Chris de Jong

Tickets for the TREAT-NMD® Conference are selling fast! Secure your spot now and join the global neuromuscular community. 👉 tickettailor.com/events/treatnm… #TREATNMD #Conference #Neuromuscular #RareDisease

🚨 Spots open for April #TACTReview! 🚨 Help shape the future of neuromuscular treatments and apply to join our next review. 📩 Email: laura.robertson@treat-nmd.com 🔗 Details: treat-nmd.org/what-we-do/tac… #TreatNMD #NeuromuscularResearch #CallForApplicants

Save the Date! Join the DMD Early Diagnosis Virtual Masterclass on Dec 1, 2025, hosted by TREAT-NMD® & @ParentProjectMD . 📬 Sign up to our newsletter for updates & registration info: treat-nmd.org/connect-with-u…

Abstract submissions for TREAT-NMD® 2026 close on 18 November! Share your work, spark global conversations, and be part of the programme. Questions? Contact: education@treat-nmd.com #TREATNMD2026 #NeuromuscularResearch #AbstractSubmission

Excited to welcome Dr. Sharon Hesterlee from @MDAorg as a session chair at TREAT-NMD Conference 2026! She’ll lead a key session on Patient Involvement in Clinical Trials this Feb in Lisbon 🇵🇹 🔗 Register now: treat-nmd.org/conference/ #RareDisease #ClinicalTrials #Neuromuscular

Excited to welcome Prof. Francesco Muntoni as a session Chair and TREAT-NMD Conference 2026! He’ll share insights on gene therapy & translational research in neuromuscular disease this Feb in Lisbon 🔗 Register now: tickettailor.com/events/treatnm…

Yarm school 4th year play - Goodnight Mister Tom youtu.be/S8a5eZbjd-k?si…

🎭 Our talented Sixth Formers staged a fantastic run of performances! 🎭 Over three nights, our students brought two fantastic plays to life—Lower Sixth captivated with the tragedy Antigone, while Upper Sixth had audiences laughing with The Storm. #YarmSchool #EducatingForLife

This event is the latest of our regular ‘dementia friendly’ gatherings. It allows pupils – and all of us – to use music to connect people living with or affected by dementia whilst also connecting us with our wider Yarm community. Book places via: memento@yarmschool.org

Come along and be enveloped in pick-me-ups from teas and coffees and delicious luxury cakes to the restorative musical performances from our pupils and students. These concerts are relaxed and informal and are the perfect tonic to a busy day! thepaaonline.org/whats-on/conce…

📢 Call for Applicants: TACT Review in Athens Applications are now open for the next TREAT-NMD Advisory Committee for Therapeutics (TACT) review, taking place 2nd–4th May 2025 in Athens. This is a unique opportunity for researchers and companies developing therapies for rare neuromuscular diseases to gain expert feedback on: ✅ Trial Design ✅ Drug Formulation ✅ Safety & Bioavailability ✅ Regulatory Guidance ✅ Go-No-Go Milestones TACT’s confidential reviews provide strategic insights to optimise your drug development process. 📧 Apply now by contacting info@treat-nmd.com and move your therapy closer to patients. #RareDiseases #Neuromuscular #DrugDevelopment #ClinicalTrials #HealthcareInnovation #PatientCare #TACTReview #Therapeutics #MedicalResearch #GlobalHealth

I’m looking forward to it!

🎭Get your tickets now for 'Journey's End' taking place this week! Performed by a talented group of 5th Year pupils.🎭 📅Wednesday 20th, Thursday 21st and Friday 22nd November ⏲️7pm each night 📍Studio Theatre 🎟️Tickets: thepaaonline.org/whats-on/5th-y… or The Box Office

Be great to get a big crown for both matches! #TeamYarm @YarmSchool

📢 Registration Open: TREAT-NMD Myotonic Dystrophy Type 1 (DM1) Expert Masterclass Registrations are now open for our virtual DM1 Expert Masterclass on 16th January 2025, chaired by Nicholas Johnson and Benedikt Schoser. This event is designed for healthcare providers involved in diagnosing and managing DM1. Gain the latest insights on diagnostic pathways, standards of care, and emerging therapies, while engaging with experts, patients, and peers to enhance DM1 care. Register now to secure your place by filling out the registration form here > forms.monday.com/forms/f76daef4… #TREATNMD #DM1Masterclass #HealthcareEducation

It's Becker Muscular Dystrophy Awareness Week! (6th-12th October) This week, we shine a light on Becker muscular dystrophy (BMD), a rare genetic condition that causes a weakness in the muscles that progresses over time. Awareness weeks like this help raise understanding, but the need for support, education, and community continues year-round. At TREAT-NMD, we are committed to advancing the diagnosis, care, and treatment of BMD through ongoing efforts that inform, connect, and drive research forward. Read our latest blog to learn more about how we can build a more compassionate and supportive future for those affected by BMD: treat-nmd.org/becker-muscula… #BMDawareness #BeckerMD #BeckerAwarenessWeek #BeckerMuscularDystrophy #MuscularDystrophyAwareness #Inform #Connect #Advance #TogetherWeAreStronger

Join us at #WMS2024 this week! Our team is presenting posters and is ready to connect: 🔹 David Allison, CEO – poster 227P 📷 Matt Garrow, PMO Lead – poster 205P 📷Neil Bennett, Global Registries Manager – poster 193P If you're attending the conference, come and chat with us to learn more on how we are helping to inform, connect, and advance neuromuscular disease research. Can't make it? You can discover more about our work here > treat-nmd.org/what-we-do/ #WMS2024 #NeuromuscularDiseases #NMDs #NMDResearch #Inform #Connect #Advance

SPOILER ALERT! And the winners of the @YarmSchool house drama competition are … Aidan!! A popular decision (for all members of Aidan house at least!) Well done everyone! A great evening 😁

Today is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day! This day is dedicated to raising awareness of the rare neuromuscular diseases that affect individuals around the world. With over 30 different types of LGMD, increasing understanding is key to driving research, improving care, and supporting those living with the condition. At TREAT-NMD, we’re proud to stand with the global community to shine a light on LGMD and the ongoing efforts to advance diagnosis, treatment, and care. Join us in raising awareness by sharing resources and learning more about LGMD. Together, we can make a difference. #LGMDawareness #LimbGirdleMD #TREATNMD