He also has his own branded merchandise available to buy and we are collaborating together to increase awareness
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NF2 BioSolutions UK & Europe
2.8K posts
NF2 BioSolutions UK & Europe
@nf2biosolution1
Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
UK & Europe Katılım Mart 2021
456 Takip Edilen477 Takipçiler
Delighted to introduce our new team member, volunteer & Ambassador, Michael Archer.
Michael is an influencer on instagram at @nf2.arch (give him a follow) he raises awareness of NF2, connecting many others around the world, sharing their story one at a time with "Voices of NF2"
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Fundraising News
TeamImmie are taking on the Nine Edges Challenge in May to mark NF2 Awareness Day raising money for 2 charities @OscarsCharity & @nf2biosolution1
Support/donate here:
justgiving.com/crowdfunding/m…
We wish you the best of luck #ENDNF2
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We are looking back at the amazing fundraising over the past few years every Friday in our "Fundraiser Friday" posts
Feeling inspired? Check out the hub for your fundraiser -peoplesfundraising.com/hub/nf2-biosol…
Want to take part in the Big May 5K
Register here
forms.gle/bBULY6wHHH7LYq…
#endNF2
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Fundraising News
Fun on a friday with the Ward family charity Axe throwing evening in May to mark NF2 Awareness Day
If you are in the area (Nottingham) & would like to take part then you can message us to reserve your spot
Or you can support here
peoplesfundraising.com/fundraising/ax…
#ENDNF2
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Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: 24th March 10.30am GMT
Have a chat, say hi or just enjoy the company - the choice is yours
Sign up here: forms.gle/Rx5H75g7PomZ7p…
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On 11th march, our lead Clare and COO Jo attended the @braintumourrsch - members workshop which brings together scientists, clinicians, and funded research teams from across its Centres of Excellence.
Always a lovely day to meet other charities
#endNF2 #NF2awareness #NF2
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More than a language: culture, community and belonging!
Sign Language Week is a flagship awareness week for British Sign Language and Irish Sign Language, celebrated every year in March
We aim to be sharing some posts to mark #slw2026 as many in the NF2 community are deaf/HOH.
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The Big May 5K A NF2 community charity fundraising event
Date: Sometime in May - you decide!
Location: You decide!
Distance: 5K, want a challenge? Do more, too much, do Less
Cant run? walk, jog, scoot or complete how ever you choose!
Sign up today!
forms.gle/YD2aicVT2MW6DN…
#ENDNF2
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Happy Mothers Day to all the mums out there - this is in recognitions of Sign Language week that starts tomorrow
#SLW2026 #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis
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"Fundraiser Friday"
Need inspiration to raise funds for NF Awareness month and NF2 Awareness day (22nd May)
Feeling inspired? Check out the hub for your fundraiser peoplesfundraising.com/hub/nf2-biosol…
Want to take part in the Big May 5K ?
Register here -- forms.gle/bBULY6wHHH7LYq…
#endNF2
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The viewpoint of a Clinical Psychologist! @NfPatients
Excellent interview with Dr. Louise Robinson is a Consultant Clinical NF2 Psychologist who works at Manchester University Hospital Foundation NHS Trust and The Christie Hospital in Manchester.
nf-patients.eu/magazine/how-t…
#endNF2
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Brain Tumour Awareness Month shines a light on all types of brain tumours — including benign (non‑cancerous) brain tumours - The type generally associated with NF2, which can still have serious effects because they grow inside the skull and press on important brain structures.
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Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome)
Date: 24th March 10.30am GMT
Have a chat, say hi or just enjoy the company
Sign up here: forms.gle/Rx5H75g7PomZ7p…
WE WILL BE EXPLORING MEDITATION & WELLBEING
#endNF2 #NF2awareness #NF2
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Some rare diseases become widely recognised while others remain almost invisible. It usually comes down to a mix of social, scientific, & economic forces that shape what the public hears about.
Awareness matters enormously in rare disease
#endNF2 #NF2awareness #NF2Schwannomatosis
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March is Brain Tumour Awareness Month
Raise awareness, educate the public
NF2 is categorised by benign tumours (vestibular schwannoma, schwannoma, meningioma and ependymoma)
Effects of benign tumours can be devastating, life changing and life threatening
#endNF2 #NF2awareness
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