Cure NF2 Foundation UK & Europe
2.9K posts
Cure NF2 Foundation UK & Europe
@nf2biosolution1
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
UK & Europe Katılım Mart 2021
452 Takip Edilen472 Takipçiler
Cure NF2 Foundation UK & Europe retweetledi
Listening to your body is not a sign of weakness. It is an important part of symptom management.
Learn more: vestibular.org/article/coping…
#VestibularDisorders #Dizziness #Vertigo #VestibularMigraine #PPPD #VestibularAwareness #SummerHealth #VeDA
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CamRARE's #RAREsummit26 is going global!
Can't make it to Cambridge on 7 Oct 2026? Join online with live-streamed talks, networking, a virtual exhibition and posters via Swapcard, interactive Q&A and polls via Slido.
Tickets: raresummit26.eventbrite.co.uk/?aff=mediapart…
#RAREsummit26 #RareDisease
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CamRARE’s #RAREsummit is back for 2026 and we’re excited to be media partners!
If you work across rare science, healthcare, research, innovation, policy, funding, advocacy or live with a rare condition, this is the place to connect, collaborate and drive progress
Date 7 Oct 2026
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Behind Every Diagnosis Is a Person, a Family, a Fight
Blogs by real people writing about living with NF2-related schwannomatosis. Everything from Avastin Diaries , NF2 science, fundraising and patient experiences!
You can read about them here -----> curenf2.org/uk-europe/cure…
#NF2
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The effectiveness of targeted therapy in the treatment of patients with neurofibromatosis type 2-related schwannomatosis and vestibular schwannomas: A systematic review pubmed.ncbi.nlm.nih.gov/42453176/
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From clinical suspicion to molecular detection of low-level mosaicism in NF2-related schwannomatosis via ultra-sensitive duplex sequencing
pubmed.ncbi.nlm.nih.gov/42432501/
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Our message is simple. Amplifying our mission to:
Fix the Gene, Cure NF2, Change Lives
Join Us in achieving this.
Donate here:
peoplesfundraising.com/donation/nf2-b…
or (USA/Canada/Europe)
curenf2.org/donate/
Fixing the Gene & change lives
#endNF2 #NF2 #NF2Schwannomatosis #schwannomatosis
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Cure NF2 Foundation UK & Europe retweetledi
Performing cochlear implantation immediately after #VestibularSchwannoma resection is feasible and offers long-term functional benefits for most patients. #Neurotology #CochlearImplant ow.ly/VsiC50Zk9eJ
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Behind Every Diagnosis Is a Person, a Family, a Fight
These are not case studies. They are real people children, parents, friends, warriors — living with NF2-related schwannomatosis. Their stories are the reason Cure NF2 Foundation exists.
Read here curenf2.org/patient-storie…
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Development and Initial Validation of the Quality of life Evaluation in NF2 -related Schwannomatosis Trials (QUEST) Assessment
pubmed.ncbi.nlm.nih.gov/42369469/
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Family of drugs used for treating muscular dystrophy could improve brain tumour treatment - University of Plymouth
plymouth.ac.uk/news/family-of…
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Reading real life stories about how NF2 affects people help others to understand why we need better treatments. Please help us to make that happen by donating to research, sharing your story & raising awareness
#endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN
#NF2support
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Small Charity Week amplifies, supports and connects small charities right across the UK.
Small Charity Week is a campaign to empower the UK’s small charities to have an even greater impact on society, and to address the challenges they face.
#smallcharityweek
#endNF2 #NF2
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