Good things happen when research evals #lobular #breastcancer separately from #IDC. Meaningful for #metastatic #ILC patients #bcsm 👇
news-medical.net/news/20220623/…
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Leigh Pate
2.4K posts
Leigh Pate
@LPseattle
Founder Lobular Breast Cancer Alliance. Writer. Former political hack. Living w/ #lobular #breastcancer & #ovariancancer. Cancer Research Advocate. Tweets mine
Seattle, WA USA Присоединился Aralık 2009
528 Подписки740 Подписчики
Leigh Pate ретвитнул
Dear #cancer researchers ... How are you engaging w/ patients & patient advocates at your institutions? Are they a last minute box to be checked on your grant proposals? Or are they partners in your research? #PatientEngagement #PatientAdvocacyMovesScience 👇👇👇
Tatiana Prowell, MD@tmprowell
Everyone who knows even a little #regulatory history knows that patient #advocacy moves science forward. I have endless admiration for @bsw5020 & @sabrevaya.
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Leigh Pate ретвитнул
Great video @LobularBCA. I have seen #lobular cancers missed on screening mammography be detected on MRI, CEM, MBI and US. Although access may be limited, supplemental screening for #ILC may be key, especially for those with #densebreast tissue.
youtu.be/xNoXveXGC2g
YouTube
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Leigh Pate ретвитнул
🟡#breastcancer and the #PTEN hamartoma tumor syndrome (PHTS, previously #Cowden): screening with MRI led to the detection of cancer in 7 women/39 enrolled. All early-stage, all ductal (no #lobular). Median FU: 4 years. No benefit of adding mammography. acsjournals.onlinelibrary.wiley.com/doi/10.1002/cn…
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@LPseattle Much appreciated efforts in raising awareness about ILC. If you want to expand on other languages, I’d be happy to help with Arabic.
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Such a great resource for patients with #lobular #breastcancer in 🔟 languages 🎉. Download and share 👇
KarenVanBaelen@VanBaelenKaren
Honored to talk about the leaflet of @elbcc we created for and with the patients diagnosed with lobular breast cancer this morning at the #ILCSymposium. elbcc.org/Leaflet #Koorman @BreastDense @LobularBCUK @LobularIreland @ClaireTTweets @tonelien #rianterveer #gabrielebeck
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@BreastDense @LobularIreland @elbcc That's just really nice to hear Siobhan and Tone. Thank you. Appreciated.
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@LPseattle @LobularIreland @elbcc We were missing you Leigh. We talked of you a lot, there was space between us just for you, we carried your 'spirit' around with us for the two days. We will save our 'hug' until we meet you ❤ xx
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Elbcc Patient Advocates
Tone (Norway) and Siobhán (Ireland) #Lobular Peeps met a few years ago on #ILC Social Media @LobularIreland but have had to wait until @elbcc #ILCSymposium Utrecht to meet F2F #LivingWithLobular
#WomenSupportingWomen
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Nice write-up and #breastcancer #advocate Lori Petitti @hiplinemedia
@jackel626 @maggiemoo09 @double_whammied @oesterreichs @mjsikora
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Sounds like #ILCSymposium 2022 was a hit on all accounts! Thanks to all who worked so hard. Onward! 👇
@ChristineDesme2 @PWBDerksen @Otto_DFCI @oesterreichs @BCRFcure @AVincentSalomon @LobularBCUK @LobularIreland @elbcc @LobularBCA #bcsm
Dr. Steffi Oesterreich@oesterreichs
Fantastic presentations and great posters by trainees - everyone put great effort into it. 🙏. Collectively more evidence for #lobular being a distinct breast cancer that deserves more studies. And need to move findings into clinical trials! @neil_carleton_ @Adrianvlee
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Leigh Pate ретвитнул
@mjsikora @maggiemoo09 @CUCancerCenter @UMRogelCancer Spectacular! Congratulations @mjsikora and @maggiemoo09 on an outstanding partnership!
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Leigh Pate ретвитнул
@sflomos @LPseattle @oesterreichs @LobularBCA Respect 🙌 and Gratitude 🙏
To #Lobmob Leader @LPseattle from the entire attendance at The International Lobular Breast Cancer Symposium #ILCSymposium
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Since we missed @LPseattle from the #ILCSymposium @oesterreichs read her message and she received a huge huge applause @LobularBCA
KarenVanBaelen@VanBaelenKaren
Steffi Oestenreich reading a very touching speach by patient advocate Leigh Pate. It would have been great to meet you here at #ILCSymposium. @oesterreichs @LPseattle
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Leigh Pate ретвитнул
Val Brunton from @EdinCRC , one of our Scientific Advisor’s talking about the #lobular tumour microenvironment. #ILCSymposium
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Leigh Pate ретвитнул
Impressive talk about ##ILC immune features, #Ecadherin #Pcadherin switching and #metastatic ILC #heterogeneity #clonal evolution @NatrajanLabICR
Lobular Breast Cancer Alliance@LobularBCA
The afternoon session continues at #ILCSymposium with Rachel Natrajan speaking on the heterogeneity of E-cadherin and the immune microenvironment in #lobular #breastcancer. @elbcc @LobularIreland @LobularBCUK
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Leigh Pate ретвитнул
Following quite a spectacular Patient Advocate led Session this morning we have an even more Spectacular Key Note Speaker #DAY2 Sabine Linn is now speaking
'Toward Precision Medicine for ILC'
#ILCSymposium #Utrecht
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@VanBaelenKaren @oesterreichs I wish we could have met in person, too Karen. Thanks for all you do for advocates and lobular research
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Steffi Oestenreich reading a very touching speach by patient advocate Leigh Pate. It would have been great to meet you here at #ILCSymposium. @oesterreichs @LPseattle
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@sflomos @oesterreichs @LobularBCA Thank you for sharing that George. I am sorry not to have met you in person
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