Michael Boyle

@G17Esiason Wonderful news Gunnar! A true reason to celebrate!

A moment of personal pride. Hit my highest pulmonary function test — at 30y.o — since sophomore year of high school about 15 years ago.

Cystic Fibrosis Foundation and Longwood Fund Launch CF Incubator cff.org/About-Us/Media… via @cf_foundation

Must reading on a path to national recovery from two former FDA commissioners and Johns Hopkins Pandemic Experts: National coronavirus response: A road map to reopening aei.org/research-produ… via @AEI

While addressing COVID-19 we will also continue to work on the many other challenges that people with CF face. cff.org/News/News-Arch…

In case you haven't already seen this! Updated guidance yesterday for CF and COVID-19 from CFF. cff.org/Letter-From-Pr… via @cf_foundation

We have been continually monitoring COVID-19 developments and CDC guidelines, plus consulting with CF infectious disease experts to provide up to date information for those with CF. cff.org/Life-With-CF/D…. Stay cautious. Stay safe.

‘Tis the CFF chapter annual meeting season! Have had wonderful evenings with the NYC and MD CFF teams/community already, and headed to Boston this week for Mass/RI chapter meeting on Wed night. Nothing better than being together with the CF community! facebook.com/events/4347402…

Excited about all that has been accomplished in CF but now laser focused on what lies ahead! cff.org/fiveyearplan. #cffstrategicplan

Happy 2020! Hoping everyone had a restful and re-energizing holiday break and is now ready to charge into the next steps toward curing CF!

#MyCFHope (and goal) is that continued aggressive research will lead to effective therapy for EACH AND EVERY PERSON WITH CF! 100% #TeamCF

30 years ago this month CFF-funded researchers discovered the CFTR gene, making possible the amazing breakthroughs that will lead in the near future to effective therapy for over 90% of people with CF. #TeamCF cff.org/Get-Involved/A…

Awards for Infection Research Initiative cff.org/Research/Resea… via @cf_foundation

A significant commitment by CFF to help support Arcturus develop inhaled RNA therapy. Still early, but this approach to therapy would benefit people with CF no matter what their mutations - something we absolutely need! #TeamCF globenewswire.com/news-release/2…

The CFF Science Team is headed to Alabama this week to meet with the SRI/UAB team on their CFF-sponsored program to develop new therapies for those with Nonsense ("X") Mutations. A tough nut to crack, but over 750,000 compounds screened to date and many more on the way! #TeamCF

Companies with new ideas to treat CF infections should seek a Therapeutics Development Award: cff.org/Research/Resea… via @cf_foundation

Infection Researchers! Spread the word that CF is the place to bring your best ideas: Awards for Infection Research Initiative cff.org/Research/Resea… via @cf_foundation

CF Foundation Announces 2019 Impact Grant Recipients cff.org/News/News-Arch… via @cf_foundation. #TeamCF

Congratulations to Vertex for their submission today of the new drug application for the triple combination tezacaftor/elexacaftor/ivacaftor to the FDA. Grateful for the many members of the CF community that have participated in trials and made this application possible! #TeamCF

Another great planning meeting for #BreatheCon Mark your calendar for Sept 20! @CF_Foundation @CFF_DC #cysticfibrosis

Did you know that at the Senate press conference last week on the importance of protecting insurance for individuals with preexisting conditions, 5 of 47 senators featured stories of people with CF? Amazing! Mary Dwight and the CFF advocacy team are getting it done! #TeamCF