HBA Support

We've decided to no longer post on X. You can find us on facebook.com/HBASupport, instagram.com/hba_support or linkedin.com/company/hbasup… – please join us there to stay up to date with brain aneurysm support, news & research.

@RareRevolutionM Thank you for sharing! We're here for anyone affected by brain aneurysms and families with increased risk so please visit us at hbasupport.org if you would like more information

The Hereditary Brand Aneurysm Support team has worked with neurosurgeons, interventional neuroradiologists and neuro-nurses to create a patient guide for people who have been newly diagnosed with a brain aneurysm that covers all areas. It's important to remember that if you've been diagnosed, you are not alone. With proper medical care and support, people with brain aneurysms can continue to pursue their dreams and live meaningful lives. It's time to replace fear with facts and worry with support. To read the HBA Support patient guide, visit bit.ly/3IFxcfA

@RareRevolutionM Thanks for sharing!

@hba_support has launched a new podcast, "Brain Aneurysms and Beyond," hosted by founder Rebecca Middleton. The series features interviews with top experts and patients, exploring diagnosis, treatment, and living with brain aneurysms. The first episode offers practical tips for managing life with an aneurysm. Join the conversation and support the community by listening and sharing your stories. rarerevolutionmagazine.com/hba-support-la… #BrainAneurysmAwareness #PatientSupport #MedicalPodcast #HBACharity #BrainHealth #Neuroscience #CommunitySupport #LivingWithAneurysm #HealthcareAdvocacy #PodcastLaunch

Our new "Brain Aneurysms & Beyond" Podcast is out NOW! Join a neuroscience nurse and brain haemorrhage prevention charity in Ep1 as we ask “How do you live well with a brain aneurysm?” with practical tips on navigating everyday life with an aneurysm. hbasupport.org/podcast

Join representatives from @hba_support and Brain & Spine Foundation on the 25th of September for an online session for people living with unruptured brain aneurysms. The session will be live and not recorded, and completely free to attend. Register here: ow.ly/CSRK50WS5X7

#BrainAneurysmAwarenessMonth is all about changing the silent story of brain aneurysms, replacing fear with facts and worry with support. We're here to support people affected by brain aneurysms and families with increased risk. Please visit hbasupport.org/brainaneurysmf… for more info

We are delighted to be a patient partner for this pivotal and ground-breaking study. As a charity representing patients impacted by brain aneurysms and their families, who possibly have hereditary risk, this research is critical for better, more personalised patient care.

A landmark research initiative attempting to lay the foundation for the UK’s first genetic screening programme for brain aneurysms is set to get underway soon @hba_support @RebeccaMiddle16 @unisouthampton @UHSFT neuronewsinternational.com/roar-dna-study…

@NN_publishing @RebeccaMiddle16 @unisouthampton @UHSFT We are delighted to be a patient partner for this pivotal and ground-breaking study. As a charity representing patients impacted by brain aneurysms and their families, who possibly have hereditary risk, this research is critical for better, more personalised patient care.

We need action from government, not just words. In My Neuro Survey, people most reported being unable to access specialist mental health support despite needing this. Sign our open letter to now. bit.ly/ActForThe1in6 Thank you.

Calling all neurovascular or medical professionals supporting people with brain aneurysms with possible hereditary links - please fill our survey to help us create a guide to help newly diagnosed patients surveymonkey.com/r/KXKBJBY

@RareBeacon thank you for sharing our report and for your support 🥰

Inconsistent screening guidelines and gaps in brain aneurysm care are preventing vital early detection for families with hereditary risk. @hba_support is calling for action. Find out more at: ow.ly/P1j350V8kc8 #BrainAneurysm #ScreeningSavesLives #Fix___TheGaps

Great to see our founder's podcast episode being shared - have a listen if you want to hear how Hereditary Brain Aneurysm Support began.

@NEYGenomics @RebeccaMiddle16 Thanks so much for highlighting this🥰

Tune into The Road to Genome MON 24 MARCH to hear Rebecca Middleton (@RebeccaMiddle16) share her experience as a patient & creation of the organisation Hereditary Brain Aneurysm Support (@hba_support) Listen here eu1.hubs.ly/H0hH_l70 or wherever you get your podcasts

Thanks to @clemencybh for sharing her story on @BBCNews & @BBCTwo to raise awareness of brain injury and recovery. Our brain aneurysm rupture survivors understand the shock of a sudden rupture, huge recovery challenges and the devastating impact brain injury has. #aftertherupture

Last chance to take part in research to help us learn more about the experiences of families with hereditary brain aneurysms. If you or your partner is at-risk of hereditary brain aneurysms we need to hear from you before Jan 31st! Find out more here hbasupport.org/post/what-are-…

FREE Guide - Understanding Familial Brain Aneurysms Most brain aneurysms occur sporadically, meaning randomly with no pattern, and are not hereditary. However, sometimes patterns can occur in families. Find out more in our free downloadable guide here: #guides" target="_blank" rel="nofollow noopener">hbasupport.org/support#guides

We're posting less on X so to stay updated you can follow us on facebook.com/HBASupport or linkedin.com/company/hbasup…

Have you or your family been impacted by a brain aneurysm? We're running research projects that need to hear about your patient experience to help improve care and support. A friendly chat is all we need. Find out more here: #researchopps" target="_blank" rel="nofollow noopener">hbasupport.org/get-involved#r… #brainaneurysms

We have responded to Lord Darzi’s Independent Investigation of the NHS in England. Read the full statement from our Chief Executive @GCarr_Neuro on our website neural.org.uk/news/the-neuro… #NHS #BackThe1in6