CRRAB

✨ Keynote Announcement! We are so excited to announce our Day 2 Keynote Speaker for the 2026 Symposium: Mitch Hendry. Mitch is a retinoblastoma survivor, long time CRRAB member, and now certified genetic counsellor. #retinoblastoma #rb #2026RBSymposium #keynotespeaker

As we get closer to the 2026 RB Research Symposium, we wanted to take a look back at some amazing moments from Child Life activities over the years. 💙 Child Life programming will be available for in person attendees in both Toronto and Vancouver this year!

Child life programming will be available at the 2026 Retinoblastoma Research Symposium 💙 Activities will be running Saturday and Sunday for in-person attendees in Toronto and Vancouver. 🔗 Learn more and register at the link in our bio. #retinoblastoma #rb #symposium

March is Child Life Month 💙 This month, we recognize and thank the dedicated child life professionals who help make healthcare more compassionate, supportive, and centered around the needs of children and families. #ChildLifeMonth #CLS #Retinoblastoma #RB

✨ Keynote Announcement! We’re excited to share that Dr. Jesse Berry will take the stage as a keynote speaker at the 2026 RB Symposium on Saturday, April 18th. ➡️ Swipe to learn more about Dr. Berry! #retinoblastoma #rb #2026RBSymposium #keynote

⏳ The countdown is on! We are officially 6 weeks away from the 2026 Retinoblastoma Research Symposium. 🎉 Today, we’re proud to announce our 2026 theme: "Evolving Care: Evidence-Based Care with Patient Impact." #Retinoblastoma #RB #ResearchSymposium #2026RBSymposium #CRRAB

Registration is now open for the One Retinoblastoma World Conference. 🎉 It is taking place in San Antonio, Texas, from September 12th to September 14th 2026. Find more details here: wechope.org/onerbworld/ #retinoblastoma #rb #conference #patientengagement #eyecancer

Today is Rare Disease Day — a day dedicated to raising awareness for patients, families, and caregivers affected by rare diseases. We stand with everyone impacted by retinoblastoma and other rare conditions. #RareDiseaseDay #Retinoblastoma #RareButNotAlone #RBStrong

February is a key month for cancer awareness. Today, on International Childhood Cancer Day, we advocate for awareness , action, and hope. 💛 #ICCD #retinoblastoma #RB #EyeCancer #PatientEngagement #CRRAB

Read through the slides for anecdotes from patient partners participating in the FACE-Q Study! #RB #EyeCancer #retinoblastoma #patientengagement

Last November, PhD Candidate Farheen Khan from the Dimaras Lab attended the Canadian Outcomes Matter conference. This work would not have been possible without the valuable input from all the patient advocates listed in the top left photo #RB #EyeCancer #retinoblastoma

Registration is now open for the 2026 Retinoblastoma Research Symposium. Click the link in our bio to sign up! 🔗 We can't wait to see you there 😁 🔬 #retinoblastoma #RB #EyeCancer #PatientEngagement #CRRAB

The January Cup of Tea is one week away! It will feature Dhruv Kohli, RB Survivor, and Rob Bremner, Scientist, who will discuss a new paper on promising new retinoblastoma therapies. #retinoblastoma #PatientEngagement #CRRABCupOfTea

Join us on January 20th at 8:00pm for our first 2026 "Cup of Tea" Journal Club. The presenters will be discussing the paper "preclinical studies reveal MLN4924 is a promising new retinoblastoma therapy" nature.com/articles/s4142… #retinoblastoma #PatientEngagement #CRRABCupOfTea

Save the data for our next Cup of Tea on January 20th, 2026 at 8:00pm! More details to come. 🫖 📖 🔬 #retinoblastoma #PatientEngagement #CRRABCupOfTea

The September #CupofBoba recording is now available. Thank you Nikola and Helen, you did a fantastic job with this research summary! Click the link in our bio to access the Retinoblastoma Research Spotify and YouTube accounts. #retinoblastoma #PatientEngagement #CRRABCupOfTea

📚 November Spotlight Continued: Learning Opportunities for Patient Partners! Next up: The Kids Eye Biobank "Patient Advocate Committee" Information Guide 📖 created BY patient partners, FOR patient partners. ✅ Follow @KidsEyeBiobank 🔗 Visit kidseyebiobank.com

📚 November Spotlight Continued: Learning Opportunities for Patient Partners! Next up: PORCCH (Patient-Oriented Research Curriculum in Child Health) 🌟 🔗 Visit PORCCH.CA to start learning #PatientPartner #ChildHealth #PORCCH #ResearchTraining #PatientEngagement

November Spotlight: Learning Opportunities for Patient Partners! First up, our "Retinoblastoma Research and You!" Booklet. Link in bio to download the full version from the CRRAB website #RetinoblastomaResearch #PatientPartner #PatientEngagement #CRRAB #ResearchEducation

Join the Retinoblastoma Research Community! 🌟 Whether you’re a health professional, researcher, patient, survivor, parent, or caregiver, we welcome you to join our community! Tap the link in our biobank to sign up. #RB #EyeCancer #retinoblastoma #research #community