Data for Health

#DigitalHealth wearables coming soon. Exciting stuff! owl.li/mjfzZ

Kelly - @SeanKellyMEP - aims to organise seminar on range of the issues around data protection #d4h13

Kelly: increasing use of big data brings big issues of a 'data-driven era' for citizens' concerns. #d4h13

Next up is Sean Kelly, Member of European Parliament (MEP) speaking at dataforhealth.imia.info Has active interest in privacy, ethics #d4h13

Panel discussion on issues of the 'value for government' of health data re/use; moderated by Antoine Geissbuhler #d4h13

Wilson: we live in a connected world; need to collect and organise data for health, and understand what happens with patients now #d4h13

Wilson: in EU, healthcare governed by subsidiarity, decisions made locally - but still some EU policies governing issues #d4h13

Wilson: most people have close emotional attachments to healthcare systems of their countries; can be alienating when move places #d4h13

First talk of today from Petra Wilson on 'tension between harmonisation and localisation" in relation to health data use #d4h13

RT @matic_meglic: @DipakKalra at #d4h13 will big data computing do the thinking instead of us?

Wilson: need both harmonisation and localisation - they are not opposites/extremes - but standards and interoperability needed #d4h13

Can 'trust' be broken down into trusted processes, trusted people, trusted systems etc in relation to use, storage of health data? #d4h13

Day 2 of dataforhealth.imia.info due to start imminently in Brussels; building on great discussions etc yesterday #d4h13

Wilson: BYOD also means 'bring your own data'?? - people bringing own data to healthcare settings is one of the new drivers #d4h13

Presentations on regional (Catalunya), national (France) and regional (EU) levels if issues; common and different problems #d4h13

Zilgalvis: EC working on green paper on use of data from mobile apps/sources - addressing wide range of issues and uses #d4h13

RT @IMIAtweets: Dzenowagis and Labkoff leading round-up of issues arising from the Summit, and what might be some of next steps #d4h13

Should contextual data, metadata be captured to help understand context of health and other data that are collected for research? #d4h13

Can more open peer review processes get rid of the bias in publication towards 'positive' results, and not reporting the negative? #d4h13

"If there is a spirit to #bigdata it is that they should be open and shared." PDegoulet @IMIAtweets #d4h13