Lupus UK

Research results show the importance of COVID vaccination and a personalised approach for RAIRD patients 👉rairda.org/publication/re…

Nominate LUPUS UK (Charity No 1200671) for a chance to win £1,000 in the #MovementforGoodAwards The first draw of 2025 will take place on Monday, so please vote by midnight on Sunday 26th Jan: lnk.bio/s/f35db🔗 As a small charity, this grant will make a huge difference💜

Join us in March for our Virtual Dog Walk, an exciting new fundraising challenge for 2025!! For more information and to sign up, visit: lupusuk.org.uk/virtual-dog-wa… #Lupus #SLE #VirtualDogWalk #Fundraising

The University of the West of England (UWE), Bristol, is looking for individuals of ethnic minorities diagnosed with Systemic Lupus for a survey study. Your participation will help in developing suitable support for SLE patients in the UK. Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0x…

The University of the West of England (UWE), Bristol, is looking for men diagnosed with Systemic Lupus for a survey study. Your survey response will help develop appropriate support for SLE patients in the UK. Take part here: uwe.eu.qualtrics.com/jfe/form/SV_0x…

Amongst friends for lunch and an information sharing discussion today, thanks so much to @LUPUSUK for braving this chilly weather to join us in the #instituteinthepark #alderhey We hope you enjoyed it! #bettertogether #partnership #lupus #childhoodillness #lunch #eatc4children

The National Office is now closed for the holidays and will re open on 02/01/25. THANK YOU to our incredible fundraisers, volunteers, trustees, ambassadors, donors, and all who supported the charity throughout 2024 in helping us make a difference for people living with #lupus 💜

@JunePar15419961 If you are interested in taking part, please feel free to do so. If you have any questions, you can contact the researcher Bea on Bea.Payne@uwe.ac.uk (this is not research Lupus UK is running). Best wishes, Debbie (3/3)

@JunePar15419961 That's why they're now specifically advertising it to men (other post) & people from an ethnic minority (this post) to try to find more participants from those groups. (2/3)

Join over 9,000 people who have already spared 60 secs to take @WeAreSRUK's online symptom test. #BePartOfTheAnswer by helping to unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions. sruk.co.uk/testme

Spare 60 seconds to take @WeAreSRUK's online Raynaud's symptom test. See if you could have Raynaud's and #BePartOfTheAnswer in helping unlock potential breakthroughs in diagnosis and treatment for debilitating autoimmune conditions like scleroderma. sruk.co.uk/testme

What does good care & treatment for rare disease mean to you? The Rare Disease Quality Statement Project need your input to develop a set of quality statements for rare disease. Complete the survey on their site: rarediseaseqs.org Or read our FAQs: lupusuk.org.uk/2024/11/14/qua…

What is CAR-T cell therapy and what does it mean for people with lupus? You may have seen news articles about a new treatment called CAR-T. It's still in the research phase, with more trials starting soon. You can find out more in our FAQs post: lupusuk.org.uk/2024/11/08/car…

🤩 Since our 1st meeting in 2019, time has flown by! Fast forward to today’s meeting with 2️⃣ wonderful guest speakers helping us understand roles & holistic care in #lupus @mel_chieza 🙌 Thanks everyone who has joined us on this journey & shared the many faces of lupus! #Cardiff

It’s #BoneAndJointWeek and we’re calling for integrated care that supports people with MSK conditions. Living with chronic pain alongside mental health struggles like anxiety & depression is all too common. We need accessible, holistic care to improve wellbeing.#JoinedUpForJoints

@InfoAffair Thank you for your support!! 🤗

Thank you to all you have contributed so far, we are into week 2 of this fundraising campaign for @LUPUSUK and have reached 50% of the target. Read or contribute to support #LupusAwarenessMonth justgiving.com/page/the-urban… #Retweet #lupus #charityfundraiser #raisingmoneyforLupus

@Redtigger101 Thank you for your support! 💜

Thanks to donations made for my lettuce, bay trees and strawberry plants (+ a little top up from me!) - very happy to have just paid £50 donation to @LUPUSUK 👍🌱🥬🍓 nice to be able to send over during #LupusAwarenessMonth 💜 #Lupus #LongtimeLupie