Kyle Connors #fALS

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Kyle Connors #fALS

Kyle Connors #fALS

@kylemace22

Girl dad x2. 7 yrs fighting ALS. Pats/Celtics/Bruins. Fighting ALS is easier than rooting for Kyrie 'You cant be neutral on a moving train'

Going to Lukin's Katılım Ocak 2010
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
Well we have been super careful for over 3 years, but omicron hit my house. Grateful we are up to date with vaxes and omicron is milder. If you are vaxed get boosted and be safe
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
Being a Celtics fan is absolutely miserable this year. Time after time they give me glimmer theyre good only to disappoint. Fcking brutal
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
Its beyond my comprehension how, a year after Trump and his cronies staged a coup, little has been done to prevent another coup and to protect our democracy.
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
Relying on your eyes to communicate isnt ideal when you are trying to tell your caregiver you have something in your eye 🙄
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Fantasy Life
Fantasy Life@MBFantasyLife·
So 👀 what are you buying with your championship winnings?
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Sarah Spain
Sarah Spain@SarahSpain·
You guys were right: Only Murders In The Building is a DELIGHT. Recommend to all. 😊 (The Wire is solo show so only two eps in - hubby falls asleep to much to wait up for him)
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Mike 🥪
Mike 🥪@DaddysHomeFF·
@kylemace22 Love you brother! ❤️ Now I gotta win this thing to get some more of those donations. Wish me luck! 🤞
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Mike 🥪
Mike 🥪@DaddysHomeFF·
You all are so amazing! #SFB11 has brought so much good to so many charities this year and I cannot tell you how much I appreciate y’all supporting my charity of choice. Love y’all! Thank you!!!! ❤️❤️
ALS ONE@alsone_official

Thank you @DaddysHomeFF for your strong support of #ALS research and care and to ALL who are donating - this is amazing and means the world to us! #EndALS

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Jeff Nelson
Jeff Nelson@1jeffnelson·
@kylemace22 I'm sorry. I don't know you in person, but you seem to be living your best life despite all the challenges, keep it up, you're an inspiration.
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
I wish I had a disease that offered even a sliver of hope. Feeling hopeless lately.
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
I should be happy for ph 3 participants, but Im more bummed @brainstormcell and those involved forgot about ph 1 and 2 pALS and everyone unlucky enough to be excluded from ph 3
Phil Green@pjgreen

⁦.⁦@US_FDA⁩ (⁦⁦@FDACBER⁩) listened! This #EAP will provide more #livingproof that #NurOwn works. Using cells from ⁦@BrainstormCell’s manufacturing partner, Catalent, will hopefully⁩ help get NurOwn to more people with #ALS sooner. ir.brainstorm-cell.com/2021-12-27-FDA…

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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
@wcs929 Thanks for the reply Walter. I use suction but the cough assist is too much for me now. I find it gives me anxiety
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Walter Shelton
Walter Shelton@wcs929·
@kylemace22 Kyle, do you have a cough assist machine and a throat suction machine. I use my twice a day and it helps my breathing issues.
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Kyle Connors #fALS
Kyle Connors #fALS@kylemace22·
Been fighting some congestion/head cold the past few days, and at times, the phlegm feels like its going to kill me. There are moments when I struggle to catch my breath and its scary as hell. I hate this disease
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Keşfet

@DaddysHomeFF @MBFantasyLife @Pat_Connors21 @PearlJam @asomers6 @SarahSpain @1jeffnelson @elonmusk