EverythingALS

EverythingALS Launches #Vision2030 AI Hub – an innovative platform leveraging AI and #machinelearning to accelerate progress towards a cure. We're charting the path to a future free from #ALS and advancing neurodegenerative disease research. #endALS #cureALS @MIT @MassGeneralNews

Join us on February 18 for the first episode of HopeUntangled! Register➡️everythingals.org ALSUntangled: alsuntangled.com ALS Hope Foundation: alshf.org #ALS #ALSResearch #ALSCommunity #LivingWithALS #ALSReversals #DrBedlack

Join our Expert Talk Series tonight, featuring Dr. Stephen Kolb on "How to Kill a Motor Neuron". 4pm PST / 7 pm EST. Register at: everythingals.org/events #ALS #ALSResearch #ALSCommunity #CareToCure

Proud to share that EverythingALS CEO Indu Navar is attending #SCCWEF26 with the @SmartCitiesCncl during the World Economic Forum in Davos (Jan 18–23). Bringing citizen-powered health data and patient voices into global conversations on the future of cities, technology, and public health. 🔗 events.smartcitiescouncil.com/SCCHereDuringW… #SCCWEF26 @SmartCitiesCncl

🚨 Tonight! Our first Expert Talk of 2026 🚨 What if viruses play a role in ALS? Join us this evening as Dr. Gary Pattee explores emerging research in 🧬 “Chloroviruses in ALS” - a fascinating look at a lesser-known area of investigation that’s sparking important scientific questions. 📆 January 7 ⏲️ 4 PM PT / 7 PM ET 🔗 everythingals.org/events Curious minds welcome. Come learn with us. #ALS

As the year comes to a close, thank you for being part of this community. The spark at the center of our work comes from people - your participation, curiosity, and shared commitment. Together, that light guides what comes next. Grateful for all we’ve built and hopeful for 2026. #ALS #ALSCommunity #CareToCure #ALSResearch

Join us Wednesday for our final Fireside Chat of 2025! A welcoming space to share practical tips for daily life with #ALS — or simply show up and be part of the community. 📅 Dec 17 | 🕓 4pm PT / 7pm ET 🔗 everythingals.org/firesidechats #EverythingALS #ALSCommunity #CareToCure

Every 90 minutes, someone is diagnosed with ALS. Progress doesn’t happen all at once — but it does happen when collaboration is intentional, hope is present, and voices are centered. That’s how we move research forward. 💙 everythingals.org #ALS #ALSResearch #ALSCommunity

Next week is an all new episode in our Expert Talk Series, featuring Dr. Suma Babu, Co-Director, Neurological Research Institute, Massachusetts General Brigham and Associate Professor of Neurology at Harvard Medical School. "Healey ALS MyMatch Overview & Updates" Wednesday, December 10, 2025 4 pm PST | 7 pm EST register for the zoom event at everythingals.org/events We hope you will join us! Please like, comment, and share this post to help spread the word. #ALS #ALSCommunity #ALSFamily #ALSEducation #everythingals #CareToCure #alstrials #ALSResearch

Today’s Pathfinder Spotlight: Tony. 💙 A retired LA Firefighter and proud husband, father & grandfather, Tony brings deep compassion and lived experience to the ALS community. His message: “As a PALS, I understand what others are going through and therefore want to help them.” Thank you, Tony, for all you do. Connect with our Pathfinders in the EverythingALS app or at everythingals.org. #ALS #ALSCommunity #CareToCure #PathfinderSpotlight

Join us next Wednesday for Giving Thanks with EverythingALS, a relaxed, drop-in Zoom gathering to connect, reflect, and share gratitude. 💛 Hosted by staff + Pathfinders. Everyone is welcome. 🗓 Nov 26 🕓 4pm PST | 7pm EST 🔗 everythingals.org/firesidechats #EverythingALS #ALSCommunity #ALS #GivingThanksTogether #CareToCure

In honor of National Family Caregivers Month, we’re spotlighting Faith - a Pathfinder and caregiver whose compassion strengthens the ALS community. 💙 “ALS affects the whole family… no one should feel alone.” Thank you, Faith. #ALS #CaregiversMonth #ALSCommunity #EverythingALS #CareToCure #PathfinderSpotlight

Welcome to EverythingALS, a community of hope, science, and support. 💙 4 ways to get involved ⬇️ 📱 Download the App 🧬 Join Studies & Trials 📧 Subscribe to Emails 🗓️ Attend Online Events Your voice and experience matter. 🔗 everythingals.org #ALS #ALSCommunity #EverythingALS #CareToCure

Are you living with ALS or caring for someone who is? You’re not alone. Join our monthly Fireside Chat hosted by the EverythingALS Pathfinders - leaders who understand the ALS journey firsthand. A space to listen, share, and connect. ❤️‍🔥 🗓️ Nov 19, 2025 ⌚ 4pm PT | 7pm ET 🔗 everythingals.org/events All impacted by ALS are welcome. #ALS #ALSCommunity #CareToCure #EverythingALS

Honoring John - Pathfinder, Army veteran, and a steady source of courage. After his ALS diagnosis, he chose resilience and now helps others find light on difficult days - especially fellow veterans. On #VeteransDay, we honor John and all veterans living with ALS. Veterans face a higher risk of ALS, and the VA recognizes ALS as a service-connected condition. 📷 Thank you, John. #EverythingALS #Pathfinders #ALSCommunity #CareToCure

Asymptomatic ALS or FTD gene carrier? You may be just right for our fully remote study. ✅ Movement sensors ✅ Memory & thinking tests ✅ Speech & facial recording ✅ All from home Help advance early detection research. 🔗 Learn more at everythingals.org/asymptomatic-s… #EverythingALS #ALSResearch #GeneCarrierStudy #CareToCure

Next Week’s Expert Talk "Palliative Care for ALS - What it is, how it helps, how to access it" 🗓️ Nov 12, 2025 🕖 7 PM ET 🎙️ With Dr. Kara Bischoff Palliative care supports pALS early, not just at the end of life. Learn how it can reduce symptoms, ease stress, and improve quality of life for the whole family. 🔗 Register here 👉 everythingals.org/events #EverythingALS #ALSCommunity #PalliativeCare #CareToCure

💜 Remembering our Pathfinder, Janie. A mother, grandmother, teacher, advocate, and friend whose courage and compassion touched everyone around her. She reached out with her heart when her hands could no longer serve, lifting others with honesty, hope, and purpose. Her light will continue to guide our community. 🕊️ Rest peacefully, Janie. #EverythingALS #Pathfinders #ALSLegacy #ALSCommunity #CareToCure

No one living with ALS should have to walk the path alone. 💙 The EverythingALS Pathfinders offer 3 pillars of support 💪 Physical Empowerment 🧠 Mental Resilience 💫 Spiritual Support This is the start of our Pathfinder spotlight series — stay tuned as we share their stories and the hope they bring to the ALS community. Reach out anytime through the EverythingALS App. #EverythingALS #CareToCure #Pathfinders #ALSCommunity

Knowledge is power ~ and every view helps amplify ALS awareness. 📺 From the latest clinical trial updates to real-life stories, our YouTube channel connects science and community. Be part of the movement. ▶️@EverythingALS" target="_blank" rel="nofollow noopener">youtube.com/@EverythingALS Hit subscribe and help us bring research to life. #EverythingALS #CareToCure #ALSResearch #Hope #ALSCommunity

HOPE lives in every connection we make — between people living with ALS, families, researchers, and advocates. At EverythingALS, the path from care to cure begins with people who never stop believing in progress. 💙 #EverythingALS #CareToCure #ALSCommunity #Hope #ALSResearch