Neuroendocrine Cancer Foundation

➡️✍️surveymonkey.com/r/MMLHS5W If you are living with or caring for someone living with neuroendocrine tumors (NETs), we invite you to share your experiences through an online survey. While there is no compensation for completing this survey, your responses will help us better understand the needs of people living with NETs. The survey will take 3-5 minutes to complete, and your answers will remain anonymous. We thank you for considering participating in this survey. Your responses are impactful.

➡️ Register at ncf.net/events/mar2026 Join us for a discussion of targeted therapies in neuroendocrine cancer, one of the fastest-growing areas of NET treatment. Unlike traditional chemotherapy, targeted therapies focus on specific pathways or features of cancer cells. Understanding how these treatments work can help patients feel more confident and informed when discussing options with their care team. In this session, Dr. Rohit Thummalapalli, medical oncologist at Memorial Sloan Kettering Cancer Center, explores novel, innovative targeted treatments used or being studied in NETs, such as DLL3 and antibody–drug conjugates (ADCs). Dr. Thummalapalli will explain what these therapies are, how they work, and why they are becoming increasingly important in NET care. Whether you’re newly diagnosed or considering later-line treatments, this webinar will help you better understand the evolving landscape of targeted therapy and what it may mean for your care. #NeuroendocrineCancer #NETCancer #TargetedTherapy #cancereducation #cancerresearch #ncfcancer #NeuroendocrineTumor

📺 Join Us for a Special Screening: Zeal for Life The Neuroendocrine Cancer Foundation invites you to an inspiring afternoon featuring a special screening of “Zeal for Life.” This powerful documentary highlights the resilience, optimism, and determination of people living with neuroendocrine cancer — along with the caregivers and experts who support them. Come connect with the community, hear meaningful stories, and celebrate the spirit of living with zeal. 🗓️ Date: Saturday, March 7, 2026 📽️ Event: “Zeal for Life” Documentary Screening 📌Location: CinemaWest Beach Cities Movie Theater, 831 S Nash St, El Segundo, CA 90245 This event shines a light on the hope, courage, and dedication that define the neuroendocrine tumor (NET) community. ▶️ Learn more and register: ncf.net/events/zeal #zealforlife #NeuroendocrineCancer #NeuroendocrineTumor #cancerawareness #PatientStories #caregiversupport @AmanChauhanMD

Today, we honor a 60-year legacy — and look ahead with purpose. After nearly 60 years of service, the @CarcinoidNETs (CCF), founded by Dr. Richard R.P. Warner, has announced it is closing operations. We are honored that the Neuroendocrine Cancer Foundation (NCF) was chosen as CCF’s successor organization. Over the past two years, NCF has worked closely alongside CCF to ensure continuity of support. 💙What This Means for Our Community: 🧡A new, unified Neuroendocrine Cancer Provider Directory — developed in partnership with the Neuroendocrine Tumor Research Foundation (NETRF) — will launch later this year to help patients connect with experienced providers 🧡The Patient Support Line will continue 🧡Luncheon with the Experts (LWTE) webinars will continue 🧡Stories of Hope will continue to amplify patient and caregiver voices We are deeply grateful to CCF and to Keith Warner and @GraceGoldstein for their decades of leadership, service, and unwavering dedication to the NET community. Their confidence in NCF is something we do not take lightly. Our commitment remains clear: no one facing neuroendocrine cancer should feel alone. We will continue building on this legacy with trusted education, compassionate support, and meaningful connection. — The NCF Team #NeuroendocrineCancer #NETCancer #ContinuingTheLegacy #PatientSupport #cancercommunity #NeuroendocrineTumor #netawareness

#RareDiseaseDay #NeuroendocrineCancer #NETCancer #patientadvocacy

Tune in now to watch "The Latest in Neuroendocrine Cancer Clinical Trials" with Dr. Soares! youtube.com/live/O6pouzpwC…

🖥️ Watch "Hope on the Horizon for 2026" At GI ASCO in San Francisco, Lisa Yen, Director of Programs and Outreach for the Neuroendocrine Cancer Foundation, sits down with leading neuroendocrine cancer experts Dr. Garima Gupta (University of Alabama at Birmingham) and @AmanChauhanMD (UCSF) to discuss what they are most excited about on the horizon in 2026. In this conversation, Drs. Gupta and Chauhan share their enthusiasm for several potentially practice-changing clinical trials and emerging therapies, including: - New formulations of somatostatin analogs, such as oral options, are being studied for carcinoid syndrome - The NET RETREAT trial, exploring retreatment with PRRT for patients who previously benefited from this game-changing therapy - Advances in DLL3-targeted therapies, including BiTEs, antibody-drug conjugates, and radiopharmaceuticals for high-grade neuroendocrine carcinomas - The STELLAR-311 trial, investigating the novel agent zanzalintinib in neuroendocrine tumors across multiple primary sites The discussion highlights progress across the full spectrum of neuroendocrine neoplasms—from low-grade to high-grade disease—and underscores the growing momentum in a field with significant unmet needs. Thank you to the physician-scientists and researchers driving innovation and hope for the neuroendocrine cancer community. #NeuroendocrineCancer #NeuroendocrineTumor #NETCancer #neuroendocrinecancerawareness #hope

📌 Call to Action Care partners and caregivers play a vital role in supporting people living with neuroendocrine carcinoma—and your voice matters. If you are caring for someone with NEC, you’re invited to take part in a confidential online survey to help researchers better understand the challenges you face and how support can be improved. ✅ Short online survey ✅ Confidential ✅ Honorarium provided for eligible participants Your experience can help shape better care for the NEC community. ➡️ Learn more and sign up here: s-hab.medefield.com/wix/p294869318… #NeuroendocrineCancer #CaregiverSupport #CarePartner #PatientSupport #ncfcancer #NETCancer #NeuroendocrineTumor

Join us on January 21, 2026, for a virtual educational webinar with @JaydiDelRivero, MD, Medical Oncologist and Endocrinologist at the National Cancer Institute. This session will focus on functional neuroendocrine tumors (NETs), including hormone-related symptoms, diagnosis, and treatment options. Designed for patients, caregivers, and advocates looking to better understand NETs and feel more informed about care. 📷Learn more and register: ncf.net/events/jan2026 #NeuroendocrineCancer #patienteducation #ncfcancer #NeuroendocrineTumor #Neuroendocrine #neuroendocrinecancerawareness

🎉 Here’s to an Impact-Driven 2026! As we welcome the new year, the team at the Neuroendocrine Cancer Foundation reflects with gratitude on the progress, resilience, and connection within our community. In 2025, we expanded educational events, shared breakthroughs in neuroendocrine cancer research, and strengthened support networks for patients and caregivers. In 2026, we renew our commitment to education, connection, and empowerment so that no one faces neuroendocrine cancer alone. What’s ahead: • More expert-led webinars and support programs • Enhanced resources for patients and caregivers • Continued updates on clinical trials and treatment advances Thank you to our supporters, volunteers, partners, and the entire neuroendocrine cancer community for walking with us. Together, we bring clarity, strength, and progress to every step of the journey. Happy New Year—here’s to community and continued progress in 2026. 💙 Visit us at ncf.net to learn more and stay connected. #ncfcancer #NeuroendocrineCancer #NeuroendocrineTumor #netawareness #NETCancer

💟 "The email that changed everything." After being diagnosed with a neuroendocrine tumor, Dusty felt scared, isolated, and unsure of where to turn. One of the first emails she received from NCF said, “You are not alone. We are here to help.” That message became the start of community, education, and empowerment. Read Dusty’s story: 👉ncf.net/post/the-email… #NeuroendocrineCancer #NETCancer #PatientStory #youarenotalone #ncfcancer #NETcancerawareness #NeuroendocrineTumor

📢New Read Worth Sharing AARP recently published a moving article by @JamieMetzl about his family’s experience navigating a neuroendocrine cancer diagnosis and the important lessons they learned along the way. Written with honesty and insight, the piece offers both a heartfelt perspective and practical guidance for anyone impacted by cancer. Read the full article here: jamiemetzl.com/wp-content/upl… Jamie Metzl’s story reminds us of the power of resilience, informed care, and the support of loved ones in the face of life’s toughest challenges. His writing brings both compassion and clarity to a deeply personal journey that many can relate to. #cancerawareness #cancercare #jamiemetzl #AARP #PatientStories #HopeAndSupport #ncfcancer #NeuroendocrineCancer #NeuroendocrineTumor #NETCancer #NETcancerawareness

Missed our December webinar with @AmanChauhanMD? You can now watch the full December webinar at your convenience. 💻Watch here: ncf.net/events/dec2025 After viewing, please take a moment to complete our short survey—your feedback helps shape future programs and better support our community. ➡️Take the survey: forms.gle/SBWAftnpUWbB1M… @CarcinoidNETs @NANETS1 #NeuroendocrineCancer #NETCommunity #CancerEducation #PatientSupport #ncfcancer #NeuroendocrineTumor #NETCancer

Join Us December 11, 2025! ➡️Register here: ncf.net/events/dec2025 The Neuroendocrine Cancer Foundation is hosting a free webinar, “The Latest on Immunotherapy for Neuroendocrine Cancer,” with @AmanChauhanMD. Whether you’re newly diagnosed or exploring next-generation treatments, this is your chance to learn about cutting-edge therapies — from CAR T-cell and oncolytic virus strategies to DLL3-targeted trials and beyond. - Understand today’s standard-of-care immunotherapy protocols 📷 - Learn about promising clinical trials & what they might mean for neuroendocrine cancer patients 📷 - Get the latest expert insights into managing neuroendocrine cancer @CarcinoidNETs @NANETS1 @netcancerday #NETs #NeuroendocrineCancer #Immunotherapy #CancerResearch #NCF

✨Thankful Today and Every Day This Thanksgiving, @NCFCancer extends heartfelt gratitude to the patients, families, caregivers, clinicians, researchers, and advocates who make up our global NET community. Together, you bring strength, connection, and hope — and you remind us that no one facing neuroendocrine cancer walks alone. We invite you to revisit the impact and inspiration of this year’s NET Cancer Day Symposium — a celebration of community, progress, and legacy: ncf.net/post/world-net… This year, we give thanks for: 🤎Patients who persevere with strength and grace 💛Families and caregivers who provide unwavering support 🤎 Clinicians delivering compassionate, specialized care 💛Researchers advancing science and treatment options 🤎Advocates raising awareness and amplifying patient voices 💛A global community united by purpose, empathy, and hope Today, we honor lives, celebrate resilience, and express deep appreciation for every person helping raise awareness and advance our mission. From all of us at NCF — Thank you for your courage, your voice, and your partnership. @CarcinoidNETs @AmanChauhanMD @UGrewalMD @SylvesterCancer @Latinamd #Thanksgiving #NETCancer #NETStrong #NETcancerday #WorldNETCancerDay #Gratitude

Join @norcalcarcinet and @TriageCancer for a special webinar designed to help NET patients and caregivers better understand their Medicare coverage options. 🗓️ Saturday, November 15 🕚 AM Eastern 🎤 Speaker: Amanda Goodstadt, Senior Staff Attorney, Triage Cancer 💻 Live Webinar Don’t miss this opportunity to get expert insights and guidance! 👉 Register here: bit.ly/NETMED #NETCancer #TriageCancer #NorCalCarciNET #Medicare #CancerCare #PatientEducation #NETCommunity #NeuroendocrineCancer