European Sickle Cell Federation

351 posts

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European Sickle Cell Federation

European Sickle Cell Federation

@escfederation

Brussels, Belgium Katılım Şubat 2020
211 Takip Edilen408 Takipçiler
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
Save this Date!! Our International Sickle Cell Disease Summit is coming up this June 27th-29 2024. Registration open escfederation.eu/register The perfect place to be among patients, clinicians and industry Join us for a great information and networking experience. #ESCFSummit24
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
Thank you to our PLATINUM SPONSOR @pfizerinc for our recent ESCF International SCD Summit 2024 held in Dublin, Ireland. Your support enabled patients to share their lived experiences, patient education, support, networking & engagement with health care professionals. Thank you!!
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
This 19th June we remain committed to changing the myths & perceptions surrounding the racial structure of #Sicklecelldisease genetic prevalence! Sickle Cell is NOT a black people's disease! Join us by sharing this message widely. Together we are Stronger!
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
Back for another great patient focused experience together with great clinical experts. This is an in person event. Registration opening soon. SAVE THE DATE!!
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Lora Ruth Wogu
Lora Ruth Wogu@LoraRuthW·
Super excited to see this!! Thank you Diane for choosing #Sicklecell. There is nearly no research on Sickle Cell Disease in Ireland. This means alot to us!! Thank you!!! @escfederation @ERNEuroBloodNet @SCTIreland @mhaireland @PPI_Ignite_Net
RCSI School of Pharmacy and Biomolecular Sciences@RCSIPharmBioMol

Professional PhD scholar @RCSI_Irl & pharmacist @TUS_ie - Diane Patterson shares her story of incorporating a friend & PPI Contributor in her approach to researching pain management for Sickle Cell Disease - a lifelong illness. #RCSIdiscover @PPI_Ignite_Net

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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
This is a very important point. We need more specialist Heamatologists for Sickle Cell Disease on a global scale. We welcome the FDA approval, but we need them to be approved in Europe and equally accessible for everyone!! Thank you @ASH_hematology for a great conference!
ASH@ASH_hematology

The approval of two gene therapies last week represent a big step forward in SCD research, but it still won’t be enough for most people with #SickleCell. The problem: we need more hematologists. #ASH23 Read @DocksDoc200's piece in STAT: loom.ly/FYSWhB4. #ConquerSCD

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ASH
ASH@ASH_hematology·
The approval of two gene therapies last week represent a big step forward in SCD research, but it still won’t be enough for most people with #SickleCell. The problem: we need more hematologists. #ASH23 Read @DocksDoc200's piece in STAT: loom.ly/FYSWhB4. #ConquerSCD
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Sickle Cell Midwest
Sickle Cell Midwest@sicklecellmw·
CASGEVY is the 1st FDA-approved #geneediting treatment for #sicklecell. Using CRISPR, Exa-cel targets the BCL11A gene, boosting fetal hemoglobin to ease symptoms. While more dialogue is required on access & affordability, it's a notable milestone for #SCD. rb.gy/s54omc
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Jenica Leah (My Friend Jen)
Jenica Leah (My Friend Jen)@jenica_leah·
Great session on how sickle cell disease centres can get ready to provide genetic therapies @ASH_hematology Interesting and exciting times are ahead!!
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
Our COO @LoraRuthW is present at the #ASH23 Annual meeting. Europe is eager & ready to see advancements in Sickle Cell treatment options, disease management and improving involvement in Research and clinical trials.
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
The ASH Annual meeting 2023 is on! #ASH23. And it's a pool of knowledge, networking and clinical advancement for both Malignant & Non Malignant conditions!
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European Sickle Cell Federation
European Sickle Cell Federation@escfederation·
Finally, a wave of great news as we celebrate the first regulatory authorisation of a CRISPR based gene editing therapy for #sicklecelldisease in the world! This is a new era for the Sickle Cell Community! Eagerly for approvals in extending this to the rest of Europe.
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Keşfet

@PfizerInc @pfizer @ERNEuroBloodNet @SCTIreland @mhaireland @PPI_Ignite_Net @ASH_hematology @LoraRuthW