Steven A. Long, CDS

Save the date for The 2026 AFTD Education Conference! 📅 April 30 – May 1 📍 Seattle, WA + Virtual via Zoom This annual gathering brings together people diagnosed with FTD, care partners, families, healthcare professionals, and researchers to connect, learn, and engage with the latest in FTD care, research, and advocacy. 👉 Sign up to be notified when registration opens in February: bit.ly/4s0YTBo

Here is an update on the Extremely Critical fire weather conditions expected tomorrow, 3/4/2025, across portions of Texas. More info: spc.noaa.gov

When FTD symptoms lead to law enforcement encounters, healthcare professionals must be prepared to provide informed guidance and advocacy. AFTD’s CME webinar on February 26 will examine the intersection of FTD and the law, highlighting questions around criminal responsibility and competency for those living with FTD. 🔴 Reserve your spot now: bit.ly/4hsyiam

I'm excited to attend APM 2025 in Philadelphia, March 16–20! Join me to exchange ideas, strengthen connections, and explore solutions for shared success. Register today! #ConferenceDirect i.snoball.it/p/aK68/t/2

Please support us as we raise money for AFTD. I have not done this event in a few years but its time to get back in the game! Check out Steven Long's fundraising page - classy.org/fundraiser/599…

Beautiful! From Bastrop, TX

Watching Booba on youtube…. #endftd #theaftd #frontotemporaldementia #frontotemporaldegeneration #dementiaawareness #dementiaunder60 #bvftd

Come out to Copper Shot and C&S Cigars this Saturday 6/22 to Support Tammy Long. #endFTD #theaftd #EveryFTDStoryCounts #EndDementiaStigma #AskAboutFTD #DiagnoseFTD! #AskMeAboutFTD. facebook.com/events/1514344…. .

Heading to APM tomorrow! Just got to find my way out of NYC today! #conferencedirect #loewshotel

Former FTD care partner Heather Miller shares her mother’s story to encourage others to remain resilient when facing this disease. A donation today helps AFTD make #EveryFTDStoryCount: bit.ly/4a0V2et

Fundraiser by Steven Long : Tammy's Frontotemporal Degeneration Fund gofund.me/b2943bd6

Former gynecologist Dr. Seth Stern shared his desire to raise awareness of #FTD & live his life to the fullest in a recent interview with @ATLNewsFirst. Dr. Stern wants others to know those with FTD are still living their lives. Click here to learn more: bit.ly/3tVHUa1

Researchers in the UK discovered that features of sporadic #FTD may be detectable years ahead of the onset of clinically observable symptoms, which may make it easier to #DiagnoseFTD earlier. Click here to learn more: bit.ly/3ZzCHih

Register for the AFTD 2023 Education Conference! Learn the latest information about FTD care management, research opportunities & engage with others who understand. Learn more about the conference program, discount hotel rates, & Comstock Travel Grants at bit.ly/3Uhw9Uz

Today is World Health Day ❤️ An FTD diagnosis can be overwhelming in many ways, so we created the Newly Diagnosed Checklist. It guides persons diagnosed and their families on steps to help adjust to the changes. To view our checklist, please go to bit.ly/3zD5log

@GibiOfficial My wife has bvFTD Frontotemporal Degeneration and loves watching your videos. #endftd #aftd

Your help is very much appreciated. Click here to support Tammy #endftd gofund.me/ed50ec7f #GoFundMe

Click here to support Tammy's Frontotemporal Degeneration Fund organized by Steven Long gofund.me/ed50ec7f #GoFundMe

@AFTDHope My heart goes out to Bruce's family. My 47 year old wife has this awful disease. She has been in a memory care for 4 years now and I am blessed to be able to spend time with her daily. The long goodbye is heartbreaking as a spouse. We advocate for her daily. #endftd.

Bruce Willis has been diagnosed with FTD, the actor’s family said in a statement released today. Willis retired from acting in March 2022 due to aphasia, but the family has shared that his symptoms have progressed. Learn more: bit.ly/3YWTsnH