MGupta PhD (she/her) 🌻🦓

Thank you to @US_Pain for including me in this year's inspirational Disparities issue! This interview was first of several steps I've been challenging myself to take in order to be a better ally to others (and myself). Stay tuned! #DisabilityPrideMonth invisibleproject.org/manisha-gupta-…

Your online complaint form doesn't work just like the rest of the vfs website and you charge $2.50/min to talk to customer service. You also threaten to blacklist applicants who complain about unlawful charges to their credit card companies.

@VFSGlobal @vfsglobalcare @ConsulateIndia - outsourcing OCI / visa to VFS global is a horrendous practice and has wasted months of my life

@VFSGlobal @vfsglobalcare I've wasted close to 2 months' time trying to process an OCI card for India off your non-functional website, including a non-functioning complaint form. Asking us to pay $2.50 / minute to speak to a live representative is horrendous @ConsulateIndia

@TheShoeLady33 @dysclinic Agreed. Ironically, the complex and chronically ill have to be able to pay out of pocket to see the right doctors these days, and most of us with no income and significant disability (Medicaid etc.) can't afford it!

@dysclinic Most people will NEVER have the Luxury of seeing a physician like you

As a neurologist who sees #Dysautonomia and #LongCovid patients, but also some functional neurologic disorders #FND patients, I can make a clear distinction between the diagnoses based on history and physical exam findings. We summarized these clinical distinctions in Table 2 in our recent paper. However, it's first important to emphasize that most patients with Long Covid do not have FND; most likely, only a small minority has FND as part of Long Covid. What percentage has FND among Long Covid patients is unknown and why a non-biased study conducted by neurologists who know what is and isn't FND would be informative. mdpi.com/2075-4426/14/8…

With each year's #PainAwarenessMonth comes the bittersweet confirmation of another #CPP diagnosis women are too often dismissed and gaslight for. Thankful to still have healthcare in DC, where the choice for a hysterectomy was my own. #EndometriosisAwareness #WomensHealth

Thank you to @US_Pain for including me in this year's inspirational Disparities issue! This interview was first of several steps I've been challenging myself to take in order to be a better ally to others (and myself). Stay tuned! #DisabilityPrideMonth invisibleproject.org/manisha-gupta-…

omg the aurora borealis in dc is beautiful 😍 🤩

CHE CAB member, Manisha Gupta, PhD, is using her personal experiences as a woman of color with multiple #ChronicIllnesses along with her background in social psychology to address implicit bias and discrimination in healthcare. Learn more! 🔗 loom.ly/KZNNAWc

It’s unfortunately been challenging to keep up with online advocacy when digital screens are one of your #Migraine and #mTBI triggers, but I’m still here and helping fight the good fight as I can! #HealthEquity #ImplictBias #WomensHealth #RacialEquity publichealth.jhu.edu/center-for-hea…

@ibdgirl76 Yes

We are working on a podcast series about stigma in pain care. Have you felt stigmatized as a pain patient in our healthcare system? Would you be willing to share your story?

@jdibon And ironically, all the hard work you put into prepping for the visit so you seem prepared and informed (and hopefully are less likely to be gaslit) is often just interpreted as exhibiting “overly anxious” behavior 😂🙄

Getting ready for a medical appointment feels like getting ready to go to trial. Prepping evidence, defending and hoping to convince the jury. No wonder EDS /HSD patients have appointment fatigue. #hypermobility

@purplemamabear Ah I just saw the one day NIH day agenda when I googled. Where can I find the full week activities?

@mguptaphd Love 💕 to meet you!!!! Always love #RareDC2024 week!

Leaving on a ✈️ tomorrow for #RareDC2024! Excited to see everyone, #learn & #advocate!

That ironic, bittersweet moment of excitement, relief and accomplishment when you see #XX “hysterical woman” diagnosis finally validated and documented in your medical chart as the serious, disabling physical condition it is. #NEISVoid #CPP #ItsNotAllInYourHead #TightLipped

@DrSeanMackey @PAINthejournal @S_Haroutounian Would love it if there were more identifiable ways for patients with relevant research backgrounds to become involved in these collaborative / PAR projects!

I'm excited to share our collaborative paper published in @PAINthejournal and led by @S_Haroutounian : bit.ly/3U0cl9V Our work highlights a significant shift in clinical pain research, emphasizing the crucial role of patient engagement throughout the research process. Traditionally, patients were merely subjects in studies, but we now see the immense value they bring as active research team members. We met with patient partners and international representatives from various sectors to develop consensus recommendations for effectively involving patients in all stages of clinical pain research. Our article outlines these recommendations, stressing the importance of meaningful and authentic patient involvement. This approach isn't just a token gesture; it's about making clinical pain research more relevant and impactful by centering it around the patients' experiences and needs. Our findings indicate that when patients are actively involved in research design, conduct, and dissemination, the outcomes align more with their needs and perspectives. This shift is not only beneficial for patients but also enhances the overall quality and applicability of the research. As researchers, we're learning that incorporating patient insights leads to more patient-centered and meaningful studies. The paper is a call to action for researchers in the field of pain research to embrace patient engagement as a fundamental aspect of their work, ensuring that research outcomes truly reflect patient needs and improve clinical practice.

Many patients with psychiatric diagnoses in my practice have neuropsychiatric manifestations of systemic disease. Treat the underlying systemic disease, and the neuropsychiatric manifestations get better. #NeuroTwitter

Has anyone experienced a “decidual cast” before? (google at your own risk). 😬 Incredibly sad that it often takes this kind of physical “proof” to have women’s debilitating menstrual / pelvic pain believed. #NEISVoid #CPP @TightLippedOrg

@dysclinic What also drives me crazy about the claims of solely practicing “evidence-based” medicine is the lack of acknowledgment that the data we DO have is predominately conducted with Caucasian / white male samples, and/or otherwise still subject to biases. No data is perfect.

Often I have colleagues not prescribing anything to their patients because they are waiting for data to show that something is effective. I too am a lover of evidence-based medicine, but if we had to wait for data to treat #Dysautonomia, #MECFS and #LongCovid, we'd prescribe ZERO medications to patients because there are no FDA-approved therapies for these conditions. #MedEd #artofmedicine #MedTwitter

I often see very sick and functionally impaired patients with #Dysautonomia, #MECFS and #LongCovid whose doctors tell them that their condition is "benign." I've always found this word problematic when it comes to complex and disabling #chronicillness. Yes, it's great that the patient is not dying anytime soon, but if you're 25 and can't leave the house or bed, we can't say "it's benign." Physicians have long communicated with patients from the position of their own health and power, using terms that make sense to physicians. Hopefully, with changing times and combating stigma of #Disability, physicians can find a better and more reasonable language to communicate with patients, incorporating the patient's perspective and lived experience. #MedEd #BelievePatients #PatientCare

@beth_morton @bennessb Yes, under the same definition of disability you cited. The dizziness, vision disturbances, cognitive dysfunction, etc. during a migraine attack can prevent me from r understanding and communicating effectively with others, amongst other impairments.

A1.4. Last thought, for those with #migraine who might not identify as disabled or who find the disabled/not disabled binary too limited, I encourage you to read @bennessb’s essay on dynamic disability. #MigraineChat medium.com/age-of-awarene…

Q1. Do you consider yourself disabled due to #migraine? If you’re comfortable sharing, please explain why or why not. For those who do, at what point did you realize migraine was a disability for you? #MigraineChat