merrilee needham ретвитнул
merrilee needham
310 posts
merrilee needham ретвитнул
Honored to speak at the 18th annual International Congress of Neuromuscular Diseases in Perth, Australia! Great session on “Clinical Trials in Myositis: Emerging therapeutics and innovative trial design” with co-speakers @MariannedeViss1 @JoostRaaphorst Mazen Dimachkie and chaired by the lovely @MerrileeNeedham
Above all, it was great to meet to new colleagues and friends and also enjoy the phenomenal weather and beautiful beaches!
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merrilee needham ретвитнул
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merrilee needham ретвитнул
I’m not crying, you are..🥺
🎥 IG: littlestepsmatter
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merrilee needham ретвитнул
We're pleased to announce our new national MND Association Research Nurse Network - a £5 million investment to give more people with #MND access to clinical trials.
This 5 year investment will build a first-of-its-kind coordinated network of Research Nurses.
Full story below.
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merrilee needham ретвитнул
📌Check out our viewpoint article to hear our opinions on the current #myositis clinical trial landscape and suggestions to improve the design of and access to trials in myositis @werthlab @DrLisaCS @ingrid_lundberg @MerrileeNeedham @JuliePaikMD @PittRheum 👇
Annals of the Rheumatic Diseases@eular_ARD
@didemsayginMD and her expert coauthors share their views on current #myositis 💪🏻 clinical trials, esp. their current shortcomings and implications for future #clinicaltrial design bit.ly/3u2ibNs
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merrilee needham ретвитнул
Our most recent paper shows the responsiveness and meaningful thresholds of PROMIS physical function, fatigue, and pain interference forms in a large international cohort of patients with #myositis @HeleneAlex1969 @DrLisaCS @JoostRaaphorst @MerrileeNeedham @OMERACT
Seminars in Arthritis and Rheumatism@seminarthrheum
Accepted for publication: A report from @OMERACT on the responsiveness of PROMIS instruments in evaluation of patients with idiopathic inflammatory myositis, supporting their use in research. sciencedirect.com/science/articl…
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merrilee needham ретвитнул
So universities make research professors pay for their entire salary & research through grant funding, but then the university also takes a cut of your grant funding? Seems like you’d have to always apply for grants, so when do you do research? Is this why you’re all kinda grumpy
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merrilee needham ретвитнул
This really is the secret to wellbeing, isn’t it @DrJaneMunro @carrie_kollias @catherinecrock?
Nothing too highbrow. Just a simple
community of like-minded people where you are known and loved for who you are.
We can build this at work, though we can’t “e-module” it!
Prof Jane Munro@DrJaneMunro
Just talked about doctor’s wellbeing with a system change and organisational response lens at the Vic Geriatrics Medicine Conference - but I think this is my favourite slide ❤️ Miss you @carrie_kollias! @DrEricLevi @catherinecrock
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merrilee needham ретвитнул
Via @GreenJournal: Including conversations about end-of-life-planning into their health care will benefit patients whose neurologic diseases have unfavorable long-term prognoses: bit.ly/3rL9EO8
#NeuroTwitter @AANMember #PalliativeCare #hospice #EndOfLifeCare
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merrilee needham ретвитнул
2022 Senior Australian of the Year Val Dempsey has never let ageism stand in the way of achieving her goals. Read her #PositiveAgeing story on overcoming stigma and finding the gold at the end of the rainbow: 💻 health.gov.au/news/vals-stor…
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merrilee needham ретвитнул
Yes means a better future for Indigenous Australians.
No means nothing changes.
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merrilee needham ретвитнул
Thank you @TheLancetNeuro for recognising the value of this article! An excellent example of collaboration between industry and academia, and one of the largest IBM trials to date, providing important lessons for IBM research @MikeHanna18 @UCLIoN @UCL_QS_CNMD
The Lancet Neurology@TheLancetNeuro
In our latest issue: @pedrommcmachado and colleagues report results from a randomised trial of arimoclomol for inclusion body myositis thelancet.com/journals/laneu…
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