Isabel Mya

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Isabel Mya

Isabel Mya

@isabelosophy

she/her • 28 • chronically ill and just trying my best to be a decent person • conservatives and their ilk not welcome here

Scotland, United Kingdom Katılım Ocak 2014
608 Takip Edilen797 Takipçiler
Isabel Mya retweetledi
Hello it is me Kira :)🍉
Hello it is me Kira :)🍉@kirabira·
Literally everything I learned about how to stay alive & care for my body when I got sick was thanks to the millions of other sick people who came before me & left detailed instructions. No doctor helped. Even the nice ones who believed me had no actual advice. Only other sickies
morningstar@stichedstars

Again, Reddit has taught my more about my illnesses than any doctor. Like actual helpful advice about how one of my diseases operates and what I need to do / take

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Anna Wood
Anna Wood@Annakwood·
Help! I'm looking for people with ME/long covid or similar who do something creative (eg painting, photography) that is inspired by nature to feature in my book. Ideally people more severely affected than me, so bed bound or partially bed bound
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Isabel Mya retweetledi
Paul Gads
Paul Gads@PaulGadsden82·
People without chronic illnesses really don't get just how bad many doctors are at their jobs.
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Isabel Mya
Isabel Mya@isabelosophy·
@TanteRos it definitely does! I don’t think it’s doing anything to help my mood (and I’m also on a different antidepressant which *is* helping) but I’m still nervous about what affect it might have on me physically. fingers crossed all goes well for both of us 🤞
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xxx ROSE xxx
xxx ROSE xxx@TanteRos·
@isabelosophy Oh good luck! It feels like a big thing after taking them for so many years 🫂
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xxx ROSE xxx
xxx ROSE xxx@TanteRos·
I'm tapering off sertraline after being on it for 8 yrs. I researched & found out hyperbolic reduction is v. important as you get to the lower doses. This involves liquid sertraline measured in Ml. Just checked with pharmacist & liquid not poss on NHS. 25mg lowest dose tablet 🫤
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Isabel Mya retweetledi
Nele
Nele@NeleHelena·
The sad thing about this doctor posting about overdiagnosis of POTS is that it doesn't matter that he can't provide proof for his wild and untrue claim, while patients share evidence of the opposite, he will still be believed over patients simply because he's a doctor.
Adam Gaffney@awgaffney

Over-diagnosis / misdiagnosis / self-diagnosis of EDS, MCAS, POTS, & Lyme is a real problem, and it would appear that there is little appetite by medical professionals to discuss this issue publicly.

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Isabel Mya
Isabel Mya@isabelosophy·
@stefan_arce anything they know will be based on people they’ve worked with before or known in their personal lives. if you’re working with someone online they will usually list on their profile or website if they have experience with chronic illness, so look for that. best of luck.
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Isabel Mya
Isabel Mya@isabelosophy·
@stefan_arce psychiatrist for that. if you have a psychological issue aside from MECFS then it might be worth a try. in my experience you need to be prepared to educate any mental health professional you work with as they aren’t given any training on MECFS or similar illnesses and usually
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Hanifah
Hanifah@muslimah_han·
@isabelosophy 100%. Also without the risk of permanently lowering your baseline.
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Isabel Mya
Isabel Mya@isabelosophy·
the most frustrating part of MECFS is PEM and the way symptoms are cumulative. I think if I just had fatigue without PEM and it was merely a question of pushing through the fatigue, I’d still be able to get more done than I can now.
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Isabel Mya
Isabel Mya@isabelosophy·
sad for my mother. I know it’s painful for her to see me suffering and I think she felt hopeful that Dr Taylor could help me, and she also waited months and paid several hundred to get blood tests that nobody else involved in her care is able to interpret the results of.
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Isabel Mya
Isabel Mya@isabelosophy·
in the dark and/or making promises she can’t keep. I’m so sorry to anyone affected by this, I know that doctors with any semblance of expertise in MECFS are hard to come by in the UK. my expectations are low enough that my personal disappointment is minimal but I feel very /2
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Isabel Mya
Isabel Mya@isabelosophy·
although she has provided some help, my family I have been very disappointed by Dr Taylor too for the same reasons described here. I understand she may have a backlog, but offering transparency about wait times would be the professional thing to do instead of leaving patients/1
Alba ࿐@AlbaDocherty

Reddit is awash with disgruntled Dr Claire Taylor patients who paid £400-£500 per visit, yet never received promised prescriptions, diagnoses, and letters. Word is, same thing happened at her last clinic, too. Some report being legally threatened by her husband. They are being chastised by some pwME for having the audacity to speak out against a "MECFS doctor". PSA: If a doctor asks you to sign an NDA, run away.

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Isabel Mya retweetledi
Meryn 🦇
Meryn 🦇@TranquityBase·
I feel like a lot of people fail to understand that JKR is not just a bigot She is an anti-trans ACTIVIST, she is actively using her influence & wealth to strip away rights and protections for trans people. She's not just passively holding her own views, she is dangerous
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Isabel Mya
Isabel Mya@isabelosophy·
my dad is on a work call in the room above me and I’ve just realised there is a nonzero chance his colleagues heard me excitedly talking to the squirrel outside my window just now
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Keşfet

@Annakwood @TanteRos @stefan_arce @muslimah_han @elonmusk @BarackObama @taylorswift13 @cristiano