@ohmcharities

@ohmcharities Thank you so much! Looks fantastic. We're sure it will help Lou to be even speedier! 😊 🏃

@HorseWorldTrust running vests for the Great Bristol Run this weekend!

That time when @KensingtonRoyal came to tea to give me my Damehood! #surreal @royalmarsden @CR_UK @bowelcanceruk @BowelbabeF

@sophdoeslife Another person lost to brain cancer so young 😞 brain tumours are the biggest killers of under 40s yet gets minimal goverment funding. Its so unfair 💔

My very rare disease called LMNA-CMD only affects a few hundred in the world. It progressively weakens all skeletal muscles, breathing muscles, heart defects can occur, spine deformities occur and joint contractures. #RareDiseaseDay #rarediseaseawareness #LCMD @rarediseaseday

@Cure4Carmela @MDUK_News They are so so lovely!

Show your rare with one of my #rareNroar clothing items. 20% from each item goes to medical research in to my rare condition called LMNA Congenital Muscular Dystrophy with @MDUK_News Order from our suppliers @ohmcharities via this direct link. ohmcharities.org.uk/shop/carmela-s…

It really can!

@KatiePiper_ @KPFoundation Just so so so deserved, Katie ♥️

WOW ✨ Katie ‘Kate’ Piper OBE. This is without a doubt one of the happiest days of my life 🤍 I am so honoured to be recognised on the Queen’s New Years Honours List for Services To Charity & Burns Survivors. This OBE is all of us. ❤️ @KPFoundation

It’s The Big Give Week where any donations you pay in for MDUK through the Big Give will double! Head over to the Big Give from 12pm today to donate but don’t delay, you only have until 7 December. Visit - bit.ly/3rl7vGg

Outside @ENGINE_UK looking fabulous #ripKiyanPrince would be blown away if he could see whats happened since his murder where Hannad Hussain thought he rid the world of my son BUT Kiyans legacy lives on generations of young peoples lives inspired changed & saved cos @TheKPF work

These!!! They’re wonderful!!! Rare n Roar!

Winter cold weather is on the horizon so grab yourself a warm Rare N Roar funky hoodie and woolly hat from @ohmcharities whilst giving hope to others living with a life-limiting progressive muscle wasting disease as 25% of each sale goes to medical research with @MDUK_News #LCMD

Any high profile celebs able to help kick-start my DECEMBELL Challenge! Please help me raise vital awareness for Muscular Dystrophy UK @MDUK_News Many adults and children with MD have little or no muscle which means they can't even lift their arms. #musclesmatter #LCMD

@stephenfry Haha!!

@stephenfry Caramel Bunny! I had no idea!

This #WorldMentalHealthDay we are using our voice to spread the word about the people who are disproportionally affected by mental health problems; people from racialised communities, young people, and people living in poverty.

We’re turning London orange! 🧡 All smiles from #TeamOrange… keep going! #EveryStepCounts #MusclesMatter #LondonMarathon

We want to say a huge thank you to everyone who attended our #MicroscopeBall last night at @LondonHiltonPL. It was a truly memorable night, and thanks to you, we have raised an incredible £328,000 that will help fund groundbreaking research into muscle-wasting conditions!

So proud of all the players @QPR right now!!! 🥳🥳