ECTRIMS

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𝐃𝐨 𝐌𝐒 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 𝐥𝐚𝐛𝐞𝐥𝐬 𝐫𝐞𝐚𝐥𝐥𝐲 𝐫𝐞𝐟𝐥𝐞𝐜𝐭 𝐭𝐡𝐞 𝐥𝐢𝐯𝐞𝐝 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞 𝐨𝐟 𝐩𝐚𝐭𝐢𝐞𝐧𝐭𝐬? In this inaugural episode of a new ECTRIMS–MS Journal collaboration, a caregiver and a person living with MS debate whether disease course labels still make sense. They explore PIRA, patient voice, and the need for a new language in MS. 🎧 𝐋𝐢𝐬𝐭𝐞𝐧 𝐧𝐨𝐰: Spotify: bit.ly/4bSc2Xl Apple: apple.co/4uDgkcD Our website: bit.ly/4bj5fFY #MultipleSclerosis #ECTRIMSPodcast #MSJournal #PatientVoice

The March 2026 (Volume 32, Number 3) issue of the @MSJ_Research is out. 📖 𝗞𝗲𝘆 𝗵𝗶𝗴𝗵𝗹𝗶𝗴𝗵𝘁𝘀: • 𝗙𝘂𝘁𝘂𝗿𝗲 𝗣𝗲𝗿𝘀𝗽𝗲𝗰𝘁𝗶𝘃𝗲𝘀: Violence and multiple sclerosis: towards an evidence-informed call to action in neurology •𝗖𝗼𝗻𝘁𝗿𝗼𝘃𝗲𝗿𝘀𝗶𝗲𝘀 𝗶𝗻 𝗠𝗦: Patient voice: The label given to my MS disease course matters to me •𝗢𝗿𝗶𝗴𝗶𝗻𝗮𝗹 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵: Neurofilament light chain as a surrogate candidate for disease activity in multiple sclerosis (LUMINOUS) •𝗜𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝗻 𝗥𝗶𝘀𝗸 𝗔𝘀𝘀𝗼𝗰𝗶𝗮𝘁𝗲𝗱 𝘄𝗶𝘁𝗵 𝗧𝗵𝗲𝗿𝗮𝗽𝗶𝗲𝘀: Predictive factors for immunosuppression-associated severe and opportunistic infections in AQP4-IgG NMOSD •𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗠𝗼𝗱𝗶𝗳𝘆𝗶𝗻𝗴 𝗧𝗵𝗲𝗿𝗮𝗽𝘆: Long-term effectiveness and safety of satralizumab for NMOSD in a real-world clinical setting •𝗖𝗮𝘀𝗲 𝗥𝗲𝗽𝗼𝗿𝘁: Myelination of the retinal nerve fibre layer 𝗔𝗰𝗰𝗲𝘀𝘀 𝘁𝗵𝗲 𝗳𝘂𝗹𝗹 𝗶𝘀𝘀𝘂𝗲 𝗵𝗲𝗿𝗲 👉 bit.ly/40qaqhd 𝗧𝗵𝗶𝘀 𝘄𝗲𝗲𝗸, 𝘄𝗲 𝗱𝗶𝘃𝗲 𝗱𝗲𝗲𝗽𝗲𝗿 𝗶𝗻𝘁𝗼 𝘁𝗵𝗶𝘀 𝗶𝘀𝘀𝘂𝗲'𝘀 𝗰𝗼𝗻𝘁𝗿𝗼𝘃𝗲𝗿𝘀𝘆 — 𝘛𝘩𝘦 𝘭𝘢𝘣𝘦𝘭 𝘨𝘪𝘷𝘦𝘯 𝘵𝘰 𝘮𝘺 𝘔𝘚 𝘥𝘪𝘴𝘦𝘢𝘴𝘦 𝘤𝘰𝘶𝘳𝘴𝘦 𝘮𝘢𝘵𝘵𝘦𝘳𝘴 𝘵𝘰 𝘮𝘦 — one topic, two sides. You decide. 🎧 #MultipleSclerosis #MSResearch #MSJ #ECTRIMS #Neurology

🗓 One week to go! Early Bird registration, abstract submission, and hotel booking open on 24 March for #MSToronto2026! The 10th Joint ACTRIMS-ECTRIMS Meeting, 21–23 October 2026, Metro Toronto Convention Centre. This year's theme is"Unifying Multiple Sclerosis." • Pre-Day: 20 October 2026 • Joint Meeting: 21–23 October 2026 • Patient Community Day: 23 October 2026 Learn more 👉 mstoronto2026.org We look forward to welcoming colleagues from around the world to Toronto for this milestone meeting organised jointly with the Americas Committee for Treatment & Research in Multiple Sclerosis (@ACTRIMS) #ECTRIMS #ACTRIMS #MultipleSclerosis #MSResearch #Neurology #Toronto @mtcc_events

🎓 𝐅𝐑𝐄𝐄 𝐎𝐧𝐥𝐢𝐧𝐞 𝐂𝐨𝐮𝐫𝐬𝐞: 𝐌𝐒 𝐒𝐲𝐦𝐩𝐭𝐨𝐦𝐬 & 𝐃𝐢𝐚𝐠𝐧𝐨𝐬𝐢𝐬 For #MSAwarenessMonth, we’re proud to highlight our partner @MSIntFederation! 🧡 Learn about MS biology, diagnosis, and global barriers in this free course. 📅 1 May – 15 June 📝𝐑𝐞𝐠𝐢𝐬𝐭𝐞𝐫: bit.ly/43uYehx #MultipleSclerosis #ECTRIMS4me #WorldMSDay

🧠 𝗠𝗦 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗠𝗼𝗻𝘁𝗵 𝗦𝗽𝗼𝘁𝗹𝗶𝗴𝗵𝘁: 𝗕𝗲𝗲𝗪𝗲𝗹𝗹𝗪𝗶𝘁𝗵𝗠𝗦 Many living with #MultipleSclerosis experience invisible symptoms—fatigue, brain fog, or sensory changes—that can reshape everyday life. As part of #MSAwarenessMonth, we feature a guest blog from BeeWellWithMS from @AgneStraukiene, a Patient Community Day Supporting Partner. Their "Stranger Things in MS" podcast series blends patient stories with clinical insight to make complex neurological experiences more accessible. 📖 𝗕𝗹𝗼𝗴: bit.ly/4soPe71 🎧 𝗦𝗲𝗿𝗶𝗲𝘀: bit.ly/407vSr7 🌍 Highlighting our 𝟰𝟬+ 𝗦𝘂𝗽𝗽𝗼𝗿𝘁𝗶𝗻𝗴 𝗣𝗮𝗿𝘁𝗻𝗲𝗿𝘀 𝘁𝗵𝗿𝗼𝘂𝗴𝗵𝗼𝘂𝘁 𝗠𝗮𝗿𝗰𝗵. #MSAwarenessMonth #MultipleSclerosis #InvisibleSymptoms #MSCommunity #MSAwareness

📊 𝐈𝐧𝐬𝐢𝐝𝐞 𝐌𝐒 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬: 𝐇𝐨𝐰 𝐏𝐞𝐨𝐩𝐥𝐞 𝐰𝐢𝐭𝐡 𝐌𝐒 𝐇𝐞𝐥𝐩 𝐒𝐡𝐚𝐩𝐞 𝐑𝐞𝐚𝐥-𝐖𝐨𝐫𝐥𝐝 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 How do researchers understand what it’s really like to live with multiple sclerosis over time? One important answer is 𝐩𝐚𝐭𝐢𝐞𝐧𝐭 𝐫𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬. For #𝐌𝐒𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬𝐌𝐨𝐧𝐭𝐡, ECTRIMS is highlighting how people living with MS can contribute directly to research by sharing their experiences through these long-term data projects. In this feature article, Prof Rod Middleton (UK MS Register) and Prof Ruth Dobson (UK MS Pregnancy Register) explain: 🔹 𝐖𝐡𝐚𝐭 𝐩𝐚𝐭𝐢𝐞𝐧𝐭 𝐫𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬 𝐚𝐫𝐞 and how they collect real-world data over many years 🔹 𝐇𝐨𝐰 𝐭𝐡𝐞𝐲 𝐝𝐢𝐟𝐟𝐞𝐫 𝐟𝐫𝐨𝐦 𝐜𝐥𝐢𝐧𝐢𝐜𝐚𝐥 𝐭𝐫𝐢𝐚𝐥𝐬, which study treatments in controlled settings 🔹 𝐖𝐡𝐲 𝐩𝐚𝐭𝐢𝐞𝐧𝐭-𝐫𝐞𝐩𝐨𝐫𝐭𝐞𝐝 𝐝𝐚𝐭𝐚 𝐦𝐚𝐭𝐭𝐞𝐫, capturing symptoms and experiences doctors may not see 🔹 𝐇𝐨𝐰 𝐫𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬 𝐡𝐞𝐥𝐩 𝐚𝐧𝐬𝐰𝐞𝐫 𝐫𝐞𝐚𝐥-𝐥𝐢𝐟𝐞 𝐪𝐮𝐞𝐬𝐭𝐢𝐨𝐧𝐬, such as how treatments perform long-term, how lifestyle affects MS progression, and what pregnancy outcomes look like for people with MS 🔹 𝐇𝐨𝐰 𝐩𝐞𝐨𝐩𝐥𝐞 𝐥𝐢𝐯𝐢𝐧𝐠 𝐰𝐢𝐭𝐡 𝐌𝐒 𝐜𝐚𝐧 𝐜𝐨𝐧𝐭𝐫𝐢𝐛𝐮𝐭𝐞 simply by sharing their experiences over time With more than 𝟱𝟬,𝟬𝟬𝟬 𝗽𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁𝘀 𝗶𝗻 𝘁𝗵𝗲 𝗨𝗞 𝗠𝗦 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗮𝗹𝗼𝗻𝗲, these initiatives show how patient voices can help shape future research and improve care. Read the full article: bit.ly/46Wf9L3 #MSAwarenessMonth #MultipleSclerosis #MSResearch #PatientVoice #RealWorldEvidence #ECTRIMS4me

⛵𝗪𝗲𝗯𝗶𝗻𝗮𝗿: 𝗠𝗦 𝗜𝗿𝗲𝗹𝗮𝗻𝗱 & 𝗢𝗰𝗲𝗮𝗻𝘀 𝗼𝗳 𝗛𝗼𝗽𝗲 𝟮𝟬𝟮𝟲 𝗦𝗮𝗶𝗹𝗶𝗻𝗴 𝗣𝗿𝗼𝗴𝗿𝗮𝗺𝗺𝗲 Join @MSIRELAND and @OceansofHope for the launch of a new nationwide sailing initiative for people living with MS. 📅 𝗧𝗵𝘂𝗿𝘀𝗱𝗮𝘆, 𝟭𝟮 𝗠𝗮𝗿𝗰𝗵 𝟮𝟬𝟮𝟲 🕒 𝟯:𝟬𝟬 𝗣𝗠 (𝗚𝗠𝗧) 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿: bit.ly/4b14DU4 Part of our #MSAwarenessMonth initiative highlighting our 𝟰𝟬+ 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝗗𝗮𝘆 𝗦𝘂𝗽𝗽𝗼𝗿𝘁𝗶𝗻𝗴 𝗣𝗮𝗿𝘁𝗻𝗲𝗿𝘀. #MSAwarenessMonth #MultipleSclerosis #MSCommunity #OceansOfHope #MSIreland #ECTRIMS4me

💬 𝗕𝗿𝗲𝗮𝗸𝗶𝗻𝗴 𝘁𝗵𝗲 𝗦𝗶𝗹𝗲𝗻𝗰𝗲: 𝗘𝗺𝗽𝗼𝘄𝗲𝗿𝗶𝗻𝗴 𝗬𝗼𝘂𝗻𝗴 𝗔𝗱𝘂𝗹𝘁𝘀 𝘄𝗶𝘁𝗵 𝗠𝗦 For #MSAwarenessMonth, we are featuring a blog from MS Together exploring the link between #MultipleSclerosis and the menstrual cycle—a vital research gap. 📖 Read more: bit.ly/4rWRGSs Throughout 𝗠𝗮𝗿𝗰𝗵, we continue to showcase our 𝟰𝟬+ 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗖𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 𝗗𝗮𝘆 𝗦𝘂𝗽𝗽𝗼𝗿𝘁𝗶𝗻𝗴 𝗣𝗮𝗿𝘁𝗻𝗲𝗿𝘀 and their global impact. #MultipleSclerosis #MSCommunity #MSAwareness #PatientCommunity

🌍Happy International Women’s Day!💜 Applications are now OPEN for the 2026 Rachel Horne Prize for Women’s Research in MS! This US$40,000 award honours a senior female scientist for her leadership and career-long impact in MS research. 𝗔𝗽𝗽𝗹𝘆 𝗯𝘆: 𝟭𝟮 𝗝𝘂𝗻𝗲 𝟮𝟬𝟮𝟲 : 🔗 bit.ly/4kSLbx7 #IWD2026 #WomenInScience #MSResearch #ECTRIMS #iWiMS

The February 2026 (Volume 32, Number 2) issue of the @msjournal is out! Publication includes future perspectives, "Controversies in MS", original research, case report, and more. Read the publication: journals.sagepub.com/toc/msja/32/2 Key Highlights: 🔬 Prevention: Toward a global research agenda ⚖️ McDonald Criteria: Resolving misdiagnosis challenges 📉 Disability: Dissecting accrual & kappa free light chain thresholds 💊 Therapeutics: Anti-IL6R in NMOSD/MOGAD strategy 🩺 Case Report: Tumefactive demyelinating lesions Full issue: bit.ly/4cmRRBC This journal is proudly supported by @ECTRIMS, @ACTRIMS #PACTRIMS @lactrims, RiMS & European Charcot Foundation. #MultipleSclerosis #MSResearch #Neurology #MSJ #ECTRIMS

🔎 Best of #ECTRIMS2025: Pathogenesis Highlight A study of 10M+ US military personnel led by Prof. Alberto Ascherio shows higher Vitamin D levels strongly reduce MS risk in White individuals. In Black individuals, the effect was less pronounced, pointing to further biological mechanisms. 📌 Explore the full Pathogenesis Track in the Best of ECTRIMS 2025 Slide Deck. Download here ➡️ bit.ly/4qWo46i #ECTRIMS2025 #MSresearch #MSPathogenesis

Rehabilitation in MS is more than exercise. 🎧 In this new episode recorded at #ECTRIMS2025, experts discuss vocational rehab, mental health, digital screening & why rehab should start at diagnosis — not later. Listen now: Spotify: bit.ly/4qYMEDE Apple: apple.co/4qWFgsr Website: bit.ly/3N29j40 #MultipleSclerosis #MSRehabilitation #RIMS #ECTRIMSPodcast @Mstranslate @UniofNottingham

📩 Stay ahead in MS research with @ECTRIMS Get exclusive updates delivered free to your inbox: 🏛️ Upcoming Congresses 🎓 Educational Milestones 🔬 Latest Clinical Breakthroughs Be the first to know what’s next for the global MS community. Join us today: 🔗 bit.ly/4pgmkEp #MS #MSResearch #Neurology #ECTRIMS

ECTRIMS and the @mssociety are pleased to announce the appointment of four distinguished experts to the International Advisory Committee on Clinical Trials in Multiple Sclerosis (IACCTMS). The Committee provides perspective and guidance on planning and implementing clinical trials for the treatment of #MultipleSclerosis. Joining the Committee as of 1 January 2026: - @EthelScl, MD, @ucatolica_eng (Chile) - Kate Fitzerald, PhD, @JohnsHopkins (United States) - @PascalSati , PhD, @CedarsSinai Health System (United States) - Heinz Wiendl, MD, Universitätsklinikum Freiburg (Germany) The Committee extends its sincere appreciation to the following members who have completed their terms: - Frederik Barkhof, MD, PhD, @ucl (United Kingdom) - Jorge Correale, MD, Raúl Carrea Institute for Neurological Research (Argentina) - Marcia Finlayson, PhD, @queensu (Canada) - Amber Salter, PhD, @UTSWMedCenterMedical Center (United States) Read the full press release: ectrims.eu/press/internat… #IACCTMS #MSResearch #MSTrials

A project launched at the 2024 ECTRIMS Winter School is now published in @MSJ_Research. First-authored by Roxanne Pretzsch of @UniBasel_en, it shows NfL is a promising biomarker of treatment response in #MS across 15 RCTs. 🔗 bit.ly/4akZuXR #MultipleSclerosis #MSResearch #Neurofilament #WinterSchool

🦠 What role does Epstein–Barr virus play in the development of MS?
👉 bit.ly/4rBMKlh Our latest #Spotlight explores EBV and MS pathogenesis, timing of infection, and implications for prevention. Written by @stefania_devito, with insights from C. Münz (@UZH_en) and T. Derfuss (@UniBasel_en). #EBV #MultipleSclerosis #Neuroimmunology

BTK inhibitors continue to be one of the most closely watched therapeutic areas in #MS — and for good reason. In this podcast episode, #Fenebrutinib trial leads explain why BTK inhibition uniquely targets the cells most implicated in chronic MS progression. 🎧 Listen for a deep dive into the science and the clinical implications. • Spotify: bit.ly/3MksuWl • Apple: apple.co/4rAsUXF #FENtrepid #MultipleSclerosis #PrimaryProgressiveMS #PPMS #ClinicalTrials #ACTRIMSForum2026 #ECTRIMSPodcast

Where do the world’s leading MS experts connect? 🌍 myECTRIMS is more than a library—it’s a global hub to: 🔹 Tailor Your Feed: Prioritise research that matters to you. 🔹 Connect: Engage with peers & experts globally. 🔹 Advance: Find mentors & professional resources. Log in to customise your experience! 🔗 my.ectrims.eu #MS #MSResearch #neurology #ECTRIMS

📢 New in @MSJ_Research: A scoping review led by Maria Pia Sormani (@UniGenova) synthesises the emerging literature on social determinants of health in people with MS in Italy, highlighting a strong focus on sex and gender and key gaps in other areas. 🔗journals.sagepub.com/toc/msja/curre… #MultipleSclerosis #MSResearch #SDH #Neurology

🚨 Exclusive Podcast Episode | New Phase 3 data presented at @ACTRIMS suggest fenebrutinib may meaningfully impact non-relapsing progressive disease biology – a key limitation of current therapies. 🎧 Hear the lead trial experts talk about what this could mean for #PPMS patients: • Spotify: bit.ly/3MksuWl • Apple: apple.co/4rAsUXF @UCSF @Penn @Mstranslate #FENtrepid #MultipleSclerosis #PrimaryProgressiveMS #PPMS #ClinicalTrials #ACTRIMSForum #ECTRIMSPodcast