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ALSvets
207 posts
ALSvets
@AlSvets
ALSvets are a team of US Veterans with ALS and caregivers
เข้าร่วม Ekim 2020
75 กำลังติดตาม154 ผู้ติดตาม
Thank you, @RepBrownley's office, for meeting with the @iamalsorg Veterans Team and supporting the healthcare and home care of all Veterans! @votevets
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ALSvets รีทวีตแล้ว
The VA final decision for accessing Relyvrio now better aligns with the FDA's criteria and will afford meaningful access for many. This is an important decision. We will continue to advocate for access so that no barriers remain for Vets living with ALS. bit.ly/3hdoTKd
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ALSvets รีทวีตแล้ว
"If these soldiers were dying in the field ...
we would leave no stone unturned.
We would use the best existing resources
to make sure they had whatever they needed to survive"
~ #GenMik
#Thanksgiving #Thanksgiving2022
#VeteransDay #ALS
prnewswire.com/news-releases/…
@johnfeal2
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ALSvets รีทวีตแล้ว
▪️Bellina Brothers = #Navy aviators
▪️Matt got 100% fatal & paralyzing #ALS
▪️Military Medicine: Pilots = 10x risk
▪️Matt regained function on #NurOwn
▪️Ask #FDA for public hearing re #NurOwnWorks
@joejonas @glenpowell Please RT
finance.yahoo.com/news/am-als-ve…
#DevotionMovie #Devotion
J O E J O N A S@joejonas
.@DevotionMovie is in theaters today! This movie is special and I couldn’t be more grateful for an opportunity to help bring this story to life. ❤️
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ALSvets รีทวีตแล้ว
Dear ALS community,
We have waited years for NurOwn to come before the FDA for approval. Given the FDA's recent decision on NurOwn, @iamalsorg and other organizations wrote a letter to the FDA requesting an AdComm for NurOwn.
Make your voice heard today: iamals.org/action/sign-th…
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Veterans with ALS send open letter to FDA requesting an Advisory Committee meeting to discuss NurOwn iamals.org/updates/vetera…
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ALSvets รีทวีตแล้ว
Widow Truth: Gonna have a win today. I am meeting with the Central TX VA Leadership to have what I am calling an exit interview. Discussing how to find a path foward for equality in care for ALS veterans they serve. @AlSvets #ALSveterans #Tomstroops #ALSwidow
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ALSvets รีทวีตแล้ว
The @iamalsorg Community Outreach Team offers the Tim Lowrey #ALS Panel Series to bring in a virtual panel discussion to groups, classes, association, organizations, or clubs. iamals.org/action/request…
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ALSvets รีทวีตแล้ว
Last year, our team and .@iamalsorg’s Community Support team worked together to create a suicide awareness and intervention campaign. This website is one result of our actions: bit.ly/3TpI1lM
m.youtube.com/watch?v=FX0FJj…
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ALSvets รีทวีตแล้ว
I AM ALS shares the frustration and disappointment felt by the ALS community today. Read our full statement regarding the FDA's refusal to file.
bit.ly/3A8trYv
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ALSvets รีทวีตแล้ว
Did you know veterans are more than twice as likely to be diagnosed with #ALS than civilians? RT this to spread awareness bit.ly/3VDG1bn @repSlotkin @chriscoons, @murkowskiS
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ALSvets รีทวีตแล้ว
Hell YEAH, it’s a BIG deal!!! So proud to be a part of @iamalsorg #Veterans Affairs Team! @AlSvets , are FIERCE!
Brian Wallach@bsw5020
Our team collaborated with the Veterans Health Administration #ALS Executive Committee to secure a seat for #veterans living with ALS on this committee. This is the first time veterans have been on this committee and it's a BIG deal. #collaboration #VHA drive.google.com/file/d/1dgA4BW…
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ALSvets รีทวีตแล้ว
The IAA Veterans Team raises awareness about veteran-specific ALS issues, educates the public, connects veterans with resources to improve their quality of ALS care and accelerate the development of and access to treatments and cures. @ALSvets
iamals.org/action/veteran…
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ALSvets รีทวีตแล้ว
ALSvets รีทวีตแล้ว
It's with great sadness and broken hearts that we announce @sandymorris333 our namesake and precious friend is no longer with us. We vow to continue the fight in her honor.
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ALSvets รีทวีตแล้ว
Opinion: Inspired by the Denver Principles, written in 1983 by people living with AIDS, the Morris ALS Principles aim to map out the ALS community's social contract with professionals and organizations focused on the disease. buff.ly/3BmzNoG
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ALSvets รีทวีตแล้ว
Dear ALS Key Opinion Leaders,
Thank you for asking if people with lived ALS experience are welcomed and involved before saying "yes" to speaking engagements. #endALS
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