phoebe mooney

Please, MPs, before you vote on tomorrow’s AD bill, I beg you to ask yourselves why the @rcpsych felt compelled to publicly oppose it…. Ask yourselves why the vast majority of palliative care doctors, geriatricians & groups representing people with disabilities, eating disorders & domestic violence all also oppose it. What unites us is *not* a lack of compassion (for those in which the wish for AD is clear cut & uncontentious) - but our expert knowledge of the myriad ways in which vulnerable people can be - and are - silenced, pressured & coerced into supposedly “free” choices. This bill is rushed, reckless and slapdash. It fundamentally lacks the safeguards it needs to ensure coercion of vulnerable people does not occur. Its supporters have misrepresented our testimony time & again by pretending our concerns don’t exist. (I gave evidence in Jan to the committee & my views were explicitly misrepresented afterwards.) I am a palliative care doctor who is not opposed to AD - but I feel sick at the harms to patients that will occur if this bill, at this time, is passed. Please don’t do it. Please consider the vulnerable people who, unlike Esther Rantzen, do not have a platform or a hotline to Downing St. The people who most need our advocacy. Please vote no.

Not to be missed!

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Looking for a new job challenge? Interested in joining us? We need 4 new staff to join our research team @KingstonUni See thread for details: 1. Research Fellow (Experienced project manager) 2. Research Associate (Engagement manager) 3. 2 researchers with a learning disability

PCPLD is a UK charity with the aim of improving palliative and EOLC for people with a LD, run by volunteers. We would be very grateful for any donations however big or small to continue our work. See below and/or our new website for how to donate 🙏

@pagelloyd29 @SteveHardyLDN Hello Lloyd! I was planning on going however I had an urgent matter at work that I had to deal with! See you on Thursday ☺️

@phoebemooney10 Hi Phoebe, I am going to the Shooters Hill Memorial Hospital for an open meeting with @SteveHardyLDN today for a End of Life Care discussion Best wishes @pagelloyd29.

@gemma_allen1 @JedJerwood How exciting! Have an amazing time! X

Canada bound ✈️ 🇨🇦 Let’s do this!

@pagelloyd29 Hello Lloyd! I realised I am actually on holiday so unfortunately won’t be able to make it!

@phoebemooney10 Hi Phoebe, Can you please let me know if you are coming to the End of Life Conference on the 20th June at Tolworth Court, Kingston University it starts at 11.00-4.00p.m. Best wishes @pagelloyd29

@gemma_allen1 @NoBarriersHere Amazing!! 😁

It seems rather apt on the first UK #AdvanceCarePlanDay to receive two pieces of amazing news in relation to #ACP #PEOlC & #Equity 💰 Successful funding bid 🏆 @NoBarriersHere Team are finalists for a national award More coming 🔜

‘It always seems too soon until it’s too late’ A quote that stays with me. #ACPDay2024

Look what arrived in the post!! Thank you @NoBarriersHere Fantastic work 👏

@pagelloyd29 Hello Lloyd! That’s amazing well done. 😀

@phoebemooney10 Hi Phoebe, I did my 5km walk yesterday around Ladywell Fields it was twice around the Park and have raised £75.00 so far and there is a lot more to come. Best wishes @lloydpage29

@NoBarriersHere @SueMarsden6 We had a no barriers here stall 😁😁

This looked like a brilliant learning event around learning disabilities and end of life care, led by two of our @NoBarriersHere facilitators @phoebemooney10 and @SueMarsden6 😊

We are delighted to host a #learndis and #EoLC workshop today for SE London professionals led by @phoebemooney10 and @suemarsden6 and welcoming as speaker @pagelloyd29. Starting the afternoon with lunch!

Another wonderful event at @stchCARE! 🌞This time about palliative care and learning disability. @AndreaBruun gave a talk about our project - and our toolkit already had an impact! Thank you @SueMarsden6, @phoebemooney10, and Emma for the invite and a great day #learningdis #EoLC

@pagelloyd29 See you later Lloyd 😁

@phoebemooney10 Hi Phoebe, See you later at 11.00 this morning Best wishes @lloydpage29

@pagelloyd29 Hello Lloyd! Thank you so much for helping us with our workshop. Look forward to catching up later about it. That’s brilliant! 😀

@phoebemooney10 Hi Phoebe, I am so lucky to be with you on Wednesday and speak to you today at 3.00 p.m.this afternoon and also I have 4 spaces on my sponsorship form left for my. 5km walk around Ladywell field on Saturday Best. Wishes @lloydpage29

Reasonable adjustments like: - Visiting a hospice before an appt / stay - adaptations to home to enable somebody to stay there (moving to ground floor/additional care) - skills to break bad news and support discussion of end of life care - MDT working with LD teams & pal care

Soooo excited at the next #LD and #EOLC project coming out of @KingstonUni and @TuffreyWijne and many others (supported by @NIHRresearch ) . Such an incredible project!!

If you work in SE London (and Croydon) we are holding a learning disability and palliative care workshop at @stchCARE @SueMarsden6 Sign up below 👇🏽 stchristophers.org.uk/course/closing…