Thank you very much to everyone who participated in neuroendocrine tumor awareness month and spread awareness of this rare, and often overlooked disease. Please consider supporting awareness the entire year. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

President Eisenhower died after his 8th heart attack and on autopsy was found to have a 1.5 cm left pheochromocytoma. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Peptide receptor radionuclide therapy (PRRT) or 177Lu-Dotatate can slow down tumors from becoming larger in patients with progressive metastatic neuroendocrine disease. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

New data shows that there may be better grading cut-offs to help predict how patients with neuroendocrine carcinoma will survive. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Patients undergoing liver debulking surgery had improved survival and progression free survival if more than 70% of their tumor was removed. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

68Ga-DOTATATE PET scan is a newer imaging technique that has shown benefit over traditional imaging for neuroendocrine tumors, including MIBG scans and Octreoscans. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Patients with multiple endocrine neoplasia type 2 (MEN 2) can get many pheochromocytomas in the same adrenal gland #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

There are different types of multiple endocrine neoplasia (MEN). Depending on the type patients may develop pancreatic neuroendocrine tumors or pheochromocytomas. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Did you miss our webinar last night for Pancreatic Neuroendocrine Tumors Awareness month? You can check it out now on our youtube channel! youtu.be/imADYZHUoLo via @YouTube @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara #NETAM2020

Most pancreatic neuroendocrine tumors (PNETS) do not secrete hormones that cause symptoms #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Only three more hours till our Neuroendocrine Tumor Awareness Month webinar at 8pm EST! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Join us tonight at 8 pm ET for our Neuroendocrine Tumor Awareness Month webinar! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Urine or plasma metanephrine levels are the preferred tests to look for pheochromocytomas and paragangliomas #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Don't forget to tune in tonight at 8 pm ET for our Neuroendocrine Tumor Awareness Month webinar! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Don't forget to tune in tomorrow evening at 8 pm ET for our Neuroendocrine Tumor Awareness Month webinar! Tune in to the AAES Facebook Page! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Pheochromocytomas can present as a fluid filled cyst on a CT scan. Please share. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Pheos and paras can be clustered into two groups. This helps researchers discover new genes & targeted Rx #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

About 40% of patients with pheochromocytomas and paragangliomas have a genetic mutation (germline) they can pass down to their kids. Von Hippel Lindau (VHL) and SDHB are two of the more common genes. #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara

Pheochromocytomas occur in the adrenal gland and paragangliomas occur outside the adrenal gland. Here is a para-aortic paraganglioma on CT scan! #NETAM2020 @VHLAlliance @AMEN_SUPPORT @CarcinoidNETs @NANETS1 @PheoPara