philip robinson 🍊 @pxrobbo.bsky.social

@dementiaSLTs really great public guidance on Speech and Language in dementia rcslt.org/speech-and-lan…

@ProfRobHoward 💝

I’ve just told Layla we have to go to the Vet for her injection…

When Words Fade: Samuel Valverde on Living With Primary Progressive Aphasia beingpatient.com/when-words-fad…

Really worth reading this. Dementia—The Physician Caregiver and Identity jamanetwork.com/journals/jaman…

Antihypertensive Medications and Dementia-Related Neuropathology jamanetwork.com/journals/jaman…

At last - some good news! Coffee and Tea Intake, Dementia Risk, and Cognitive Function jamanetwork.com/journals/jama/…

Quality of palliative and end of life care is being placed second to quantity and numerical data too often. More services doesn’t equal better care and the fragmented, inconsistent communication compounds the confusion adding to patient and carer distress.

@OpenJusticeCoP The CHC/social care difference is an important contrast. I wonder when in the future Assisted dying may become part of best interest decision making…. The wife appears to have cognition and communicates with her husband. Where is her QoL in the LA “we couldn’t fund” decision

@pxrobbo Thank you Philip. Isn't it sad, though.....

'What God has put together, let no man put asunder': A s.21A challenge Court authorises a care home against P's and husband's wishes. Shows how limited the powers conferred by Lasting Power of Attorney are. openjusticecourtofprotection.org/2023/07/03/wha… via @OpenJusticeCoP

@lologaya feliz año nuevo Delores. Happy memories.

SPECIAL EVENT - FUNDRAISER Please join me for a one off event in support of Henrietta and her serious spinal cord injury recovery! Click the link for tickets and more info for what will be a very special evening! tickettailor.com/events/notappl…

@ProfRobHoward @drokane Still lit by gas on the main roads in Malvern now.

@drokane Yes. Gas lamps being lit in Malvern in the 1960s.

Genuine gaslighting!

@Capacitylaw @iPsychApps Alex, have you considered the position in reverse? For example, if a person has the ability to do the first three, but cannot, eg from acquired aphasia that affects the ability to communicate out (but not the ability to understand) (possibly stoke or Primary Progressive Aphasia)

@iPsychApps In a way, you have to, because if you can't communicate in any way with the person, they are in the zone of e.g. locked in syndrome where we don't know whether they can process the information. Communication allows probing as to whether they can make the decision in MCA terms.

Communicating the communication limb of the capacity test: mentalcapacitylawandpolicy.org.uk/short-note-com…

Another paper showing hearing loss as a possible dementia risk modifying factor Hearing Loss, Brain Structure, Cognition, and Dementia Risk jamanetwork.com/journals/jaman…

@KitzingerCelia @OpenJusticeCoP In an LPA there is the opportunity to notify somebody that the LPA is being made (D) and that person can raise objections to the registering of the LPA which will stop it coming into effect. In this case the D is raising objections post making. Even AD allows for a review panel.

@pxrobbo @OpenJusticeCoP I'm not sure I know what you mean by the last sentence?

P’s Advance Decision to Refuse Treatment is not valid, not applicable, and not a reflection of her past or present wishes By @Kitzingercelia openjusticecourtofprotection.org/2025/11/05/ps-… via @OpenJusticeCoP

@KitzingerCelia @OpenJusticeCoP Is persuasion, in some cases, coercion. A default presumption of P’s best interests being to follow the validly made ADRT (I accept that there seem to be some significant procedural failings here). With an LPA model the D could have objected while the mother still had capacity.

@pxrobbo @OpenJusticeCoP The underlying problem is if you do something after you've lost capacity (like acquiesce to your daughter's "persuasion" to go to hospital), that they decide is "inconsistent with the ADRT remaining your fixed decision" (to refuse hospital treatment), then your ADRT is invalid.

The Last Night jamanetwork.com/journals/jama/…

@ProfRobHoward You are too used to Jack Russells Rob. Same with Labradors

You’d need a shovel and a bin bag to clean up after it.

@Existential_Doc @SKinnock A thread of truths about moving EOLC into the community - please listen and respond. @MarieCurieEOLC

I’m not as active on here as I once was. Mostly from enjoying being a new dad but also from demands resulting from the rising complexity of working in community palliative care. There are some fundamental changes occurring that need consideration Here are a few

Neuropathology of Alzheimer's disease after anti-amyloid β antibody treatment - The Lancet Neurology thelancet.com/journals/laneu…