CDG Hub

🚨 The Curetopia Auction is LIVE! 10,000 rare diseases ignored by Big Pharma It's time to leave the system behind The first BioDAO on @solana 🧬 Uniting patients and patient families to accelerate $CURES and @endrarediseases 🔬 Details below 🧵👇

Latest research summary from #FCDGC:

An excellent introduction to glycoproteomics. Protein glycosylation is among the most important modifications in biology. We know relatively little about glycobiology, because it is hard to study. This primer describes our best tools nature.com/articles/s4358…

Free “Essentials” e-textbook to spread knowledge about #glycosylation

If you are a clinician or researcher with expertise in #CDG & would like to be added to our Clinicians & Centres or Researchers pages, contact us!

Sign up for our monthly newsletter to stay up to date on the newest additions to #cdghub, recent publications on #CDG, upcoming conferences, community events, clinical trials and more!

New CDG pages are published on #cdghub ! Learn more about disorders of N-linked #glycosylation ALG2-, ALG9-, ALG11-, ALG14- & DPAGT1- CDG here cdghub.com/cdgs/

Proud of our most recent publication🎉 a direct result of joining families and professionals in the same room, giving them equal voices to tackle those shared hurdles 🥰 mdpi.com/1660-4601/19/1… @worldCDG @CDG_MDPhD @FrontierCDG @CdgHub @CDGCAREorg

New podcast for #CDGawarenessday. Dr Jaeken and @FreezeHud CDG or not CDG Soundcloud: soundcloud.com/user-109006120… Apple: podcasts.apple.com/sa/podcast/cdg… Spotify: open.spotify.com/episode/1WHQGw… #podcast #scicomm #raredisease #CDG #standunited4CDG @worldCDG @CdgHub

Happy CDG Awareness Day! May 16th is World CDG Day & Prof. Jaak Jaeken's bday who discovered CDG in 1980. Let's come together to raise awareness & #StandUnited4CDG ! #WorldCDGDay #CDGHub #raredisease #CDGAwareness

CDG and glycobiology terminology can be complex. Check out our integrated glossary to learn key terms as you read or visit the “Glossary” for a complete list of terms to know. #CDGHub #WorldCDGDay #StandUnited4CDG #CDG #glycosylation

CDG Hub has curated resources for CDG patients & families to help them learn about CDG, therapies, clinical studies & connect with other CDG families Visit the “Resources” page to learn more cdghub.com/resources/ #CDGHub #WorldCDGDay #glycosylation

Check out our “Clinical Trials” page to stay up to date on current and future CDG studies! Enroll in a study today to help researchers advance knowledge and develop therapies for all CDG types. cdghub.com/clinical-trial… #CDGHub #WorldCDGDay #glycosylation #CDG

Discover researchers who are working to better understand CDG, improve diagnosis and develop new treatments or cures. Find potential collaborators to accelerate discoveries on CDG! Visit the “Researchers” page to learn more! cdghub.com/researchers/ #CDGHub #WorldCDGDay #CDG

CDG Hub maintains a growing list of expert clinicians & centres diagnosing, treating & researching CDG. Search for CDG experts by country & areas of specialty. Visit the “CDG Clinicians & Centres” page to learn more! cdghub.com/cdg-clinicians… #CDGHub #WorldCDGDay #glycosylation

Did you know 170+ types of CDG have been discovered? CDG Hub has educational pages summarizing the current state of knowledge on 30+ CDG types. Visit the “All CDG types” page to learn more! #CDGHub #WorldCDGDay #glycosylation #CDG cdghub.com/cdgs/

We are excited to announce the launch of CDG Hub! It’s designed to educate researchers, clinicians, patients and families on CDG. Our goal is to help unite the CDG community, increase public awareness, and inspire collaborative research. #CDGHub #WorldCDGDay #CDG #glycosylation

CDG Hub will be launching this month!