Autistic Experiences of Breast Cancer

@BritAsianCancer We are really pleased that @BritAsianCancer are a member of our Inclusive Information Guidance Group. Find out more at aebcstudy.co.uk/inclusive-info…

@BreastCancerNow @OUTpatientsUK @METUPUKorg @LobularBCUK @macmillancancer @Liz_ORiordan @CoppaFeelPeople This project is autistic led and the interview questions have been co-designed with our Lived Experience Advisory Group.

@BreastCancerNow @OUTpatientsUK @METUPUKorg @LobularBCUK @macmillancancer @Liz_ORiordan @CoppaFeelPeople

Participants needed for an interview study exploring the experience of breast cancer diagnosis and treatment as an autistic person, in the UK. To find out more please go to: aebcstudy.co.uk or scan the QR code in the advert below #ActuallyAutistic

Great article with @DrCharGoodwin about autistic experiences of breast cancer & the @AEBC_Study 👏 Our leads @AutisticDoctor & @Autistic_Doc are delighted to be collaborators on the study myweekly.co.uk/2024/05/28/bre… #Autism #Autistic #BreastCancer #AutisticResearch

In this article in @My_Weekly I talk about the impact of healthcare barriers on breast cancer for autistic people, and that it is vital we hear about autistic experiences which is what we will be doing in the @AEBC_Study myweekly.co.uk/2024/05/28/bre…

It was great to be one of the speakers today and to talk about @AEBC_Study and hear from all the other speakers about ways to provide truly inclusive cancer care. Thank you @leonealexander2 for inviting me.

Great insights into cancer diagnosis and care as an autistic person Fab talk by @DrCharGoodwin #OPC24 Research study aebcstudy.co.uk

Dr Char Goodwin kicking off the LWBC programme at #OPC24 with an informative talk on autistic people’s experience of breast cancer. Really interesting and thought provoking. Looking forward to following the research project @BreastCancerNow

I'm speaking in the Living With and Beyond Cancer theatre at @oncology_care Join me as I discuss barriers to healthcare for #autistic people and how they impact cancer care. I will also be talking about @AEBC_Study Hope to see you there! invt.io/1txbn10lh52

I will be talking about the @AEBC_Study and why listening to #autistic experiences of cancer is vital to understand the healthcare barriers in cancer care. #autistichealthcare #breastcancer

We have relocated our website to this new address aebcstudy.co.uk After some technical difficulties that have since been resolved we took the decision to relocate it. It has a new look but the same information and will be updated throughout the project. Check it out!

@fenlandphotos @BreastCancerNow Good to hear you are being supported. The referral process may be bringing back lots of feelings and memories. I hope you have space to decompress in whatever way works for you after appointments.

On #WorldCancerDay we would like to thank everyone who has been interested in our research project. We will continue to explore ways to improve cancer care for autistic people @AEBC_Study @BreastCancerNow #autistic #breastcancer

✒️NEW BLOG POST✒️ Cos Michael @autismage reflects on how her emotional processing of a recent diagnosis of ill-health and her experience of treatment was influenced by her autism. With links to @AEBC_Study. ndconnection.co.uk/blog/autism-ta…

@KerryMP on accessible healthcare for autistic people & the Autistic Experiences of Breast Cancer @AEBC_Study Plus inclusivity for people with dementia - some of whom are autistic @DrCharGoodwin @BreastCancerNow @macmillancancer @Autism @alzheimerssoc @scottishautism

@fenlandphotos Thank you and yes I agree. We have been having some great conversations with cancer charities and autistic-led charities and organisations. We are unable to contact breast units though as this is not NHS research and can’t advertise in those spaces.

Thank you to everyone who has RT and shared our posts about looking for Lived Experience Advisory Group Members, we have received more apps than expected and are no longer looking for new applications. Thank you #breastcancer #ActuallyAutistic #MedTwitter