/3)

If you need help finding time to write, come and join Blog Club! Next session is at 10am on Friday 30th June. Sign up here forms.gle/cnhJpToVnAQn6v…

I’ve been an avid reader of @kateldn’s blog posts for years, and now I have the absolute pleasure of working with her! This book is quite literally essential reading for anyone who cares about delivering good services. Buy it now, you won’t regret it!

🧵 Last week @nhsproviders @publicdigitalhq published a leader’s guide on “Getting the most out of your EPR”. I was struck by the many excellent quotes from experts it contains, and thought they’d make a useful thread.🧵 Authors tagged where possible. (1/20)

Design researcher Mary Adeturinmo who I've had the pleasure of meeting & working with as part of the sickle cell discovery work @PublicDigitalHQ @NHS_RHO is looking to speak to people about sickle cell. Whether you know lots or barely anything, she'd love to talk to you!

Great session, looking forward to making more progress in 2023, ensuring all people with Sickle Cell receive the services they should be getting, which sadly still not the case, both in terms of compassion and receiving pain relief within 30 mins of arrive @ A&E according to NICE

🎶 Yeah I’d love to tell you all my problems, We’re not in New York City we’re in…. 🎶 @convanzan @LouiseStopford

@NHS_RHO @PublicDigitalHQ @JohnJamesOBE @DrHNaqvi @ZainabGarbaSani Final report anticipated Jan 2023. Thanks all for support to date for this important work.

Sickle cell patients, healthcare professionals, and more. We need your feedback! Any/all feedback on our draft @NHS_RHO @PublicDigitalHQ digital discovery sickle cell report most welcome. docs.google.com/document/d/1KH… cc @JohnJamesOBE @DrHNaqvi @ZainabGarbaSani #SickleCell

It has been an honour to represent @PublicDigitalHQ and to partner with @drcjar and the @NHS_RHO on this absolutely vital work. Thank you to everyone who has followed along, supported us and worked with us. Link to the report: docs.google.com/document/d/1KH… END

➡️No-One's Listening. This report, jointly published by the APPG on Sickle Cell and Thalassaemia and the @SickleCellUK is the catalyst for and the cornerstone of this discovery. It's insight has been invaluable; it is essential reading sicklecellsociety.org/no-ones-listen…

Here are our last @NHS_RHO #sicklecell discovery weeknotes for 2022. In them: ➡️We share our draft report, which we welcome comments on by 15/12. You can comment directly on the doc. This your last opportunity to inform this discovery, we'd love to hear from you #workingintheopen

Want to hear about the work Professor Telfer and others are conducting with stem cells via zoom? Contact Hazel, the Barts HCC Sickle Cell Rep for more info at the email on the poster!

@worddoodles_EP @drcjar @MattStibbs @e17chrisfleming @AntsBell Thanks Emma!

Do I know anyone who knows anyone who works as an ambulance paramedic? Would love to chat to someone to get a first reaction to an idea related to sickle cell care cc @drcjar @MattStibbs @e17chrisfleming

Last week’s sickle cell discovery weeknotes @NHS_RHO @drcjar @PublicDigitalHQ Read on to find out more about the most multidisciplinary multidisciplinary workshop I’ve ever been in #sicklecell #discovery #prioritisation

This week, in our #weeknotes the sickle cell discovery team write about: ➡️Prioritisation workshop ➡️in depth analysis of research carried out ➡️continuing technology landscape review ➡️building reading list public.digital/projects/bette… @PublicDigitalHQ