EXPANDstudy

Great day at our #thinkneonatal stakeholder event. Special thanks to @Neonatalpsych and our fantastic Parent Advisory Group. Brilliant day. Keep an eye on our website for our next day eoeneonatalpccsicnetwork.nhs.uk

Would you like to hear what neonatal parents told us about their experience after discharge? Check out our infographics below ⬇️

Thank you to everyone who helped share the details of our focus group. ❤️ It is great to see so many neonatal professionals passionate about improving follow-up for neonatal families! 🙌🏼

📣Do you work with families who have had a baby in neonatal intensive care? Please join our focus group on Monday 2nd of September @ 12pm. During the group we will be working together to develop recommendations for neonatal follow-up. Find out more ➡️ rb.gy/jbf2ty

@DrFionaCh @drclairewilson

Do you work with families who have experienced neonatal intensive care? We would love for you to join our focus group where we will be discussing the needs of neonatal families after discharge. Find out more and register your interest below ⬇️

@Blisscharity @LeosNeonatal @_SmallestThings @IcklePickles @PeepsHie @vCreateNICU

@Blisscharity @LeosNeonatal @_SmallestThings @IcklePickles @PeepsHie @vCreateNICU

Thank you to all of the amazing parents who took part in our research and shared their story. Take a look at our infographic below to read about the key themes that were discussed... highlighting the need for more targeted support for families after discharge. #nicu

@LeosNeonatal @_SmallestThings @PeepsHie @Blisscharity @vCreateNeonatal @SpoonsCharity @RainbowTrustCC @LullabyTrust @IcklePickles @angels_neo @dadpaduk @dadmattersuk @PpromAwarenessU @LittleRooFund @GeneticAll_UK @FirstTouchNNU @TinyLivesTrust @NICUMHAW @Neonatalpsych @DrFionaCh @miraclemoonuk

@LeosNeonatal @_SmallestThings @PeepsHie @Blisscharity @vCreateNeonatal @SpoonsCharity @RainbowTrustCC @LullabyTrust @IcklePickles @angels_neo @dadpaduk @dadmattersuk @PpromAwarenessU @LittleRooFund @GeneticAll_UK @FirstTouchNNU @TinyLivesTrust @NICUMHAW

Have you had a baby in neonatal intensive care who was discharged home 10-18 months ago? We would love for you to talk to us about your experience, the potential impact on your mental health + what you think could improve support for families like yours➡️ bit.ly/48JytdI

3 top tips from @Neonatalpsych for parents to consider when going home ❤️Give yourself time ❤️Take a graded approach to anything new or overwhelming ❤️Be compassionate to your shifting emotions and recognise when you’re putting yourself under undue pressure #NICUMHAW23

Thank you so much to the lovely Katherine for sharing insight into the @EXPANDstudy as part of #NICUMHAW23. If you'd like to speak to Katherine, we've popped her email on the video above, and you can follow her on social media too!

If you'd like to get involved and support the @EXPANDstudy take a look at how you can be part of this crucial research in our video. #NICUMHAW23

"We asked 33 different symptoms of anxiety and low mood, and at the time of discharge 1 in 2 parents reported each symptom." Learn more about the results of the @EXPANDstudy so far, and where we can help support families. #NICUMHAW23

We are so very excited to announce the line up for next week’s @NICUMHAW !! It’s all been going on behind the scenes and we can’t wait to relaunch the week, with a focus on ‘The First Six Months’ come and take a look! #neotwitter #nicu #nicumhaw23

It's the first day of #NICUMHAW23, and today we're focused on the first day at home, and what that's like for families. We're hearing from @EXPANDstudy & Anita and sharing experiences from parents throughout the day! Join in the chatter with #NICUMHAW23

@BetterBfing We are in the process of writing up all of our results but here is a summary report of some of the key findings…

@EXPANDstudy Where can we read the results of the 2022 study please?

Results from our 2022 survey showed that infant feeding is a common challenge for many parents and that more information and practical support is needed both on the neonatal unit and at home after discharge. #neotwitter #nicu