Joe Leinbach

We’re thrilled to announce our partnership with @PearlHealth_ We’re bringing breakthrough support and specialized care to #Medicare patients and caregivers impacted by #Dementia. Learn more about how we’re transforming care through the GUIDE program. synapticure.com/press-release/…

Brian and Sandra are the epitome of hope. When Brian was diagnosed with ALS, he turned tragedy into action by launching @iamalsorg and leading a movement to find a cure. I’m inspired by these two—and after you hear their story at the @DemConvention, you will be, too.

Film profiles Brian Wallach's fight against ALS Watch the full video here: tinyurl.com/yfhdawmh @bsw5020

Join us in recognizing & supporting #caregivers during #CareWeek & all year long. The Guiding an Improved Dementia Experience (GUIDE) Model, launching on 7/1, helps caregivers of people w/dementia access resources + support. Let’s walk this path together: go.cms.gov/guide

In this study, a high proportion of individuals meeting clinical consensus criteria for Parkinson disease, dementia with Lewy bodies, multiple system atrophy, and pure autonomic failure had phosphorylated α-synuclein detected by skin biopsy. ja.ma/4awh8Wa

So excited for the partnership between @synapticure and @alsassociation. Here's to all of us impacted by ALS getting the care we deserve.

Every 8 seconds someone turns 65 years old in the United States. Tomorrow there will be ~11,000 more of us. There will be more Parkinson's. It is a disease of subtraction and not addition and that is why each day we need to work to 'add things to our lives' and to enrich our journey. Read his new book 'Winter Stars' about his own journey with Parkinson's and how he moved back home to care for his mom with Alzheimer's, who would live to age 105. amazon.com/Winter-Stars-e… #Parkinsons About Dave: Dave Iverson is a writer, documentary film producer/director, and retired broadcast journalist. He’s produced and reported more than 20 documentary specials for PBS, including his Frontline film My Father, My Brother and Me, which explored his family’s battle with Parkinson’s, and Capturing Grace, which tells the story of what happened when a group of people with Parkinson’s disease joined forces with a legendary New York City dance company. Dave was also a radio and television host for nearly forty years, first at Wisconsin Public Broadcasting and then at San Francisco’s NPR affiliate KQED. Following his Parkinson’s diagnosis in 2004, he became a founding member of the Michael J. Fox Foundation’s Patient Council. He still dreams of running in one more New York City Marathon. Winter Stars is Dave’s first book. He and his wife Lynn live in Oakland, California and divide their time between the Bay Area and Boothbay Harbor, Maine. They delight in spending time with their families and grandchildren. @FixelInstitute @UFHealth @ParkinsonDotOrg

ICYMI I wanted to share this quote by the current FDA commissioner. “We’re about to see a tsunami of therapies for a rare and ultra rare disease, and I don’t think any of us think the current pathways are optimal,” FDA commissioner Robert Califf said.

Last night I burst into tears when I saw that Brian posted this picture. There is so much grief in what has already been lost. Before we fell asleep I told Brian how sad I was and he said, "don't be, I'm still here." I am anchored by my husband's hope ❤️

When you have a #RareDisease like #ALS, #PLS or #Huntingtons, few neurologists have expertise in your disease, less know about clinical trials & almost none understand the unique mental health burdens in your disease. At Synapticure, we wanted to change that. #RareDiseaseDay 1/2

#RebelHealth is out in the world! Grateful to all the patients, survivors, and caregivers who trusted me with their stories. Let's shine a bright spotlight on the path forward! On sale now: mitpress.mit.edu/9780262048897/…

She was in her early 30s when she was diagnosed with ALS. Instead of letting it her get her down, she did this:

What a difference they are making. Thank you @sabrevaya and @bsw5020 for your courage, your passion, and your drive to move humanity forward. We are all so grateful to you!

Black Americans have a 2x risk of #Alzheimers & comprise 14% of the US population, but are less than 5% of #dementia trial participants. Dr. Amanda Fletcher is committed to changing this inequity. vist.ly/zkzx #Neurotwitter #MinorityHealth #BlackHistoryMonth

Innovation junkies have a thing for maps and discovery. Love this tribute to micromapping and deeply exploring the small worlds around us. noemamag.com/a-single-small…

This isn't just Brian's diagnosis, this is OUR diagnosis. And caregivers need care too. ~ @sabrevaya Join us tonight at 7 pm ET to learn about @synapticure's new Mental Health support team that's here to help patients & their families with #ALS,, #Parkinsons, #Alzheimers

.@Sethrogen and wife @IamLaurenMiller are the co-founders of Hilarity for Charity (@WeAreHFC) — which is characterized by a signature irreverence and commitment to bringing light and levity to those impacted by Alzheimer’s and related dementias. pasadenaweekly.com/sports/the-rog…

Join us and @DukeMBB in the fight against ALS with the inaugural Hoops4ALS games. 🔗 tr.ee/Hoops4ALS #H2P

Care coordinator Rebecca Andrews lost both sons, Ethan & John, to a #genetic form of ALS caused by a mutation in the #SOD1 gene. Rebecca's passion to help educate & care for people in the #ALS community inspires us every day. #EndALS #Hero #genetictesting vist.ly/nkmd

When we started @synapticure, our focus was on ALS as we knew the needs of the community from my lived experience. But the plan was always to expand to care for all neurodegenerative diseases. The first one on my list was Parkinson's as I lost my uncle to it.