Lilly

@photobiogenesis @P_E_no_1 What? That's crazy

Being born blind completely abolishes the risk of developing schizophrenia One of the must utterly insane and fascinating examples of how little we know about mental illness Over decades of research there hasn't been a single case of congenital blindness + schizophrenia

@iatrogenicse @alexandrite113 Very true

@alexandrite113 No one deserves this kind of suffering.

I deserve this disease

@alexandrite113 No, that's not how any of this works. Not at all. Some of this is just the human condition. Not a punishment or even controlled by God. In other words these things just happen it's not something anyone could "deserve." Praying for peace for you! 🕊️

@tylerblack32 @SalvMattera @joespfeifer Where are you seeing that? I see that more than 70% of patients see some level of improvement. Not 74% improvement. Where's the 20% number from? Or the 40% from? Please help us understand

you're misreading it. it's saying the symptoms of the FND decreased for 74%, and it was NOT because of any changes in fatigue, physical function, and mental health. as in, it was specifically targeting the FND. Full remission is in the 40% range.' But more importantly, WITHOUT treatment, the chance of symptom improvement is only 20%, and 40% chance of it getting worse. So no matter how you look at it, FND is a helpful diagnosis that benefits most patients, and leads to changes in FND symptoms specifically, and without such a diagnosis/treatment, the outcomes are much worse. Ergo, pretty much everything you've said about FND is incorrect.

Functional illness is a diagnosis of exclusion. It just means "we looked for things we know how to test for and didn't find them." No one has ever demonstrated a mechanism for FND. There's no biomarker, no imaging finding, no test that confirms FND as a positive diagnosis rather than the absence of other diagnoses. And the literature shows mind body approaches and therapy largely do not work to treat these people. The medical system should be honest and call it idiopathic neurological symptoms

@SalvMattera @tylerblack32 @joespfeifer I could understand what he's saying either.

Help me understand. The FND symptoms improved, but physical function didn't improve, fatigue didn't improve, and mental health didn't improve. What improved? What is an FND symptom if not a problem with physical function, energy, or mental health? Because it sounds like you're describing a treatment that makes people report fewer FND symptoms while their actual functional capacity stays the same. Also, your 40% remission rate and your untreated worsening numbers aren't in the paper you sent me. Where are those from? I'd genuinely like to read the source.

@tylerblack32 @SalvMattera @joespfeifer I didn't see that in the article. Where were you getting that info?

@tylerblack32 @SalvMattera @joespfeifer Literally we could not find any "standard treatment," so trying to understand what you're talking about.

the majority of FND cases receiving standard treatment experience significant symptom improvement with full remission sitting at 40-50% and significant symptom improvement sitting at about 70%. untreated FND rarely remits spontaneously, with symptom improvement being the rarest of outcomes (about 20%), 40% experience no change, and 40% experience significantly worse symptoms.

@tylerblack32 @SalvMattera @joespfeifer How? With what?

@SalvMattera @joespfeifer dude i treat FND all the time

@tylerblack32 @SalvMattera @joespfeifer Sorry, but What therapies? What are you talking about? "Mind body work" is referring to what mechanism? Evidence? Share your sources here. people are waiting

@SalvMattera @joespfeifer what if i told you that some psychiatric conditions don't respond as well to medications as they do to evidence based therapies? like, you know. FND and mind-body work?

@Missy35301 @amiandlife We always need to be cautious. Do we know what caused the p5p to be way over?

@findinSilver @amiandlife I used his videos. Be careful without blood work. By the time I got into the Cleveland clinic I was way over on my p5p.

I’m living off three foods. I wish I was joking. I’m so terrified, I cry a lot. I’m currently waiting to try Sodium cromoglicate which I can barely afford but I have no other option. I cannot believe this is my life and no “doctors” even care. #mcas #longcovid #chronicillness

@Missy35301 @amiandlife We had friends who had to get the covid shot to be treated at the Cleveland clinic. He's had terrible problems since then. I would not feel safe there.

@amiandlife Doctors don't know. For me: I'm taking a lot of quercitin. Have cromolyn spray. Natural Vit C helps bring down flares too. After I built up vit B5, because it's needed for the process to eliminate histamines, I started adding B1.

@orthoterminator @amiandlife Ami, block the poster who made this ridiculous comment! I don't know what's wrong with people, but my goodness the crazies show up on x sometimes! Block, block block!

@amiandlife You clearly have a mental illness and need treatment along those lines. Don’t you dare lambast doctors for being ‘unable or unwilling’ to help you if you won’t accept the foregoing.

@thematrixb0t Interesting they're saying it's hysteria and diagnosing people with hysteria.

Four years ago, Dr. Malone warned: “Something’s happening” to women’s reproductive organs post-vaccine, while the CDC dismissed it as “female hysteria.” He said: “There’s something going on with the ovaries because the ovaries drive menstruation.” “The [vaccine] lipids seem to go to the ovaries.” “They’re getting concentrated there. Something’s happening, and no one’s interested in investigating it.” Dr. Malone was right. Something indeed was happening inside the bodies of women. This once-called “conspiracy theory” is now backed by reality. And the numbers don’t lie.

@HerbsandDirt Sorry, what type of testing? EDS ? Mthfr? Some are meaningless if they're negative but docs then say, "see nothing is wrong, all in your head"

@HerbsandDirt For what?

If you were offered free genetic testing via your insurance, would you do it?

@iatrogenicse Mast cell activation syndrome? I've been trying to heal my body form that.

Anyone else get intensely dizzy after eating??

@rayengroves I hadn't either, but it was very helpful. Once I got caught up on it I don't need it as often. Definitely worth reading about it to decide if you should try it.

@findinSilver Avoiding folic acid and seed oils, I eat a pretty naturally lower carb diet too. I have heavily focused on protein and healthy fats this postpartum. I’ve never heard of taurine for anxiety?

I really want to try Wellbutrin but I am trying to get pregnant in a few months and it feels like a waste. But the panic attacks/depression is killing me so idk what to do

@rayengroves Is keto off the table? (I assume all seed oils are out of your diet as well) Taurine was for a vision issue I had and it helped anxiety I didn't even know I had.

@findinSilver I take a methylated b complex vitamin that also has folate, a vitamin d supplement, and spend an average of 6-7 hrs outside daily. I take NAC, magnesium, eat high protein, etc as well