A nonprofit dedicated to global Pediatric Epilepsy awareness, education and advocacy to help families get an urgent diagnosis and the highest level of care.
This article captures two parents' unwavering determination and underscores the importance of early intervention and advanced surgical options for drug-resistant epilepsy.
Please take a moment to read about Mora - the glass-half-full girl.
bit.ly/3GFVQrN
"Bailey spent four days in the hospital recovering, then headed home. 'I haven't had any partial seizures or big seizures since the surgery,' she said. 'So far, it's worked.'"
Read the full article here: bit.ly/3nbK6a3
Epilepsy is not given the attention it deserves given how prevalent and dangerous it is. The federal government spends significantly more on diseases that affect fewer people and are less catastrophic. #awareness
"Alivia Jackson, almost 6, has been seizure-free for nearly a year, thanks to the right epilepsy medication and the care of her medical team at Atrium Health Levine Children’s."
To read the full article visit: bit.ly/3QnnrC3
“Telemedicine must be applied equitably, and our study also showed that families of color and socially vulnerable patient groups may have lower access to telemedicine visits.”
To read the full article visit: bit.ly/3B4zQ6O
"Having to explain what Dravet is while you're in an emergency situation and why you desperately need an ambulance for your child, adds a whole other layer of stress.”
While this article is specific to Dravet Syndrome, many epilepsy parents have had a similar experience.
💖 Happy #GivingTuesday! Mickie's Miracles believes in celebrating generosity daily. What's your special gift? Whether it's time, a smile, or support for a cause, let's inspire positive change together. 🤝
We know our community of providers — ranging from parents to grandparents to trained medical providers — give, give and give some more.
So on this #MentalHealthMonday we thought we’d check in and remind you to take a moment to give to yourself too.
#EpilepsyAwarenessMonth
Today and every day, Mickie's Miracles is thankful for the strength of warrior babies and the love of their amazing parents.
We wish our community a Thanksgiving filled with love, warmth, and countless blessings.
Thank you @BrainRecoveryP for your excellent YouTube series “Let’s Talk About Epilepsy Surgery.” We strongly encourage parents considering surgery for their child to review the series!
#EpilepsyAwarenessMonth
What are some things you do to keep your home safe for your child suffering from epilepsy? Share some of the measures you take in the home and your vehicles for safety to help benefit the Mickie's Miracle's community!
#EpilepsyAwarenessMonth
Be sure to follow your doctor's advice when pregnant. Although epilepsy can happen for any number of reasons, making sure you get proper nutrition and follow your doctor's orders will greatly limit the chances of your baby suffering from epilepsy.
#EpilepsyAwarenessMonth
Saluting our nation's heroes this Veterans Day, with special gratitude to Mickie's father, Gabe Griess, who proudly served in the Air Force.
Your courage echoes in our hearts. 🇺🇸 Thank you, veterans, for your unwavering sacrifice and dedication.
The entire month of November is Epilepsy Awareness Month and it gives all of us in the epilepsy community a chance to come together and raise awareness of how rampant and dangerous epilepsy really is.
#EpilepsyAwarenessMonth
When Mickie was diagnosed with catastrophic epilepsy #InfantileSpasms at only 3 months old, not a single medical professional educated (warned) Kristie on the increased risk that she could die in her sleep from SUDEP (Sudden Unexpected Death in Epilepsy).
#EpilepsyAwarenessMonth