UK Thalassaemia Society (@teamukts) - Twitter Profili

UK Thalassaemia Society retweetledi

18/10 was #MenopauseAwarenessDay & we marked it by launching our education series on Menopause with Thalassaemia! @VikramSinai gave an insightful talk to kick off the 4-part series which will run every Wednesday till Nov 6th. Catch up on the talk here: uclh.nhs.uk/theredcellnetw…

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UK Thalassaemia Society@teamukts·22 Eki

@VikramSinai Thank you so much for your presentation! As always you were exceptional!! ❤️

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Vikram Sinai Talaulikar@VikramSinai·21 Eki

It is great to see that menopause experiences are getting recognised in individuals with haematological conditions. Preserving good quality of life and long-term health are the main goals!

The Red Cell Network@TRCNHCC

18/10 was #MenopauseAwarenessDay & we marked it by launching our education series on Menopause with Thalassaemia! @VikramSinai gave an insightful talk to kick off the 4-part series which will run every Wednesday till Nov 6th. Catch up on the talk here: uclh.nhs.uk/theredcellnetw…

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UK Thalassaemia Society retweetledi

Red Cell Pain@PmpRed·25 Eyl

Come & work with us! Part-time band 7 clinical/counselling/health psychology post in #sicklecell & #thalassaemia healthjobsuk.com/job/UK/London/… Creative and flexible work in a lovely team where psychology is really valued @docesr @StGeorgesTrust @SickleCellUK @teamukts @HCCWestLondon

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UK Thalassaemia Society retweetledi

The Red Cell Network@TRCNHCC·20 Eyl

We are excited to be running a series of Menopause Awareness Sessions with an exclusive focus on Thalassaemia. Starting October 16th Sign up uclh.nhs.uk/theredcellnetw… We are teaming up with @VikramSinai and Babita from New Chapter Nutrition for Menopause! @teamukts @HCCWestLondon

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UK Thalassaemia Society@teamukts·9 Eyl

We are holding a patient/ carer meeting on September 16th 7-8pm & would ❤️ to hear about your experiences. What works well for you? What would you like to see improve? You can speak honestly & openly & won’t be identified! Please email office@ukts.org to register!

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UK Thalassaemia Society@teamukts·9 Eyl

We are holding a patient/ carer meeting on September 16th 6-7pm & we would love to hear about your experiences. What works well for you? What would you like to see improve? You can speak honestly & openly & won’t be identified! Please email office@ukts.org to register!

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UK Thalassaemia Society@teamukts·10 Ağu

Have you seen this video message from our patron Peter Polycarpou?! If not, you’re in luck! Thanks Peter for all of your support and advocacy of these year! We are grateful to have you on our team! #teamukts

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UK Thalassaemia Society retweetledi

Parikiaki Newspaper@Parikiaki·10 Ağu

Islington vision for a greener, healthier area between Nag’s Head to York Way recently became a reality! parikiaki.com/2024/08/isling… to offer ‘life-changing’ gene therapy for blood disorder thalassaemia parikiaki.com/2024/08/nhs-to… #Thalassaemia @teamukts

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UK Thalassaemia Society@teamukts·9 Ağu

@Faisalnaifaru Hello, it won’t (at least not anytime soon) , in fact the NHS will also be offering HSCT transplants to adults with TDT. Exa-cel will only be offered to people who are well enough and do not have a matched donor.

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Ahmed Faisal@Faisalnaifaru·9 Ağu

@teamukts Will it make bone marrow transplant obsolete? I understand even now in UK BMT is not so so recommended.

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UK Thalassaemia Society@teamukts·8 Ağu

We are thrilled to share some exciting news! The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟

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UK Thalassaemia Society retweetledi

Sarah Nicolle (she/her) 💙🌈🎵@DocCSarah·9 Ağu

I am not sure I have ever been more excited and happy for any news in my working life. This will be truly life changing and I am so proud of colleagues and friends who kept going until NICE SAID YES!!!

UK Thalassaemia Society@teamukts

We are thrilled to share some exciting news! The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟

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UK Thalassaemia Society retweetledi

Bambos Charalambous@BambosMP·8 Ağu

Fantastic to hear that NICE have approved gene-editing therapy as a treatment and potential cure for thalassaemia. This will transform the lives of patients with beta-thalassaemia who have to have regular blood transfusions. Well done all at @teamukts for lobbying hard for this

BBC News (UK)@BBCNews

First gene-editing therapy may cure blood disorder bbc.in/46GpRnO

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UK Thalassaemia Society retweetledi

Amy Webster@amy_haemDr·8 Ağu

Such amazing news! Well done to @teamukts for such hard work in getting this across the line!

UK Thalassaemia Society@teamukts

We are thrilled to share some exciting news! The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟

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UK Thalassaemia Society retweetledi

Bola Owolabi@BolaOwolabi8·8 Ağu

Delighted to share this great news! Thanks to brilliant leadership @AmandaPritchard @SamRobertsNHS, support from patients & Herculean effort by colleagues across @NHSEngland, @NICEComms @MHRAgovuk @teamukts, Casgegy is now available on the NHS for people living with Thalassemia!

NHS England@NHSEngland

'Gene therapy would mean a lot to me — it would be a life-changing treatment.' Kirthana has thalassaemia and could be one of the the first people in the world to benefit from a gene-editing treatment that could cure her blood disorder. england.nhs.uk/2024/08/gene-e…

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UK Thalassaemia Society@teamukts·8 Ağu

Our beautiful Kirthana ❤️ Kirthana will be featured on BBC later today!

NHS England@NHSEngland

'Gene therapy would mean a lot to me — it would be a life-changing treatment.' Kirthana has thalassaemia and could be one of the the first people in the world to benefit from a gene-editing treatment that could cure her blood disorder. england.nhs.uk/2024/08/gene-e…

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UK Thalassaemia Society retweetledi

Guardian news@guardiannews·8 Ağu

NHS to offer ‘life-changing’ gene therapy for blood disorder thalassaemia dlvr.it/TBdxc7

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UK Thalassaemia Society@teamukts·8 Ağu

First gene-editing therapy may cure blood disorder; Beta Thalassaemia Major bbc.co.uk/news/articles/…

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UK Thalassaemia Society@teamukts·8 Ağu

Diversity is vital to our charity & nation. #teamukts condemns the recent rioting & stands against any prejudice advocating for inclusion & equality. To our families affected by #thalassaemia, hcps, blood donors & neighbours remember, you are seen, heard & valued ❤️

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UK Thalassaemia Society retweetledi

George Woodward@georgedwoodward·1 Ağu

Very proud that finally our 3 year campaign to ensure there is up-to-date VTE anticoagulation guidance for patients with sickle cell and Thalassaemia with venous access devices is here! @redcellemma @_JohnBrewin onlinelibrary.wiley.com/doi/10.1111/bj… @ThrombosisUK @BritSocHaem @SickleCellUK

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