Dalila

@lupuscyclopedia @oyemamautoimmun Wonderful to hear about the great success 👏🏻 That’s a lovely pic! With @DalilahK though ☺️🦋 Take care everyone.

Lupus2025 was a huge success! Not only were there fantasy presentations on new and better lupus treatments but also met lupus experts and advocates from across the world like ⁦@oyemamautoimmun⁩ Emma Halm from Ghana and ⁦@dalilatm⁩ from Mauritius.

It was a pleasure to speak @birdbathcharity on #Raynauds particularly at this time of year when people with Raynauds will be struggling with symptoms. Interested? Give it a listen👇🎧 @WeAreSRUK @raynaudsorg @Raynauds_UK @scleroderma Research studies posted below ⬇️

The skin — once thought to be a mainly passive barrier — can produce its own antibodies that fight off infections nature.com/articles/d4158…

Positive step forward to see #Lupus mentioned in the first #Wales Women’s Health Plan. The complexity of this disease and the resulting health inequalities make advances like this key for those living with lupus. ➡️On to the next steps! 🔗executive.nhs.wales/functions/netw…

It was great to hear @AlisonEBennett share the story of one of her constituents who lives with multiple RAIRDs in Parliament today #RAIRDaware

We are conducting a study looking at how AI should be implemented in healthcare in Wales. 🖥️ If you live in Wales or work as a healthcare professional in Wales, then we want to hear from you. cedar.nhs.wales/images/study-a… @Valuein_Health @DHCWales @BCS_South_Wales @lshubwales

@evemdsmith_eve @Maria @EATC4Children Congrats! 👏🏻🎓

Proud supervisor moment! Congratulations @Maria Hanif who graduated today after an impressive MRES year @EATC4Children: 🌟RCP Wolfson Intercalation award✅ 🌟2024 EULAR undergraduate student award✅ 🌟2 papers, 1 more to go! ✅ 🌟Distinction ✅ 🌟Best student on the MRes 👏👏😀

Women's health hubs for 'every part of Wales' bbc.in/4iqNW7m

🦋 Important #Lupus debate in Westminster Hall - Tues 10th Dec, 9:30am!Jim Shannon MP is raising rare autoimmune rheumatic diseases. This is our chance to be heard!📝 Want your MP to attend?bit.ly/lupus-template .Let's make our voices count! 💜#LupusAwareness #RareDisease

Detection of subtle changes #eyetest and powerful sourcing- this sounds very promising, especially if gets to #lupus and leads to damage prevention and early detection 🙏

From my #lupus experience, having access to a brand of hydroxychloroquine that you can tolerate is a key issue here too "Rheumatology patients seriously impacted by drug shortages, BSR warns" @limbicrheumUK @RheumatologyUK thelimbic.com/uk/rheumatolog…

What is the impact of social connections on lupus? Abstract #1503: In an NYC SLE cohort, greater social integration and support correlated with less pain, depression, disability, and frailty, while loneliness was linked to worse outcomes. @RheumNow #ACR24 #SDoH

@MyStateline 🙏 Beautiful news

Beloit woman defies death, lupus after giving birth trib.al/CACS8c5

Really important research on shared decision making in rheumatology! Many patients still don’t feel it’s a two way conversation @chroniceileen @ACRheum #acr24

🚨 @ACRheum's new summary guideline for screening, treating & managing #lupusnephritis (lupus-related #kidneydisease) offers evidence-based recommendations to help adults & children w/ #lupus receive the most effective care. Read more on our blog: buff.ly/4fDsoTd #ACR24

@CreakyJoints @chroniceileen Congrats! 👏🏻‘100 more to go’

🎉 100 essays! @ChronicEileen has reached an incredible milestone with CreakyJoints.org, and we couldn’t be more grateful. Eileen, your words have inspired countless patients and amplified the patient voice in ways that truly matter. Thank you for tackling the tough topics, sharing your heart, and being a powerful advocate. 💜 Read her latest: creakyjoints.org/about-arthriti… #RA #CreakyJoints #ACR24

Join #Mumpredict dissemination event 📣updates on research findings 🤰#MultipleLongTermConditions in #pregnancy 🖥️online event 🗓️26 Feb 2025 🕙1000am to 1530pm (GMT) 👉register eventbrite.com/e/mum-predict-…

💡Informative! Great learning from Prof. Valerie Sparks about the latest arthritis research at the Biomechanics and Bioengineering Research Centre VA @cardiffuni 💻🧬🤝using AI, genetics & virtual reality. Patient advisory reps have played a key role in shaping research🌟

✅Are you healthy? ✅Do you have autoimmune or rheumatic disease? ✅Are you over 18 yrs old? ✅Do you have 15 min? If you fulfil any of the above, please fill in this anonymous survey to help improve lives of people living with chronic diseases, thanks 👉🏽surveymonkey.com/r/TV6JF75

@Lupusreference @LupusResearch Exciting! 🦋🚀

✅ VERY FULL ROOM for the opening of @LupusResearch Alliance's FORUM FOR DISCOVERY, where 200+ investigators will discuss top-level #Lupus research 👍 More than 259,000,000 US dollars has been funded so far as research grants. Check the website: lupusresearch.org