Kirsten Axelsen (she/her)

As some #IRA provisions take effect for the first time in 2025, a DLA Piper assessment of how the number and types of #Medicare plans changed over the last three years poses potential considerations for policy makers: spr.ly/6010xi4y2 #LifeSciences #Insurance #Healthcare

Join Incubate and @DLA_Piper during #JPM2025 for a #biopharma and #healthpolicy panel featuring @nkjellson, @kjacny, @johnbstanford, and Gaurav Gupta. RSVP here: eventbrite.com/e/the-outlook-…

Coverage of Obesity Medications Can Make America Healthier (Again) realclearhealth.com/blog/2024/12/2…

The IRA And Post-Approval Clinical Research For Cancer Medicines aei.org/articles/the-i…

There is a pressing need for robust evidence to inform biopharmaceutical policy, @kjacny and co-authors write in Health Affairs Scholar. The article is part of a new series that explores financial rewards for new drugs and R&D investment. @ITIFdc bit.ly/48gciw8

If we import other countries' drug policy we also import their outcomes ... biospace.com/policy/opinion…

@Frank_S_David I appreciate you pointing out the transparency of methods... important to do in policy research

Excited to read this analysis of the IRA’s potential impact on cancer drug R&D — including the detailed, transparent methods! crai.com/insights-event…

Price controls on medicines save money for the federal government, but not necessarily for consumers washex.am/3bh1zIr

Join me on 5/23 for a @KFF virtual conversation on what the Biden Administration could do to address drug affordability. With other experts, we’ll explore the drivers of rising prescription drug prices and potential administrative actions to address them. us02web.zoom.us/webinar/regist…

@tigerlilycares @thatsdaria @archieallela @Maimah making sure everyone has insurance is a start, expand Medicaid where it hasn't been, require no cost sharing for detection beyond mammograph (eg MRI) for high risk women #TLCtransform

Q10: @kjacny @thatsdaria @archieallela @maimah What could be done at the #statelevel to address cost barriers to care for #TNBC detection? #TLCTransform

@tigerlilycares @Maimah @thatsdaria @archieallela CDC requires each state to publish a CCC targeted to their population, many states have mammography goals over 50 in a six state analysis only 1 had a goal to improve younger screening #TLCTransform

Q9: @kjacny @maimah What is a state level comprehensive cancer control strategy? @thatsdaria @archieallela How could state level #healthpolicy better address #TNBC and further #healthequity in this subtype? #TLCTransform

@tigerlilycares @Maimah earlier screening (directed through guidelines) could reduce disparities in outcomes between white and Black women by 57% #TLCTransform

Q8: @kjacny @maimah Given the higher risk associated with this subtype, are there guidelines specific to TNBC directing providers or health plans to screen people at higher risk at a younger age? #TLCTransform

@tigerlilycares @Maimah Some groups do American College of Radiology and the Society of Breast Imaging, federal guidelines permit younger screening but don't recommend #TLCtransform

@Maimah @tigerlilycares agreed, the National Early Detection Program only reaches 11% of eligible women, Comprehensive Cancer Control plans could have metrics for TNBC detection in at risk populations

@kjacny @tigerlilycares Agreed and it needs to be… which is why policy change is needed across the board. We know that Black women who are diagnosed with TNBC are 28% more likely to die than white women. #unacceptable #TLCTransform breastcancer.org/research-news/…

Q7: @kjacny @maimah Is data collected that designates breast cancer by sub-type, does it capture race, ethnicity or socioeconomic status? #TLCTransform

@tigerlilycares @Maimah @thatsdaria @archieallela American College of Radiology and Breast Imaging Guidelines call for heighted screening for Black women, should elevate to federal guidelines #tlctransform

@kjacny @Maimah @thatsdaria @archieallela This seems like a no brainer. We need to push for additional screening and testing to be covered for those with an increased risk of #breastcancer. #tlctransform

Q1: @maimah @thatsdaria @archieallela Prior to being diagnosed with #TNBC, did your healthcare provider discuss family history or genetic testing to assess patient risk for #breastcancer? #TLCTransform

@tigerlilycares @thatsdaria @Maimah @archieallela yet data is not collected broadly at state or federal level that measures subtype, need credible evidence and tracking #tlctransform

@thatsdaria @Maimah @archieallela credible sources are critical. There is so much misinformation online. #tlctransform

Q5: @maimah @thatsdaria @archieallela Women under age of 40 are nearly twice as likely to be diagnosed with #TNBC than women aged 50-64. How would you talk to younger Black women about breast health wellness and screening? #TLCTransform

@tigerlilycares Black women 2x as likely have TNBC vs white women, if only mammograms are available for women over 50 then Black women are less likely to get screened and treated appropriately => less equity in outcomes

Q6: @kjacny Why is access to preventive measures, such as screening and diagnosis, particularly important for health equity in outcomes for #TNBC? #TLCTransform