Cure GM1 Foundation

🎉 Turn your special day into something life-changing 💙 ✨ It’s simple:
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Invite friends and family to give Every dollar brings us closer to a therapy that could change lives. #curegm1 #charity #give #birthdays #hope

Hope is real, but it needs fuel. Research like this depends on people like us showing up, spreading the word, and supporting the mission. Learn more and contribute: curegm1.org/ert-project #curegm1 #genetics #medicine #charity #give

We recognize the often overlooked siblings of kids living with GM1! They show remarkable resilience & strength, yet often go unseen. Your experiences & voices matter too! We see you. #curegm1 #raredisease #community

For families navigating a rare disease diagnosis, understanding is key. Our quick guide breaks down complex concepts into clear, supportive language. Read now: tinyurl.com/2uasst83 #cureGM1 #Raredisease #Awareness

GM1 gangliosidosis is a rare genetic disorder that typically requires 2 affected genes, inherited from both parents, to develop. Learn more about this condition: curegm1.org/about-gm1 #curegm1 #raredisease #awareness

The April 2026 Cure GM1 Catalyst is out. Don't miss important highlights and progress in research, advocacy, and community efforts to advance treatments. Engage, be informed, and share: tinyurl.com/54navx8b #curegm1 #raredisease #charity #hope #community

Progress shouldn’t be paused because of a lack of resources. Every breakthrough, every step forward, depends on support from people who believe this matters. Help make a difference today. GIVE: curegm1.org/donate #curegm1 #science #research #advocacy #charity

Today we celebrate hope & renewal with our #CureGM1 community! Your resilience & love inspire us daily. Wishing you peace, joy & renewed hope for brighter days ahead this Easter. #RareDisease #Hope #Community

Navigating GM1 requires more than hope - a plan is key! Our roadmap: Care. Protect. Grow. A must-read for families navigating rare disease and special needs: tinyurl.com/4xw59p2m #curegm1 #raredisease #financialplanning

Wishing you a joyful and meaningful Passover. May this season of freedom bring renewal, hope, and togetherness to your home. May the world find a path towards peace. #curegm1 #raredisease #passover #hope

Pioneering gene therapy study (NCT07479953) delivers AAV9 before birth to prevent neurological damage. Huge thanks to researchers, clinicians & advocates making this bold step a reality! 📚 bit.ly/2Ww3qRz #curegm1 #raredisease #genetherapy

Heavy days can be crushing. For parents/caregivers of kids with high-support needs, grief, love & exhaustion collide in a weight that's often carried quietly. Read more: tinyurl.com/5n96namn #curegm1 #caregivers #raredisease

Time to plan for GM1 Day in May! Whether fundraising, sharing your story, hosting an event, or spreading awareness, every action brings us closer to a cure. Show your support & grab official swag at curegm1.org/gm1-store #curegm1 #raredisease

Every child deserves a future. GM1 is a rare disease taking lives of babies & children too soon. Support CureGM1's research efforts & bring hope to families. Donate: curegm1.org/donate #curegm1 #raredisease #charity #medicine

Enzyme replacement therapt (ERT) is one of the most direct and obvious ways to treat GM1. If you are in a position to donate or help, please reach out. Your help truly can make a difference. LEARN MORE: curegm1.org/ert-project #curegm1 #raredisease #charity #give

💜 Purple Day for Epilepsy Awareness! 💜 We support those living with epilepsy & GM1, where seizures are a major part of the disease. Let's raise awareness & push for better treatments & understanding. #curegm1 #raredisease #epilepsy

Ultra-rare disease GM1 gangliosidosis has inaccurately low global numbers due to underdiagnosis & limited data. In parts of Brazil, incidence is actually 1 in 17,000, highlighting founder effects. #curegm1 #raredisease #genetics

"Highly trained service dogs empower kids with confidence, independence & comfort in daily life. Learn more about the transformative power of canine companions: tinyurl.com/482hb6tw #curegm1 #raredisease #specialneeds"

"We remember sweet Batul, whose light shone bright despite brief time with us. Taken by GM1, her love lives on in our hearts. Holding her family close in thought & prayer." #curegm1 #sweetangels #childloss #neverforgotten

Happy National Puppy Day! Today, we’re remembering the special service dogs at our in-person annual conference last year. Register early for our virtual conference: curegm1.org/conference #curegm1 #raredisease #community #hope #charity