Prof. Karen Woolley

Weekend read? Patient authorship and the 4Gs: Guest, ghost, guise, guarantor? linkedin.com/pulse/patient-… via @LinkedIn

Same, same, but (quite) different. 1st comparison of #PubMed vs #EuropePMC for #PatientAuthor pubs. Same = can search both Same = rapid increase clear Different = 2x difference in output We need research on research methods to advance patient authorship! @ISMPP

Practical and pioneering work. Well done researchers! #PatientAuthor proof-of-concept study for patient use of open notes with large language models academic.oup.com/jamiaopen/arti…

#PxP25 Truly global. Truly sensitive to different languages (captions), expertise (context/content), and timezones (alarm clocks not always needed). With #AI, we can also ask speakers questions in their local language...not perfect, but progress.

“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25

“We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25

#PxP25 Day 2 (or night 2?) starts with another diverse panel and audience - all here to listen and learn!

#PxP25 - a patient-led, interactive, respectful, and enticing start! #PatientPartner #PPI #PatientEngagement

Power in patient partnerships. Much to learn...hope this recent publication helps all members of research teams (patients and nonpatients). More here: linkedin.com/feed/update/ur…

Awareness of the importance of using #PatientAuthor as one affiliation is increasing. Best way to find patient-authored publications...with patient authors' permission. Transparency helps! linkedin.com/feed/update/ur…

Here is some more background behind the reason for this paper...linkedin.com/feed/update/ur…

One of the most important papers I have had the privilege (& burden) to HAVE to have published. Is this one of the most glaring and fixable gaps in #clinicaltrialregistries? See comment for link to further details. doi.org/10.2196/72015

You can access an AI-generated podcast of our paper here. As human authors, we think the bots nailed it. doi.org/10.6084/m9.fig…

Great to see that EQUATOR has now updated the SPIRIT link...hoping the old SPIRIT website includes a re-direct soon so people don't use the 2013 checklist

Update to SPIRIT and EQUATOR websites coming soon?

So excited about this conference in a few months- here's hoping all of you out there who are interested in learning more about #PatientEngagement in #Research will join us. The program is entirely designed by #PatientPartners! #ConsumerInvolvement #PPI

May the updates to reporting guidelines continue - is Patient and Public Involvement reported (if not, why not?) #PPI @EQUATORNetwork Well done to #CONSORT #SPIRIT #CHEERS

International #ClinicalTrialsDay 2025 - will 2026 see a better way for #patients to find trials they (& other patients) trust? Our 'call-to-action' publication identifies a gap in registries that should be fixed. #CTD2025 #PPI

What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary @ISMPP

@blazingocelots @ISMPP Can also follow #ISMPPAnnual on BlueSky, but not a lot of ‘content’ traffic…so far. They are all having too much fun?!?! Watching from afar too.

@blazingocelots @ISMPP Not the same without your tweets/Xs - try #ISMPPAnnual