PxP

1/ We’re undertaking an informal scan of the current status of patient engagement across the globe. This will help us shape the next phase of PxP and determine new goals. 💭Thoughts can be shared directly with our team by emailing: contact@pxphub.org

3/ Check out our latest newsletter here for an update on the PxP funding model: mailchi.mp/pxphub/pxp-nex… #PPI #ConsumerInvolvement #PatientEngagement

2/ Suggested questions as a starting point: 🟣How has patient engagement changed in your region over the last 3-12 months? 🟢Do you see any gaps that you hope PxP might meet? 🟣What are your aspirations for PxP?

🚂How do you get research to the people who can learn or use something from it? Get some ideas here: youtube.com/watch?v=gwdedw…

How are patients are changing the research system from within? youtube.com/watch?v=Wf5vJ9…

🌎How are research teams engaging patients as partners in different parts of the world? ☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25conference in September: youtube.com/watch?v=LBW8An…

Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research. 🎥Check out this webinar recording from the #PxP25conference: youtube.com/watch?v=-xoHZm…

💭How do you navigate owning your lived experience as one aspect of your identity? youtube.com/watch?v=F39Ulq…

At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference: pxphub.org/pxp-2025-artwo…

📚 Read the chat summary: pxphub.org/laying-the-gro… #PxP25 #PatientPartnership #HealthResearch

How can you lay the groundwork for successful patient partnership? #PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role. 🎥 Watch back: youtube.com/watch?v=EnJ6y6…

📚Read an anonymised summary of attendee discussions here: pxphub.org/journeys-of-im…

Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in a way they had never imagined. 🎥Session about different pathways of patient partners: youtu.be/2Rht0OAVSR8

Learn more about different roles of patient partners in health research from this insightful session at #PxP25. 👉The recording is available here to watch any time: youtube.com/watch?v=MWXZXC…

What are some unique challenges and opportunities for patient engagement in research in different parts of the world? 👀Watch back this session from day 1 of #PxP25 youtu.be/xJwAKSoHGNs

PxP India used storytelling, provocative debate, and Q&A to showcase how patients can convert their lived experience into valuable expertise to help shape research and healthcare processes. Wherever you are based in the world, you can watch it back here: youtube.com/watch?si=jWXc_…

Looking for a case study on co-design? PxP Australia featured an insightful presentation by @joancarlini and Letisha Living, facilitated by @JanelleBowden. Their #ConsumerInvolvement project used Lego! Intrigued? Watch the session back here: youtube.com/watch?v=2DifS1…

RT @breastlessAfrik: We did it!!!🥳🎉🙌🏾 #PxP25🇨🇦 has officially ended. Day 3 which was held on the Australian time zone was awesome, fun and…

#PxP25 Truly global. Truly sensitive to different languages (captions), expertise (context/content), and timezones (alarm clocks not always needed). With #AI, we can also ask speakers questions in their local language...not perfect, but progress.