RRPFORG

We are here! April 17, 2023, a RRPF bucket list day! #IPVC2023 #recurrentrespiratorypapillomatosis #HPV #whilewebreathewehope

The RRPF is thrilled about this award. Elevating the voices of patients around the globe can and will drive us closer to non-surgical treatments!

Raymond So and Marissa Stiff were the 2022 Founders Scholarship Awardees. You can read more about their stories and work here: ow.ly/Cv4O50N1sAh. We're raising funds for the 2023 Scholarships until Rare Disease Day on 2/28. Show your support today! rrpf.networkforgood.com/projects/18503…

Raymond So and Marissa Stiff were the 2022 Founders Scholarship Awardees. You can read more about their stories and work here: ow.ly/Cv4O50N1sAh. We're raising funds for the 2023 Scholarships until Rare Disease Day on 2/28. Show your support today! rrpf.networkforgood.com/projects/18503…

Visit rarediseaseday.org/downloads/ to add a social media profile, filter, banner, and more! Let's wear our stripes proudly! "Alone we can do so little; together, we can do so much." -Helen Keller

Together, with the facts, we can and will end the reign of HPV related cancers and new cases of JORRP!

Any type of illness that alters your ability to communicate, as well as your airway, brings a despair only those impacted truly understand. We see this in so many RRP patients.

Study shows incidence of suicide among pts undergoing cancer operations was significantly elevated compared to general population, highlighting need for programs to actively implement regular suicide screening among such pts ja.ma/3iFveia

The RRPF will be in-store from 12-2 today! #KendraScott #Bentonville #RogersAR #recurrentrespiratorypapillomatosis

@DavidFajgenbaum @MilkenInstitute @TanishaCarino @jonirutter @millerbioethics How to get past barriers to biosimilar repurposing that wasn’t on the original drug.

Excited for tomorrow’s panel @MilkenInstitute on #drugrepurposing with @TanishaCarino, @jonirutter, @millerbioethics, & Peter Stein! What ?s about repurposing should we discuss?

@DavidFajgenbaum we would welcome the opportunity to chat about drug repurposing. Our President, Kim, is attending Milken virtually. The RRPF has identified a drug for repurposing.

I have had some of the worst experiences of my life going through TSA pat down as someone who’s body type sets off the screening due to my #RareDisease. Thanks for the support @MarkHamill

Are you a clinician that treats RRP patients? Have you wish their was a resource you could share with them about the RRP journey! It’s coming!! A patient toolkit is a 2023 project! Support the RRPF on Giving Tuesday to partner with us on this project! #laryngealpapilloma #HPV

A post of our gratitude to you-our partners.

Support the RRPF when you purchase your Holiday cards! #laryngealpapillomatosis #recurrentrespiratorypapillomatosis #fundraiser #investintheRRPF #CureRRP

You can follow the RRP Foundation on the following social media accounts to keep up with the latest news and general engagement with the foundation. Facebook: Recurrent Respiratory Papillomatosis Foundation Twitter: @rrpforg1 Linkedin:@rrpforg Instagram:@rrpforg

Work on your shopping list today and support the RRPF while benefitting from 20% off! Minted.com offers holiday cards, stationary, unique invitations, art, home decor and an array of gifts! Use the code FUNDRAISERRPF at checkout for all your holiday needs.

The RRPF is reminding you that we can be found on LinkedIn, Instagram and Facebook…as well as our website RRPF.org.

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