Pheo Para Alliance
10.8K posts
@PheoPara
Investing in research and supporting #pheochromocytoma and #paraganglioma patients globally. "Stronger United" #NETCancer #RareDisease #pheo #para #PPGL
Interested in more information about adrenal diseases and surgery? Visit the AAES YouTube channel for our prior webinars and experts answering your questions! buff.ly/6x6jXS1 #ADAM2026 @nadf_adrenal #AdrenalDay2026
Build Relationships at Vibrant #ENDO2026 Networking Events | Connect at the International Welcome Reception, the 5K Fun Run/Walk, and meet global leaders to spark collaborations. Register by May 6 for your savings: bit.ly/3OkWu5x
“Genetic testing helps connect #RareDisease families to early care and support from birth.” — Sofia, Certified Genetic Counselor Genetic counselors are essential, but #Medicare does not recognize them as providers, creating barriers to care for the rare disease community. Support the Access to Genetic Counselor Services Act: rarediseases.quorum.us/campaign/15090…
‼️ SAVE THE DATE: The 2nd edition of our #educational webinars is coming on 5th June 2026. ℹ️ Topic: updates on #adrenalcancer #adrenocorticalcarcinoma #pheochromocytoma #PPGL ➡️ Stay tuned for more details. @EYEScientists @ESEndocrinology @A5_Adrenal
A head and neck #paraganglioma diagnosis can be challenging to navigate. If you missed the live session—or want to revisit it—we hope this information helps guide you on your journey. Watch here👉bit.ly/4euilC9 #pheo #PPGL @RareDiseases @NCFCancer @HealingNET1
Experience ENDO’s most comprehensive scientific program to date. #ENDO2026 brings together world-renowned investigators, clinicians, and educators to discuss the latest breakthroughs in hormone science and medicine in Chicago, IL, US: bit.ly/3OkWu5x @theendocrinesociety
Proud and happy that our section representatives are once again participating in large numbers at the 6th Regional Symposium of Young Endocrinologists. 🫶🏻 Together we grow, learn, and strengthen our profession every day.
What is an adrenal "incidentaloma"? A mass or nodule was discovered on imaging done for another reason. But incidental doesn’t always mean insignificant. If you have an adrenal mass, ask: ✔️ Is it functioning? ✔️ Does it have concerning features? #ADAM2026 #NADF
Tumor Behavior in Patient-Derived Pheochromocytoma and Paraganglioma Organoids by Feldman et al. #AAES2026
