phaware®
8.5K posts

phaware®
@phaware
Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️
[email protected] Katılım Haziran 2014
8.7K Takip Edilen8.6K Takipçiler

For PAH patient, Eric Borstein, walking started as a way to survive medication side effects. Mental health has reshaped his recovery and become a lifeline he believes should be prescribed alongside life-saving therapies. @phaware podcast ep 573 @teamphhope medium.com/p/im-aware-tha…
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We're proud to partner with @MSDInvents on the Outnumber PAH campaign, featuring real stories from people with pulmonary arterial hypertension (PAH) to shine a light on the everyday realities of living with this rare disease. #MSDPartner
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Heart works - phaware® The New Pulmonary Hypertension Mobile Research & Resource App Connecting the Global PH Community Through Innovation, Education, and Lived Experience. Get the newly updated app featured at #ATS2026 RESPIRATORY INNOVATION SUMMIT phaware.global/heartworksapp

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Global Collaboration. Unified Purpose. The Heart Works - @phaware app is built on a foundation of collaboration with world-class partners, making it one of the most advanced resources for the PH community worldwide. Get the updated app today: phaware.global/heartworksapp

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Don’t Let PH Ground You: A PH Travel Playbook. When pulmonary hypertension patient, Nicole Dempsey was diagnosed she refused to stop living. Hear how she keeps traveling, raising her family & choosing freedom over fear. @phaware podcast ep 572 @phacanada phawarepodcast.libsyn.com/site/nicole-de…

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We're thrilled that @phaware will be featured at #ATS2026 RESPIRATORY INNOVATION SUMMIT showcasing our HEART WORKS - PHAWARE® Mobile Research & Resource App. Please join us at Poster Space: 175 in Orlando May 15 and 16. Get the app: phaware.global/heartworksapp @atscommunity

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Don’t Let PH Ground You: A PH Travel Playbook. When pulmonary hypertension patient, Nicole Dempsey was diagnosed she refused to stop living. Hear how she keeps traveling, raising her family & choosing freedom over fear. @phaware podcast ep 572 @phacanada medium.com/p/im-aware-tha…
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From a devastating diagnosis to a lung transplant that changed everything, Florin Dumitrescu shares how mindset and persistence carried his family through their darkest moment and transformed into advocacy for PH patients across Europe. #WorldPHDay2026 phawarepodcast.libsyn.com/site/episode-5…

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Florin Dumitrescu on how mindset, persistence, and community carried his family through their darkest moment and how survival transformed into advocacy for pulmonary hypertension patients across Europe. @phaware podcast ep 571 @EuropePHA #WorldPHDay2026 medium.com/p/im-aware-tha…
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All this May on "I'm Aware That I'm Rare @phaware podcast... All-New dynamic stories from PH patients, caregivers and medical professionals from around the world.
Like, Subscribe and Follow us at: phawarepodcast.com

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She’d Never Been Sick - Until a Rare Disease Hit Like a Brick Wall. Terri Keplinger shares how denial turned into purpose, and how she transformed her fight into advocacy, support, and a mission to help others get diagnosed before it’s too late. phawarepodcast.libsyn.com/site/episode-5…

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🎙️April phaware® Podcast🎧Recap: Conversations that highlighted a central theme: in the world of rare disease, preparation, awareness, and community can transform even the most unexpected diagnoses into stories of strength and purpose.
ow.ly/3npu50YSCPj

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She’d Never Been Sick - Until a Rare Disease Hit Like a Brick Wall. Healthy one day, fighting for breath the next. Hear how Terri Keplingerturned a devastating diagnosis into a mission to help others get diagnosed sooner. @phaware podcast ep 570 medium.com/p/im-aware-tha…
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We're thrilled to announce @phaware will be featured at #ATS2026 RESPIRATORY INNOVATION SUMMIT showcasing our HEART WORKS - PHAWARE® Mobile Research & Resource App. Please join us at Poster Space: 175 in Orlando May 15 and 16. Get the app: phaware.global/heartworksapp @atscommunity

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Dear PHriends... Help us get a @GreatNonprofits 2026 Top-Rated Award, write a review of your experience with us!
greatnonprofits.org/org/phaware-gl…
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Help us get a @GreatNonprofits 2026 Top-Rated Award. Please take 2 minutes to write a review of your experience with us, based on your interaction with our @phaware podcast or Heart Works App or our website. THANKS for being #phaware
greatnonprofits.org/org/phaware-gl…

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