Jason Fangusaro

@AmandaHaddock @JaceWard3 I only got the great opportunity to hear about Jace from his mother and the amazing DIPG selfless groups who continue to fight so hard for change. I send my deepest thoughts to his family, friends, medical ream and the entire DIPG community. He truly was a warrior!

Many of you know this amazing human @JaceWard3. His time on earth may be drawing short. I was messaging with his mom about his impact, and I think it would do their hearts good if they could know your thoughts about his impact. Pls comment here so they can see it #BecauseOfJace

Great research at work! pubmed.ncbi.nlm.nih.gov/33631016/ "Over 70% of children with recurrent optic pathway/hypothalamic low-grade glioma had shrinkage or stability of their tumor using selumetinib (an oral agent)."