AngelmanSyndrome

Nice read facebook.com/angelmansyndro…

We are kindly beneficiaries of Saturdays gala ball. As a lot of our families are also supported by Jack & Jill all funds raised will be helping our children. Please support our fundraising goals which will be ensuring our participation in exciting... gofundme.com/6urdyao?pc=ot_…

Reposting for info facebook.com/story.php?stor…

For info

Gentle reminder - Sunday IAD family meet up in playground. Closest entrance is the one on Whitechurch road - parking etc. Main entrance takes you closer to Market, coffee shops. All welcome 1-3. visitdublin.com/see-do/details…

For next week folks facebook.com/story.php?stor…

For Galway and west families facebook.com/story.php?stor…

For info cork area facebook.com/angelmansyndro…

Hi can you take time to vote for Angelman uk film which the very talented lotti fox has made. A quick register to vote then scroll down charities to Angelman uk. That’s it. facebook.com/angelmansyndro…

Delighted if we help support a great night where ASI will benefit as well. facebook.com/angelmansyndro…

350,000 EURO FOR RESEARCH ON ANGELMAN SYNDROME Call for Applications for Research Grants into Angelman Syndrome Deadline 4th January 2019 Angelman Syndrome is a rare neurogenetic disorder, resulting from the loss of function of a single gene,... angelmanalliance.org

For latest summary of alliance research kindly put together by Annette in more family friendly terms see web site - angleman.ie angleman.ie

Best of luck to Annette Kent one of our board members - wishing you all sunshine. facebook.com/angelmansyndro…

Emails asking for us to keep your details and send you updates making their way. I appreciate everyone has full inboxes but its the EU law and we have to make contact. Replies appreciated and required.