Inflamed Brain Alliance

PANS/PANDAS CAN LOOK DIFFERENT FOR EVERY PERSON. The #CanadianPANSRegistry collects information about symptoms and experiences to help improve understanding of PANS and PANDAS. It's never too late to participate. inflamedbrain.org/pans-registry #PANS #PANDAS

Adult Peer Connection Group (18–35) 💬 Memory Challenges & Brain Fog A peer space for Canadian adults living with PANS/PANDAS. July 26 | 3:00–4:00 PM PT 🔗 tinyurl.com/AdultJuly26 #PANS #PANDAS #PeerConnection

Meet Tracy, captain of Mission Possible for #SteppinOut2026. "Every conversation, every donation, and every person who joins the walk helps shine a light on a condition that is often misunderstood." Become a Team Captain or register today: 🔗 inflamedbrain.org/steppin-out

BE A PIONEER Many causes already have strong public awareness. PANS and PANDAS do not. Help lead the way by sponsoring Canada's national PANS/PANDAS walk. Become a sponsor: inflamedbrain.org/become-a-spons… #SteppinOut2026 #PANS #PANDAS

🌍 75 landmarks approved for 2026 #LightUp4PANS! One month in, 75 landmarks will light up green for World PANS/PANDAS Awareness Day on Oct 9. Welcome @panspandas_es—our 17th global partner. 💚 PANS/PANDAS is medical, often mistaken for behavioural/mental health.

PANS/PANDAS CAN AFFECT MANY AREAS OF LIFE. School. Work. Relationships. Daily life. The #CanadianPANSRegistry helps improve understanding of these impacts across the lifespan. It's never too late to participate. inflamedbrain.org/pans-registry #PANS #PANDAS

A huge thank you to our 9 Steppin’ Out Team Captains! 👟💗 Your leadership helps bring people together across 5 in-person walk locations and virtually across Canada. Thinking of starting a team? Register and choose “Create a Team.” 👉 inflamedbrain.org/steppin-out/ #SteppinOut26

🇨🇦 Happy Canada Day! Today we celebrate the communities that make Canada strong. To everyone affected by PANS and PANDAS: your resilience inspires us, and you are not alone. Together, we bring health to mind. #CanadaDay #InflamedBrainAlliance

HOW LONG DID IT TAKE TO RECEIVE A DIAGNOSIS? The #CanadianPANSRegistry collects information about diagnosis journeys and access to care across Canada. It's never too late to participate. inflamedbrain.org/pans-registry #PANS #PANDAS

Reminder: Adult Peer Connection Group (18–35) meets tomorrow 💬 Summer Heat Survival: Managing Symptoms & Triggers June 28 | 3:00–4:00 PM PT 🔗 tinyurl.com/AdultJune28 #PANS #PANDAS

SHARE YOUR STORY. IMPROVE CARE. The #CanadianPANSRegistry is open to children and adults in Canada with diagnosed or suspected PANS/PANDAS. Participation is voluntary, confidential, and free. It's never too late to participate. inflamedbrain.org/pans-registry #PANS #PANDAS

Adult Peer Connection Group (18–35) 💬 Summer Heat Survival: Managing Symptoms & Triggers A peer space for Canadian adults living with PANS/PANDAS. June 28 | 3:00–4:00 PM PT 🔗 tinyurl.com/AdultJune28 #PANS #PANDAS #PeerConnection

To the dads and father figures supporting loved ones through PANS/PANDAS, thank you for your strength, resilience, advocacy, and unwavering presence. Happy Father's Day from all of us at Inflamed Brain Alliance. 💚

Reminder: Hope Companions caregiver peer support is tomorrow. 💬 Coping Tools for the Tough Days: Micro Yoga + Practical Skills 📅 June 17 ⏰ 6:30–7:30 PM ET 🔗 tinyurl.com/CaregiverJune17 #PANS #PANDAS #PeerSupport

📚 New research from Dr. Velda Han, Prof. Russell Dale, and colleagues found that ibuprofen may help regulate inflammatory immune pathways in children with infection-triggered neurodevelopmental disorders, including PANS. 🔗 doi.org/10.1007/s10787… #PANS #PANDAS #PANSResearch

💬 Coping Tools for the Tough Days: Micro Yoga + Practical Skills Simple movement, breathing, and self-regulation tools for caregivers navigating difficult days. 📅 June 17 ⏰ 6:30–7:30 PM ET 🔗 tinyurl.com/CaregiverJune17 #PANS #PANDAS #PeerSupport

🌍 #LightUp4PANS 2026 is back! Now in year 3, our global partnership of 16 PANS/PANDAS organizations already has 49 landmarks approved to light up green for Oct. 9. This year, families can join too — light up your home, office, or community in green. #WorldPANSPANDASDay

Great conversation with Dr. Georgia Balsevich, Senior Sector Innovation Manager at Genome Alberta, about the intersections of genetics, immune function, infections, and brain health. We’re grateful for the opportunity to explore areas of shared interest. #CanadianPANSRegistry

We started in 2023. We grew in 2024. We kept moving forward in 2025. 💗 The next step is yours. Join us Sept 19:
inflamedbrain.org/steppin-out/ #SteppinOut2026 #PANS #PANDAS

Reminder: Young Adult Peer Connection Group (18–35) meets tomorrow 💬 Navigating Loneliness and Feeling Isolated May 31 | 3:00–4:00 PM PT 🔗 tinyurl.com/YAMay31 #PANS #PANDAS