@Naomi_D_Harvey @angryhacademic Just read about this. Truly awful. Could you add me too please x
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Dee
11.8K posts
Dee
@po_move
Mental health, inequality & disability. Long covid research & treatment. #LongCovid #MCAS #POTS #MECFS #vaccineinjuries #FBLC
United Kingdom Katılım Ağustos 2015
2.6K Takip Edilen1.7K Takipçiler
If anyone wants to send flowers 💐 to Dr Claire Taylor, let me know. I am in touch with someone who has her address. It can’t be shared for obvious reasons but they can send a bunch on our behalf. Would involve using PayPal to cover the cost.
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Dee retweetledi
The brain's cleaning system can be boosted to rid Alzheimer's proteins
A duo of drugs that boosts our glymphatic system, which clears waste from our brain, also improves the removal of proteins associated with the onset of Alzheimer's disease
newscientist.com/article/252084…
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@LauraCayuela7 @Moooonflash Or migraine as I've recently discovered!
"It explains the 100 neurological symptoms you are experiencing. What's that you say? Its not a good explanatory fit for x, y, z, & you have papilloedema & empty sella? If it's not migraine it's definitely FND" 🙃
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Everything is FND in the world of neurology.
Tics? FND
Vertigo? FND
Dizziness? FND
Tremors? FND
Seizures? FND
Can't walk? FND
Limb weakness? FND
Sensory issues? FND
Speech problems? FND
Learning about ME, LC, POTS, SFN, MCAS etc? No! they're busy diagnosing everyone with FND.
Rhi@rhirhiarhii
The audacity to say my neck issues causing vertigo and dizziness, bobble heading were FND. Just as well it was my last appointment with them However they did help pain management so fml also
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@Starseeker1986 @TraceyABurgess I'm really sorry mate. Sounds like you have a really good team trying to help you. But just awful that you can't tolerate any treatment. I hope a solution is found.
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Today I had my first appt with the Lipid Clinic
Covid has triggered inflammation throughout my body, that it can no longer process or function as it once did
I’m unvaccinated
The treatment options are not possible due to my severe allergic reactions | MCAS
No one masking
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What?!!! Do other parts of the UK have Lipid Clinics?
And is this what others have been told that their hyperlipidemia is caused by inflammation?
Lord. We have no access to services for dyslipidemia, MCAS, dysautonomia, in my part of the UK. Can't even access a cardiologist
Star💫@Starseeker1986
Today I had my first appt with the Lipid Clinic Covid has triggered inflammation throughout my body, that it can no longer process or function as it once did I’m unvaccinated The treatment options are not possible due to my severe allergic reactions | MCAS No one masking
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Dee retweetledi
@YouAreLobbyLud They have differing modes of action & cause slightly different adverse events, but many of us have suffered from all of them. Please don’t downplay the severity of vaccine damage, most of us are heavily pro vax, we took it willingly & with pride, but we have suffered lasting harm
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The Astrazeneca vaccine caused a rare catastrophic side effect. You cannot conflate it with the other covid vaccines.
The Telegraph@Telegraph
🔴 Six years later, the true scale of the vaccines’ side effects is emerging. Yet those coping with life-changing conditions remain ignored Read how Nikola was left disabled after receiving the AstraZeneca vaccine below 🔗 telegraph.co.uk/news/2026/03/2…
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Dee retweetledi
Ignoring vaccine complications isn't the way to maintain vaccine confidence.
The Telegraph@Telegraph
🔴 Six years later, the true scale of the vaccines’ side effects is emerging. Yet those coping with life-changing conditions remain ignored Read how Nikola was left disabled after receiving the AstraZeneca vaccine below 🔗 telegraph.co.uk/news/2026/03/2…
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@angryhacademic @DeansKevin That's some lovely praise. Well done @kevindeans for the award & for being a fantastic Dr
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He's too modest to say but @DeansKevin was awarded with this medal for a keynote lecture on GLP-1s
I see him for nutrition/electrolyte issues, & hands down he's the best doctor I've ever had. He listens, cares, reads research. I feel like we're a team. Well deserved i think 🎉👏🏻
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Dee retweetledi
Profoundly disappointing news. There can be no justification for this delay. It simply would not be tolerated for any other medical condition. I urge @wesstreeting to reconsider and take steps to bring healthcare for ME patients into the twenty-first century.
#MEAction Network UK@MEActNetUK
The @DHSCgovuk have paused action on commissioning a specialised service for very severe ME/CFS until April 2027 at earliest. This isn’t acceptable @wesstreeting! Sign up for our mailing list meaction.org.uk/sign-up for more news. #MyalgicEncephalomyelitis #VerySevereME
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@Naomi_D_Harvey Oh interesting! I previously wondered about this so thanks
A slight tangent - would be interesting to see 2 day C-PET in people specifically w AAI/CCI/Chiari/TC. But if it hasn't been done I imagine it's because the numbers are too small & patients too severely impacted
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This confusion happens because the term PEM, which was made for describing the unique phenomenon experienced by pwME, has been taken by others using **really weak** definitions of it, and applied to those who experience any post exertion fatigue or symptom worsening.
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When tested by the only objective marker we currently have for PEM (the 2-day CPET) pwME show distinct and unique results.
When pw gulf war illness were tested in a 2-day CPET to compare to pwME **they did not show any signs of PEM**
pmc.ncbi.nlm.nih.gov/articles/PMC75…
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@NeleHelena It's a fantastic documentary & great it was shown
It's always the same though eh? Can't communicate anything about severity of ME, LC, or post-vac, without wheeling someone out to undermine it
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Dee retweetledi
Excited to get this out in preprint: triple-blind, placebo-controlled microtesla magnetic therapy (MMT) is safe, feasible and effective in reducing cognitive impairment in people with #LongCOVID. I get excited about interventions for cognitive symptoms
medrxiv.org/content/10.648…
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Dee retweetledi
Average of 18 deaths a week in Wales linked to A&E waiting times, new data shows
itv.com/news/wales/202…
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@FFP3orN95 @BajanPAMD @amyboylanwrites @_CatintheHat @1goodtern Exactly. I did point that out once & they weren't amused
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@po_move @BajanPAMD @amyboylanwrites @_CatintheHat @1goodtern The logic behind this is mad. Do they want you to don fresh clothing and shoes as well?
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Over the past week, we’ve seen many photos of students receiving their antibiotics & MenB vaccines…
…and healthcare workers have always been masked (only surgical masks, but at least they were masked).
However, as of yesterday, something has CHANGED…
facebook.com/share/p/1BTh9z…
Cat in the Hat 🐈⬛ 🎩 🇬🇧@_CatintheHat
I also worry about the healthcare workers administering the vaccines, coming into close contact with hundreds of students who may potentially be carrying the meningococcus bacteria. Loose-fitting surgical masks do NOT provide adequate protection against aerosol transmission.
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@BajanPAMD @amyboylanwrites @_CatintheHat @1goodtern Nothing has been learnt from the pandemic.
Used to happen to me a lot in med appointments. Seems they wanted a fresh mask before entering. After some debate they'd usually accept I don a surgical mask over my FFP3 or (less often) swap to new individually sealed FFP3
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@_CatintheHat @1goodtern Our son is a Kent uni student. On Tuesday last week he received the antibiotics; on Thursday, last week, the vax (such a relief).
We r v grateful for the huge effort made by the NHS staff. But y the policy: our son was made to remove his K95 mask & don a surgical mask!
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Dee retweetledi
@Gmwetz @VsLongcovid There’s been a few in cadavers after pwME have died but not many.
Sophia Mirza is a good example of this: “an autopsy by an independent neuropathologist found Sophia's spine contained massive infection”
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Dee retweetledi
This is the crux of the issue. This is why aerosol spread is not being mentioned re: MenB. It’s why IPC guidance doesn’t recognise aerosols re: Covid.
Acknowledging it means having to do something about it and they just aren’t willing to try. They would rather cover up & lie.
holocene@holo_cene
this is an actual member of the WHO, peter collignon, talking here. i think this is very telling. of course, droplet and close-contact transmission theory IS very convenient. much easier to manage. but it’s not because something is convenient that it’s a scientific fact.
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Dee retweetledi
I’m so tired of this “but medical professionals would never do that…” & medical professionals choosing to throw patients under the bus instead of calling their colleagues out for the BS
If yall would listen to what people are telling you, yes…they would & DO this shit to pts
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