Lewy Body Society

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Lewy Body Society

Lewy Body Society

@lbsorg

We raise awareness, fund research and provide support. Lewy body dementia is the most common type of dementia you have never heard of. https://t.co/g6v8Pci4Q2

England,Wales,N.Irel,Scotland Katılım Nisan 2013
1.7K Takip Edilen5.4K Takipçiler
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Lewy Body Society
Lewy Body Society@lbsorg·
The Lewy Body Society is no longer active on this platform. We will not be posting or monitoring messages and comments. Stay up-to-date with us on LinkedIn, Bluesky, Facebook and Instagram or our website lewybody.org. Links to our other social sites are in the thread below  👇
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Lewy Body Society
Lewy Body Society@lbsorg·
The Lewy Body Society is no longer active on this platform. We will not be posting or monitoring messages and comments. Stay up-to-date with us on LinkedIn, Bluesky, Facebook and Instagram or our website lewybody.org. Links to our other social sites are in the thread below  👇
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Lewy Body Society
Lewy Body Society@lbsorg·
More connections at the International Lewy Body Dementia Conference #Amsterdam. Thank you to Rachel Thompson, Alison Killen and Allison Bentley - our Community of Practice. And Sylvia White and Maggie - who both have lived experience of Lewy Body Dementia. #ILBDC2025
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Lewy Body Society
Lewy Body Society@lbsorg·
Our Lewy List is calling on the Government to recognise our four priorities: ➡️The right for all people living with dementia to be treated with dignity and respect ➡️The right to early and accurate diagnosis ➡️The right for Lewy body dementia to be recognised as a distinct form of dementia with unique symptoms and challenges, different from Alzheimer’s ➡️The right not to be denied care home admittance on account of a Lewy body dementia diagnosis Please do sign: change.org/p/sign-the-lew… #Lewybodydementia #dementia
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ME Association
ME Association@MEAssociation·
Last year, the ME Association joined Age UK, Carers Trust, Carers UK, MDNA, Oxfam, Rethink Mental Illness and The Lewy Body Society @lbsorg to support Carers Week in June (as we will be doing this year!) As Lewy Body Society is one of the charities, we would like to share with you their petition to a) help increase its social reach and b) to encourage other people to consider adding their signature. Change petition here: change.org/p/sign-the-lew… More information can be found in the post below (as needed) #SupportingCharities #LewyBodyDementia #DementiaResearch #CarersWeek #CarersWeek2025
Lewy Body Society@lbsorg

Please sign and share our #LewyList petition which we will be taking to Westminster for the World Lewy Body Day. Your signature can make a monumental difference. Despite affecting an estimated 100,000 people in the UK, a diagnosis of Lewy body dementia is often missed due to poor understanding and lack of awareness in healthcare professionals. People with LBD face delays in diagnosis, don't receive the care they need, and their families don't get support. The knock-on effect is increased costs for the NHS. Research is woefully underfunded compared to other dementias, hampering the development of effective treatments and potential cures. We are calling on the UK Government to address these critical issues by improving professional training, increasing access to care, supporting families, and substantially investing in robust LBD research. Please sign this petition today and join us in advocating for meaningful change for those impacted by LBD: change.org/p/help-people-… #ShiningaLightonLewyBodyDementia #Lewybodydementia #dementiaresearch

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Lewy Body Society
Lewy Body Society@lbsorg·
Lovely to see our colleague Dr Maria Cecilia Fernandez from @LewyBodyArg at the International Lewy Body Dementia Conference in Amsterdam today. We are exhibiting posters today on the 18 years of Lewy Body Society impact by our CEO Jacqui Cannon and our founder Ashley Bayston's Lewy Body International: A coalition of Lewy body voices and action. Come over and see us! #Lewybodydementia #ILBDC2025 #Amsterdam @lewybodyint
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Lewy Body Society
Lewy Body Society@lbsorg·
Prof Ian McKeith, LBD superstar legend and great friend to LBS, on the progress of knowledge in the field over the past 30 years. His Lifetime Achievement Award is well deserved. #ILBDC2025 #LewyBodyDementia #dementia
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Lewy Body Society
Lewy Body Society@lbsorg·
Good morning from the International Lewy Body Dementia Conference 2025 in Amsterdam. Our founder Ashley Bayston and CEO Jacqui Cannon are raring to go. Great to see so many of our friends here. #ilbdc2025 #lewybodydementia #dementia
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Lewy Body Society
Lewy Body Society@lbsorg·
As the second World Lewy Body Day draws to a close for us in the UK, we are handing over to our sister organisations around the world. Thank you to everyone who has supported us and amplified our message. Together we will work to improve lives for people living with Lewy body dementia and their families. Please lend your support by signing, if you haven't already and if you have then share, our Lewy List petition to demand four basic rights: change.org/p/sign-the-lew… #WorldLewyBodyDay #LewyList #Lewybodydementia #Dementia
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