haemnet

We are communicators, collaborators and researchers. We are Haemnet

Did you tune in to #Haemcast's 'Veins, verse and voices'? Chair of Local families with bleeding disorders, Lisa Steadman, explains more about the poems collected in Bleeding and Belonging, on our blog: loom.ly/8ZBL_9s #LFWBD #bleedingdisorders #families #poetry #podcast

Presenting the Bleeding Disorders: Care & Practice top 10 articles for February. Patient experience & quality of life continue to feature prominently. Why not explore our archives here: loom.ly/uIXcNF8 #BDCP #bleedingdisorders #research #livedexperience #haemophilia

The new season of #Haemcast has started! In episode 1, members of Local families with bleeding disorders discuss how poetry helped them explore their experiences, hopes, expectations and worries. 🎧 loom.ly/d6YUipg #LFWBD #bleedingdisorders #families #poetry #podcast

On #InternationalWomensDay 2026, we want to give visibility and a voice to women and girls affected by a #BleedingDisorder. Read our #IWD blog here: loom.ly/lujMOIw #GiveToGain #March8 #BleedingDisorders #GenderEquality #ParityOfCare

Out today: the first new #Haemcast, in collaboration with Local families with bleeding disorders! Hear about the poetry workshops that helped #LFWBD members explore their experiences, hopes and fears: loom.ly/d6YUipg #bleedingdisorders #families #poetry #podcast

The new season of #Haemcast is about to launch! We'll be exploring the ups, downs, ins and outs of family life with a rare bleeding disorder in collaboration with Local families with bleeding disorders. loom.ly/ADEZ6qQ #podcast #LFWBD #bleedingdisorders #families

1 March is #GlanzmannThrombasthenia Awareness Day. Our GT360 study explored the experience of almost 120 people living with or caring for someone with Glanzmann's. If you live or care for someone with Glanzmann's, what do you want people to know about?

On #RareDiseaseDay 2026, we're shining a light on #UltraRare#BleedingDisorders — factor deficiencies. Our #RDD blog highlights the experience of Helen, who lives with #FactorV deficiency: loom.ly/hcPNBXE

NBDF’s research grant cycle is now open, supporting projects that reflect the real needs of the bleeding disorders community. 🗓 Letters of intent due February 23, 2026 🔗 Apply today: bit.ly/4k9Nago

The top 10 #BDCP articles for January 2026 explore aspects of treatment experience, women & haemophilia, parent experiences, and nursing. Read more, open access, in Bleeding Disorders: Care & Practice: loom.ly/uIXcNF8 #bleedingdisorders #research #haemophilia #Haemnet

We have a new Editor-in-Chief! We hope you'll join us in offering a warm welcome for Maria Santaella, Vice President of Research Strategy at @nbd_foundation, to the editorship of Bleeding Disorders: Care & Practice. bdcpjournal.com #BDCP #bleedingdisorders #research #Haemnet

Symposia on prophylaxis in #vonWillebrandDisease and on redressing the balance of treatment innovation in #bleedingdisorders including #VWD, #FactorVII deficiency and #GlanzmannThrombasthenia were among our highlights yesterday at #EAHAD2026. If you're there, don't forget to visit our posters from our VWD 360, FVIID 360 and Cinderella studies.

If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception! Wednesday 4 February, 6.30-7.30pm #EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet

Day 1 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies. #FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet

Haemnet is at the #EAHAD2026 Congress in Dublin this week, with posters presenting insights from our lived experience research 🏅PO246 | Living with Factor VII deficiency: Data from the FVIID 360 study – ranked among the best EAHAD 2026 posters and up for a poster award 🧬 PO222 | Identifying the challenges posed by living with VWD: the VWD 360 study 👭 PO248 | Identifying predictors of disease burden in women with bleeding disorders: analyses from the Cinderella Study You’ll find us at the poster presentation session on Wednesday 4 February from 6.30-7.30pm – hope to see you there! #EAHADCongress #Haemnet #bleedingdisorders #vonWillebrandDisease #FactorVII #research

Only a week until the EAHAD 2026 Congress! We're looking forward to catching up with clients, colleagues and friends, and hearing about the latest developments in #bleedingdisorders #research. See you there? #EAHAD2026 #EAHADCongress #Haemnet

For Haemcast's 2026 series, we're collaborating with Local Families with Bleeding Disorders to talk about family life with a rare bleeding disorder. Stay tuned — it's coming soon! loom.ly/ADEZ6qQ #podcast #Haemcast #LFWBD #bleedingdisorders #families

Our journal's top 10 online articles for December 2025 have been revealed! You can read these and more on the new Bleeding Disorders: Care & Practice platform: loom.ly/Z_wuqf8 #bdcpjournal #bleedingdisorders #hemophilia #research

Our journal is dedicated to the full spectrum of bleeding disorders – and we’re changing our name to reflect that. Introducing Bleeding Disorders: Care & Practice – the new name for The Journal of Haemophilia Practice Same mission. Broader focus. Stronger impact. bdcpjournal.com #bleedingdisorders #haemophilia #vonWillebrandDisease #research #BDCPjournal