themnddiaryproject

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themnddiaryproject

themnddiaryproject

@mnddiaryproject

Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.

University of Stirling Katılım Ekim 2021
307 Takip Edilen131 Takipçiler
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OfficialCAHPR
OfficialCAHPR@OfficialCAHPR·
We are recruiting more CAHPR/@NIHRresearch Champions! Are you an AHP interested in Research and Innovation? We are recruiting to fill roles in several Clinical Research Network (CRN) areas. Role description: bit.ly/3Xlmc8R
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themnddiaryproject
themnddiaryproject@mnddiaryproject·
@mndresearch Apologies if it's been done already and I've missed it but I'd love to read a blog post from the people living with MND/ALS who attended the symposium
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MND Research
MND Research@PremiumXRemark·
Did you attend #alsmndsymp? Would you like to write a short blog post or chat to use in a video interview about your research and Symposium experience? We want to hear from you! Email us on research@mndassociation.org 📨 We would be delighted to work with you! 🙌
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themnddiaryproject
themnddiaryproject@mnddiaryproject·
I'm looking for family/caregivers of people living with #MND in the UK, who would be willing to share their experiences of coping with the challenges MND has brought into their lives. Either in an online group or an individual interview with me. DM for info. Please share.
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themnddiaryproject
themnddiaryproject@mnddiaryproject·
@_bethburgess @AcademicChatter Hi Beth, I've been thinking about this in my work. Sorry can't think of any papers right now. I think these terms are misleading. Perhaps what we should be doing as researchers is shifting the ways we communicate with people to better meet their normal ways of communicating
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Eat Your Catfish | documentary
Eat Your Catfish | documentary@EatYourCatfish·
Happy to announce we'll be at the @leedsfilmfest Nov 10 & 11, as part of the Disability Futures section with a panel discussion following the first screening.
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themnddiaryproject
themnddiaryproject@mnddiaryproject·
Thanks @mndresearch for the opportunity to tell people about our research. @Emma___France @FionaHarris6 @StirUni @UniWestScotland
MND Research@PremiumXRemark

Over on the blog today @nicola_glennie talks about her research into the experiences of people living with #MND and factors which may contribute to them feeling a lack of control. She also discusses how her work could improve future care. Read more ⬇ mndresearch.blog/2022/10/20/reg…

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MND Scotland
MND Scotland@MNDScotland·
📢 Today we have launched our MND: What Matters survey across Scotland. We want to hear your #MND experiences to help shape our work and how we develop as a charity. mndscotland.org.uk/latest/news/na…
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MND Campaigns
MND Campaigns@mndcampaigns·
Our friends at @EuansGuide are running their 2022 Access Survey. The survey asks disabled people what's good and not so good about access at places they visit & raise awareness of access needs. If you are living with #MND, please consider taking part ⬇️ euansguide.com/get-involved/a…
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themnddiaryproject
themnddiaryproject@mnddiaryproject·
I'm looking for people who care for someone living with #MND who may be interested in taking part in research. Either in a group session or an individual interview to tell me about their experiences of coping with the challenges MND brings to life. Message for more info.
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themnddiaryproject@mnddiaryproject·
@mndresearch Thank you for sharing. I'm also looking for family/carers of people living with MND share their experiences on coping with the challenges MND has also brought to their lives. This can be either in a group session or as an individual interview with me. DM @mnddiaryproject for info
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Keşfet

@jennagregory488 @NEAnatomist @MathewHHorrocks @NIHRresearch @mndresearch @StirUni @preston_jenny @MNDScotland